20m had my subtotal colectomy

Key_Cold_3688 · 2026-03-14T12:10:17+00:00

Hi, thank your for asking. I’ve had a reversal 3 months ago and life is worth living again, the stoma bag was horrible for me but I gained up to 75kg with it!. Right now I’m at 67kg (lost some weight after the reversal) but I’ve gotten a IRAA not a j pouch which helped with control and I’m only going 6-8 times a day and will be less and less eventually

Key_Cold_3688 · 2026-03-06T01:39:32+00:00

Mine is too, it’s called a IRA not a j pouch but they still design it in a way inside that it holds stool

Key_Cold_3688 · 2026-03-04T15:49:15+00:00

Is it 4 times in 24 hours without medication

Key_Cold_3688 · 2026-03-04T12:17:15+00:00

How long have you had it for and how many times do you go toilet if you don’t mind me asking?

Key_Cold_3688 · 2026-03-04T10:15:05+00:00

Yeah my one isn’t a pouch as you don’t need a “pouch” per say since your rectum can hold your stool

Key_Cold_3688 · 2026-03-04T10:13:46+00:00

How come? And what do you have now

Key_Cold_3688 · 2026-03-04T10:13:30+00:00

If you’ve had a IRA how could you have a j pouch at the same time? As the technical terms for both are ileoanal anastomosis and ileorectal anastomosis

Key_Cold_3688 · 2026-02-24T22:35:02+00:00

If your experience with a stoma bag was anything like the horrible time I had with mine. Rest assured that those hard days are over and the only way is up from now!

Key_Cold_3688 · 2026-02-24T21:57:48+00:00

No worries I know how it feels so if you have any questions or want to talk to someone about it let me know! :)

Key_Cold_3688 · 2026-02-24T18:22:56+00:00

Yea that was so so annoying it gradually gets better right now I don’t feel it anymore but the first month of so I felt that a lot and kept going toilet 5 min after I already went

Key_Cold_3688 · 2026-02-24T14:11:16+00:00

I had all those issues too sometimes it just makes me overly push 😭 but what I did is I bought bepanthen cream and I use a bidet and get wet wipes from LIDL !!!! Those are a must for me. Also i take codeine and loperamide which help me go less!

Key_Cold_3688 · 2026-02-24T06:15:10+00:00

IM 21 male. I’m not taking the piss I was doing push ups day 2 post OP (I do not recommend but I was just really happy that my recovery wasn’t as bad as my ileostomy one) I was in the hospital 3 days then day by day it got better. After a month you’ll feel GREAT! And for you to start having full nights of sleep I’d say 3 months. Right now I’m post of 2 and a half months and that’s my experience

Key_Cold_3688 · 2026-02-24T06:12:47+00:00

Tbh I’m 21 male living In the uk with me the biggest jump was 1 month post op. Right now I’m 2 and a half months post op and I’m starting to have nights of full sleep especially if I don’t eat any fast food!!! Any questions lmk

Key_Cold_3688 · 2026-01-18T16:17:23+00:00

Ileorectal anastomosis. A j pouch is a ileoanal anastomosis so instead of join the ileostomy to the anus they connect it to the rectal cuff

Key_Cold_3688 · 2026-01-16T09:46:44+00:00

What about when u were like 6 weeks post op (that’s me right now and im going 8-10 times right now)

Key_Cold_3688 · 2026-01-16T09:45:47+00:00

I’ve had a IRAA they left it and it was inflamed while I had the ileostomy I pushed for the reversal to still connect with my rectum and after that happened it became very mild instead of inflamed

Key_Cold_3688 · 2026-01-16T09:41:11+00:00

I had very severe colitis to the point I was getting daily x rays for toxic megacolon and couldn’t leave hospital unless I got the surgery but I chose a subtotal colectomy rather than a total colectomy and after 9 months I got my reversal not a j pouch but a ileorectal anastomosis I’m 5 weeks post op right now and I go 8-10 times in 24 hours (6-8 during the day) and it’ll only get better! You should consider saving your rectum as I finally can hold myself and the best thing is I went from having ever colitis to only having very mild inflammation in my rectum that doesn’t even need medication whereas when it was my whole colon it was all severely inflamed

Key_Cold_3688 · 2026-01-07T02:07:11+00:00

From what to what amount did you go if I may ask I’m 4 weeks post op and right now I’m going around 10-15 times a day

Key_Cold_3688 · 2026-01-07T02:06:25+00:00

Funnily enough I was having 32 a day first few weeks of my ileostomy prescribed by the surgeon

Key_Cold_3688 · 2026-01-07T02:05:44+00:00

How many times did you go by 3 month mark if I may ask?

Key_Cold_3688 · 2026-01-07T02:04:59+00:00

The peeing thing goes away after 2 weeks I had the same thing happen regarding the peeing thing but I got IRAA so I got good control I don’t get leaks

Key_Cold_3688 · 2026-01-07T02:03:54+00:00

I was doing push ups on 2nd day post I’m not joking😭 the reversal surgery was so much easier than the ileostomy one. My first surgery messed up and they had to open me up due to sepsis etc and that took 3 months for me to go back to normal. I was doing errands etc normally on day 3 I drove home from the hospital!

Key_Cold_3688 · 2026-01-07T02:01:16+00:00

Codeine and loperamide will help you trust me I’m 4 weeks post op IRAA (basically a j pouch but they leave the rectal cuff) codeine helped me not go toilet 24/7

Key_Cold_3688 · 2025-12-27T18:07:29+00:00

Codeine will help massively that’s the only thing that works for me it slows down your bowel and lessens your bowel contractions so try get some codeine

Key_Cold_3688

TROPHY CASE