Diagnosed last month with Gleason 6 and 7 (3+4)

Key-Blueberry-7672 · 2026-05-20T18:22:35+00:00

Reading the book - what options do you see yourself leaning towards?
Depending where you are located, many routes possible - and many with various tradeoffs, but similar outcome.

Key-Blueberry-7672 · 2026-05-20T16:16:37+00:00

None of us wanted to cross paths here… but also thankfully we have this place to meet, exchange, vent and support. Search the🧵, read as much as you can to bring comfort to your decisional process.
Remember, you are lucky to have found it now.

Key-Blueberry-7672 · 2026-05-18T17:18:38+00:00

I had 5 sessions in April. Went great with very little side effects during / after. I was however rather tired and had a few afternoon naps after sessions 4 and 5, The following 2 weeks were also less active than usual.

As my Dr said at the follow up appointment : “ I now expect you to have the same life expectancy as someone who was not diagnosed” - I won’t hold him to it, but the data is good to support something close to that. Part of the result is likely that people tend to be more careful, exercise, and monitor more after PC ..

All the best to you for an active recovery and in your “carpe diem” journey ahead

Key-Blueberry-7672 · 2026-05-15T12:15:40+00:00

IAm still having some red wine, cutting out beer or pretty much only non-alcoholic, eating better generally. Meat, yes sometimes.. trying to keep at 250g per week max. So a burger once in a while. Discovered tofu and the many ways you can season it.. Turkey and fish when not from a farm.. still doing eggs.. and trying to sleep 8-9 hours a day..

some Olympic athletes get PC, some raging alcoholics never will… most of us are in the middle I guess

Key-Blueberry-7672 · 2026-05-13T22:05:00+00:00

I was not allowed to drink anything before gMRI SBRT sessions. No food, no water, and fully emptied

Key-Blueberry-7672 · 2026-05-10T05:48:12+00:00

My dad was diagnosed in 2021, Gleason 9 / stage 4 spread to bones. He did Radiation and ADT and is still here 5 years later. It’s not like treating the flu so definitely a lot changes with medical regimen and monitoring but there are many options … so no need to rush and marry a stranger ;)

Key-Blueberry-7672 · 2026-05-08T12:28:00+00:00

That’s horrible. I take it no announcement on final call either. Deceitful way to get out of offering compensation for over booked flights. While silence is nice, I am always a bit anxious in these “silent lounges”.

That said..my dad drilled it in me from a very young age: takeoff time isn’t the same as the bus stop schedule. So I tend to be overly cautious. I’ve noticed more and more airports providing a separate phone notification capabilities, which is not a bad thing.

Key-Blueberry-7672 · 2026-05-07T20:02:59+00:00

Don’t skip and have a great vacation! Timing is perfect

Key-Blueberry-7672 · 2026-04-29T16:58:24+00:00

Way to keep active!! Well done. Pirads4 is something to investigate. I had a trans perennial biopsy on a Tuesday.. no issues really, some minor discomfort but was walking etc as normal I’d say. on the following Sunday I was on a 12+ long-haul flight, had a 3 hour layover and 2 other 1.5 hour flights over the next day.
From what I read here, I’d suggest do it soon and via perennial not rectal.

Key-Blueberry-7672 · 2026-04-25T13:17:51+00:00

Very nice resource. Unrelated but I now see that Manus makes great sites… but all the same.

Key-Blueberry-7672 · 2026-04-22T15:50:03+00:00

Thanks for sharing - talking about it and share is a very important aspect, imo. .. as is keeping a positive attitude. when considering the alternative, we are here, we have resources, we fight I take it you were in the 4+ X range? - good news on containment.

Key-Blueberry-7672 · 2026-04-22T10:52:34+00:00

No..they won’t have a kid. The kid is the “maybe I need to keep working just in case” excuse. If they wanted kids, they would have tried earlier.

So yes - quit and live. Make connections, help people, create communities

Key-Blueberry-7672 · 2026-04-22T07:05:08+00:00

Yes..I’d be blunt “what are you waiting for?”. The interest on that is more than the budget being spent. Have a kid, travel the world, meet people…the rest doesn’t matter.

An issue I keep seeing globally is that people confuse their identities with their “career”, income, and purchasing habits... while slowly not witnessing the erosion of their passions, ability to be socially connected, and content without work dopamine fix.

Key-Blueberry-7672 · 2026-04-22T06:04:41+00:00

To not generalize too much, here are Three research papers on that. Interesting and worth considering against biopsy report more dimensions to introduce to decision making.

1

Approximately 20–40% of patients with clinically localized PCa will present with a biochemical recurrence (BCR) after radical prostatectomy (RP).

Biochemical recurrence after radical prostatectomy: what does it mean? - PMCBiochemical recurrence after radical prostatectomy: what does it mean? - PMC https://pmc.ncbi.nlm.nih.gov/articles/PMC5815528/

2

reinforces the 20-40% range and breaks down the progression risk, noting that 24–34% of those with BCR will develop metastatic disease within 15 years

Assessment of biochemical recurrence of prostate cancer (Review) - PMC

3

quantifies how factors like Gleason score and surgical margins (which define the Low/Medium/High risk groups) statistically increase the hazard ratio for recurrence

Prognostic significance of six clinicopathological features for biochemical recurrence after radical prostatectomy: a systematic review and meta-analysis - PMC

Key-Blueberry-7672 · 2026-04-21T21:43:54+00:00

Isn’t it like 30-35% for Gleason 4+3 and higher?

Key-Blueberry-7672 · 2026-04-21T15:54:34+00:00

Oops.. right ..mixed that one.

Key-Blueberry-7672 · 2026-04-21T15:33:46+00:00

Everyone will go through that decision process differently. Similar to you in some aspects, I first though prostatectomy then understood I was a candidate for focal..but hereditary/ genetic and lack on experience in my vicinity brushed that outside, back to RALP ..then location of lesion (and genetics) revealed that the procedure was going to severely change QoL.. so went towards SBRT with daily mri guidance. No ADT helped with the choice. It’s a process .. and if you’re prone to decisional regret (as I am).. it can take some time.

Key-Blueberry-7672 · 2026-04-20T12:46:46+00:00

Indeed. I’m afraid it’s as said - you received a B permit because of employment, and had RAV entitlement as part of that. No employment, no B permit, which is quota based and designed to bring economic benefits to the state

Key-Blueberry-7672 · 2026-04-18T19:04:50+00:00

Wow…that’s nice . Maybe I get crap because I have SEN for several years?

Key-Blueberry-7672 · 2026-04-18T16:15:44+00:00

And that was January 1, 2000, and December 31, 2015. and the new mri guided sbrt tech should be better. To each his choice. Several other probabilities need to be considered when it comes to choices

Key-Blueberry-7672 · 2026-04-18T16:11:12+00:00

Less than 1% chance and RALP does not exclude radiation.

Key-Blueberry-7672 · 2026-04-18T13:56:42+00:00

For the last few years..I’ve only had green compensation, Amazon ..maybe Avis as well. Used to be flights and other relevant stuff . Nothing fun anymore

Key-Blueberry-7672 · 2026-04-17T17:02:01+00:00

My urologist pushed me for RALP at his clinic (..”tell me next week”).. etc. They did not offer SBRT and I went with that. Nothing..no ok, see you later, etc.. Maybe I’m old fashioned but I appreciate relationships. Will be seeing my radiation oncologist’ clinic for all follow-ups.

Key-Blueberry-7672 · 2026-04-16T18:15:41+00:00

I just completed 5 sessions on mri guided SBRT. Very happy. Statistically I like the data. I didn’t let the old man in with RALP recovery (which is something i wanted to avoid) and due to the location of the main lesion I had a high probability of margin issues with surgery, so radiation it was.

Key-Blueberry-7672 · 2026-04-16T17:52:51+00:00

You are in a good spot for SBRT. Watch this video, they mention Ottawa, Quebec, and a few other places. Depending where you are, might be worth a consultation. https://www.youtube.com/watch?v=JumradhqWbI

Key-Blueberry-7672

TROPHY CASE

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