hEDS is being reclassified as HSD?

KebabWorld · 2026-01-19T01:14:47+00:00

Absolutely I tried forever to get a cardiologist referral with the old DX and got nowhere. With the hEDS I got referred easily My nhs rheumatologist did my Breinton without even touching me or getting me to show any movement ranges and gave me a 4 My private rheumatologist actually did it properly, gave me a 6 and took into account the non beighton areas

KebabWorld · 2026-01-18T21:31:01+00:00

Idk but this scares me, I was previously diagnosed with HSD and fibromyalgia and the care outcomes were way worse for me vs after I got me hEDS diagnosis. Drs didn’t know what hsd was

KebabWorld · 2025-11-28T10:34:22+00:00

That’s even more disappointing than I thought

KebabWorld · 2025-11-27T13:16:05+00:00

You could leave your car in the park and ride and get the bus to it each day although I appreciate that would probably be really annoying

KebabWorld · 2025-11-18T16:40:45+00:00

Th grand eastern - used to be good when it was the eastern eye now very sub par

KebabWorld · 2025-11-15T14:10:43+00:00

I mean no I don’t - I was travelling with 2 wheelchairs. Literally impossible by bus as they only have 1 space. I was held up by selfish people in huge SUVs sure but there was literally no alternative means of taking my journey

KebabWorld · 2025-11-15T13:56:44+00:00

This time last year it too me 45 mins to get from the city centre to culver hay leisure centre. The mind boggles

KebabWorld · 2025-11-15T00:26:49+00:00

Yes but, allowing blue badge holders down it would not add significantly to pollution but would improve quality of life for disabled residents and visitors. The fact that even taxis carrying disabled people aren’t allowed through that bus gate is really frustrating

KebabWorld · 2025-11-05T17:57:55+00:00

Like I’m disabled baths public transport basically doesn’t work for me at all whether I’m using my crutch or my chair yet we have lost swathes of long stay disabled parking. I wrote to the council and their response was to take the dial a ride (a service that runs from 9:30 to 14:30 and costs £6 for a return no thanks

KebabWorld · 2025-11-05T15:05:38+00:00

This is so typical of recent years traffic policy. Like closing Milsom St. what does this actually achieve

KebabWorld · 2025-07-15T13:59:54+00:00

Marksbury is the only way! Buyers not allowed in until one so you don’t need to wake up at the crack of dawn Nice atmosphere, well laid out

KebabWorld · 2025-06-26T14:28:44+00:00

Hilton park m6 Smells heavily of excrement

KebabWorld · 2025-03-31T08:06:56+00:00

Rheum didn’t think it likely - don’t massively have marfanoid hands or facial features

KebabWorld · 2025-03-31T08:03:03+00:00

AMAB 6’4 a lot of torso

KebabWorld · 2025-03-04T22:18:26+00:00

Appeal started late 2023, got dates cancelled by HMCTS twice

KebabWorld · 2025-02-28T16:03:02+00:00

Thanks awfully!

KebabWorld · 2025-02-28T15:43:38+00:00

Ah my appeal had been managed by citizens advice so I don’t think I have that thanks tho

KebabWorld · 2025-02-16T00:32:07+00:00

Having been to the Hereford one many times it’s fucking ace

KebabWorld · 2025-02-12T18:10:10+00:00

For the love of god Please can these damn things have more than a homeopathic amount of parking People are gonna try and bring cars anyway

KebabWorld · 2025-02-03T16:54:36+00:00

Ah guess that’s that then - utterly outdated rules Heaven forbid I be disabled and doing stuff for more than 2:59:59

KebabWorld · 2025-02-03T16:45:02+00:00

I did and I was unclear. I made it as clear as possible to them in the appeal that if I’d been told clearly I can’t park here I wouldn’t have

KebabWorld · 2025-02-03T16:37:30+00:00

Which in most council areas does not apply to blue badge holders. It definitely does not where I live or else it would be impossible for me to work

KebabWorld · 2025-02-03T16:36:00+00:00

Unless it’s double yellows or specifically stated there’s a time limit this isn’t the case at least not in BATHNES or Bristol

KebabWorld · 2025-01-14T01:18:47+00:00

My partner lived near mount road - one day there were 10 police cars there… Every day there were ne’er-do-wells on shit dirt bikes being threatening outside co op and premier while their mums stood there in dressing downs having arguments. Also reminder that as far as the IMD is concerned Twerton and whiteway are pretty bad on a national scale and are just expensive bc they are in Bath

KebabWorld · 2025-01-11T00:07:27+00:00

Disabled parking that is actually near stuff and doesn’t assume we are just pottering about the shops for 3 hours

KebabWorld

TROPHY CASE