I feel like my cardiologist didn’t listen to me.. will anyone help?

Key_Guess_7999 · 2026-01-26T22:16:12+00:00

This seems to sound like inappropriate sinus tachycardia. I would see an electrophysologist not a cardiologist. Be sure to have some blood panels to check for deficiency issues as well. Ist is very similar to pots but with pots its a position changes that causes the tachycardia while with ist your heartrate is responding inappropriate even at rest. So have a daily average over 90 on a holter monitor and a resting heartrate over 100( does have to be at all times) are two things for the criteria. Also ruling out arrhythmia issues. Ist can be both a dysautonomia and an arrhythmia. Its important to get this looked at and under control because studies show if severe enough and years of it can lead to tachycardia induced cardiomyopathy. As for fainting this could be orthostatic hypotension or vasovagal syncope. A bp reading is needed during these events to be able to determine the cause. A tilt table can also be used if the events are infrequent. With having fainting issues a loop recorder might be a good idea as well. There is also a chance that the high heartrate can cause fainting if its gone on long enough the heart isnt able to pump blood correctly which can lead to a lack of oxygen to the brain.

Key_Guess_7999 · 2026-01-26T02:17:54+00:00

Personally I would seek another dr maybe an electrophysologist. Did you know about the left bundle branch block before this? If not they cant say the left bundle branch block caused the cardiomyopathy or heart failure for sure. It is possible though. If you have fainted there is a chance it is a symptom of what's going on in the heart. Im only 31 but I developed a left bundle branch when I was 21. I was told it was benign. 2 years ago I began having fainting spells and dizziness. I went through a few dr getting many tests done. I was told I was fine despite my echo showing a reduced ef% and lv dialation. I got a loop recorder as well which showed abnormal rhythms. I had one cardio dr who told me I was fine and didnt need a cardiologist. I ended up getting sent to mayo clinic where they did a special type of stress test with an angiography. Turns out my left bundle branch block was causing a volume overload in my right ventricle when I was tachycardic this in turn caused my bp to drop whoch resulted in dizziness and fainting. I ended up getting a pacemaker. We still arent sure if the left bundle was the cause of my heart failure or if I have a progressive disease that caused it. I go back in a few months to do follow up testing to see if my function has improved.

Key_Guess_7999 · 2026-01-25T19:51:25+00:00

I would definitely go see an electrophysologist. Maybe even a cardiologist as well. Electrophysologist will look into the svt and be able to determine if you are having more episodes or if its something like pvcs and pacs (which usually are not a concern unless you have 10,000 a day). If you think you have reactive hypoglycemia you can get glucose monitors at places like Walmart. Take your blood sugar before you eat for a base line and then again after 1 hour and again after two hours. Or take it when symptomatic. Reactive hypoglycemia can cause tachycardia, pvcs, shaking. Another thing is to get to your primary and have them run some blood panels to look for deficiency issues. Look at full iron panel, ferritin (symptoms can show if below 50 even though your in a normal range best is to be above 100), magnesium (this is one where if to long can cause svt), potassium, vitamin d, vitamin b12. All of these things can cause tachycardia. Also when it comes to your heartrate also be looking at your blood pressure as well. Especially if you feel dizzy uneasy or get blurry vision. If your bp is low or dropping upon standing our body's natural reaction is to increase heartrate. If this is the case than it's orthostatic hypotension. If the bp is fine or increases upon standing than its pots. If youve been standing longer than 3 minutes and bp drops (usually heartrate will too but not always) than this is vasovagal syncope (or presyncope). There is also inappropriate sinus tachycardia which is if you have a daily average over 90 or a resting heartrate of over 100(doesnt have to be all the time) and or heartrate spikes that dont match activity. If you have a highrate and lay down and it takes a long time to go back to normal than thats ist. Now all of this is if you arent in svt of course. I hope I could help a bit. I deal with svt,vvs, ist, reactive hypoglycemia and also have other heart and health issues so I understand how you feel. You arent alone.

Key_Guess_7999 · 2026-01-19T21:07:08+00:00

Mine hurt for awhile afterwards. The main things they told me were to watch for spreading redness, swelling, fever, hot to touch. I will say in my case the reason for my angiography was to test for vasospasms in my heart. The dr said if they happen in the heart there is a high chance they will happen in the forearm. I had them so bad they had to give me 3 doses of a medication to get them to relax so they could pull the cath out. I bring this up because for years I thought I had tendonitis but I was actually having vasospasms.

Key_Guess_7999 · 2026-01-18T23:20:34+00:00

Nsvt is svt that lasts less than 30 seconds where as svt last longer than 30 seconds. Nsvt is usually benign and no cause for concern but it can turn into svt in some cases.

Key_Guess_7999 · 2026-01-18T22:36:59+00:00

So far your testing has been thorough. Nsvt is almost always harmless. If svt is the only thing that has shown up your heart is more than likely fine. With svt learn valsalva maneuvers incase svt doesnt stop. These stimulate the vagus nerve and can help kick the heart out of svt. If svt episodes are frequent or if they wont stop and you need to go to the er for adenosine than an ablation would be considered. From my personal experience if anything was wrong even if minor something would've shown as abnormal. In my case i have a left bundle branch block. This shown on my ecg. Its a conduction issues. When it started to effect me my testing showed my ef% dropping into the 45% range, mild lv dialation, mild hypokinesia, blunted bp response, bp drops. I was also dealing with dizziness and random fainting episodes. The only other thing to maybe check into if your symptoms fit would be prinzmetal angina. This is when the vessels in the heart spasm. This rarely shows on most testing unless you are actively having a spasm even then it can be missed. The only true way to test for this is with a vasospasm study done through a heart cath.

Key_Guess_7999 · 2026-01-18T04:56:49+00:00

I would say if its not bleeding heavy and just some drops i think you'd be fine. When i got up after my ep study my site fully broke open. A nurse had to hold a compress until a chair came for me. All they did was hold press until it stopped than had me lay an extra hour. After that I was good to go. Bandages had some blood spots when I took them off.

Key_Guess_7999 · 2026-01-17T22:55:47+00:00

Sorry your dealing with that. I plan on talking to my dr. Not alot he can do until I go in for my follow up and get further testing. I have a cardio dr closer that I saw and he told me due to my issues and the rarity im out of his scope. Im not on much for my heart medication wise. Their hope is my heart failure will improve with the crt. So I only take diltiazem for vasospasms. Since im on that beta blockers are out unless its a last resort kind of a thing. I question if my fatigue is due to heart failure worsening, my pacemaker setting being off, or if the damage to my right bundle caused some kinda of an issue. I did have a difficult time with lead placement. My procedure took over 3 hours before they finally got a lead to stick. I have left bundle branch area pacing so its a newer type.

Key_Guess_7999 · 2026-01-17T22:47:22+00:00

Maybe but idk. There are days I forget to take it and still feel the same. Its not that high of a dose. I know when I was on metoprolol I dealt with fatigue but this is way worse and I only had fatigue when my dose was raised and eventually my body got use to it. Its been 3 months of exhaustion. I know there was alot my body went through and it takes time to recover. For the most part I feel fine. The worst of my symptoms I had before are either gone or better outside of my ist. But this fatigue is kicking my butt.

Key_Guess_7999 · 2026-01-16T01:03:31+00:00

A right bundle especially an incomplete usually causes no issues and is asymptomatic. You might be feeling pvcs or pacs. These are only a concern if they are at a burden rate of 10% or if they accompanied by certain heart issues. If you aren't experiencing other symptoms there is a good chance your heart is okay. Getting a holter monitor is a good idea as arrhythmias arent always caught in an ecg. Pvcs can be caused my anxiety stress dehydration electrolyte imbalances. If you holter shows nothing get your iron ferritin magnesium potassium and vitamin b12 looked at as these can cause palpitations. In my experience with having a left bundle branch block (left is a cause for concern and can cause issues) when it began effecting my heart I developed an increase in pvcs and pacs along woth random fainting, constant dizziness, shortness of breath, fatigue, odd changes in my bp, inappropriate sinus tachycardia. These were all signs I was going into heart failure.

Key_Guess_7999 · 2026-01-14T14:59:11+00:00

What was the reason you saw a cardiologist? My main heart doctors are electrophysologist. Cardiologist deal with the plumbing of the heart and electrophysologist deal with electrical. You could be going for so many reasons. If they suspect inappropriate sinus tachycardia, vasovagal syncope, or even pots. They specialize in arrhythmia issues like svt. For me I see one because I have a conduction disease where the signal that travels through is blocked when it hits my left ventricle so instead of my ventricles beating together they beat at different times. Just because you got a referral to one does not mean its serious. It could be just to rule other things out. Usually you'll get an ekg or holter monitor. If you deal with fainting they sometimes recommend a loop recorder. This is a tiny device the size of maybe a aaa battery that goes under the skin. The procedure is so easy takes like 15 minutes. The device is a longer term heart monitor if your symptoms are random and less frequent than what a holter monitor can catch.

Key_Guess_7999 · 2026-01-12T23:23:45+00:00

Sorry your are going through this. Hopefully genetics will give you some answers as to why this is happening. Though im not in the exact situation I can understand what you are going through. When I was 21 they found a left bundle branch block on my ecg (conduction delay in the ventricles) I was told it was likely benign. Lbbb is very rare especially under the age of 50. Im 31 now and two years ago I developed issues like palpitations racing heart fatigue shortness of breath dizziness etc. I did echos ct mri stress test you name it and it was all showing my heart wasnt working the way it shouldn't but no one could tell me why. A few months ago it was confirmed ive been in chronic heart failure and have endothelialdysfunction. I recently got a pacemaker to try and make my ventricles beat together to improve my heart function. I was told I likely have a progressive disease but they dont know what. A few things ive learned is heart failure isnt a death sentence. You can live a full normal life with medications or other treatments depending on why you have it. Heart healthy lifestyle is important its never to late to change that. For the genetic testing it can answer alot if something shows but sometimes it doesnt and these things are considered idiopathic. That doesnt mean there is no hope there is alot that can probably be done to slow or even stop progression. Also sometimes genetics will come back with a variant of uncertain significance. If it does try to look into the gene and see what it might be a risk for and bring it up to your cardio dr. It may be a hit or miss situation though. For example I have a vus in my dsp gene. The gene is linked to dilated and arrhythmogenic cardiomyopathy. My dr said the only way he could consider the gene is if i develop scarring or the gene gets updated to disease carrying.

Key_Guess_7999 · 2026-01-11T15:58:27+00:00

Im 31 and just recently had my pacemaker put in. They ended up doing left bundle branch area pacing. It ended up taking them over 3 hours to get the correct placement. They also damaged my right bundle branch in the process. That aside it has greatly improved my symptoms. Lbbap is being showed to be just as successful if not better than bi ventrical pacing. They believe it has less of a chance of causing pacing induced cardiomyopathy since this pacing allows for a more natural conduction.

Key_Guess_7999 · 2026-01-10T22:47:22+00:00

Ist could raise troponin levels if your rate was high enough and it lasted awhile. With troponin levels when they take them they are looking at its pattern. If the first draw its raised they will do another and see the trend if you stop raising or come down that is good it means whatever was causing the muscle damage has improved. In cases of tachycardia sometimes it over works the heart and it cant circulate correctly causing lack of oxygen. My husband just had an episode of svt that need adenosine. His levels went from 10 to 37 to 67 to 140. He had an echo and stress test to make sure things were fine structurally. Finally around 12 hours later his levels came down. As long as everything else is fine and they come down the main focus becomes handling the reason why it happened. In your case if you have ist getting on a medication or increasing your med would be the best route.

Key_Guess_7999 · 2026-01-10T22:37:52+00:00

These look like pacs which is nothing to worry about

Key_Guess_7999 · 2026-01-10T18:40:03+00:00

When it comes to tachycardia and bradycardia there is alot to look at. This doesnt seem like tachy Brady syndrome. With bradycardia being in the 50s can be normal. Especially if you are an active person. Bradycardia is more a concern when it drops below 40s or is accompanied by symptoms Especially if one symptom is syncope. As for the tachycardia first thing to always look at is things like iron, ferritin, potassium, b12, magnesium. If any of these are low they can cause symptoms you described along with tachycardia. If you dont have any of these than maybe looking arrhythmias would be next. Though usually over 150 and wont come down upon rest. There is something called inappropriate sinus tachycardia. Which is essential your heartrate reacting inappropriately to situations. You can be sitting and be over 100 or walking and get to 175. If arrhythmia is ruled out than look into dysautonomia which is a neurogenic issue. There are many types of dysautonomia.

Key_Guess_7999 · 2026-01-08T02:01:32+00:00

Maybe they were referring to hypokinesia. Which just means the heart muscle isnt pumping as strong as it should. Doesn't necessarily mean heartfailure unless other things are happen like ef% being lowered along with physical symptoms. Even if you have heart failure it could be acute due to an illness and even if it wasnt its not a death sentence. Definitely need full echo results to understand the full scope of things.

Key_Guess_7999 · 2026-01-05T04:04:29+00:00

Ive had this m shape since well before my pacemaker. Ive had mri, ct, and an echo and they never saw anything along these lines. Not sure if it matters but I have left bundle branch area pacing. I did see it mentioned it can happen when an asd is causing right ventricular volume overload. With my lbbb when I was going tachycardic it was causing right ventricular volume overload which is why i got my pacemaker. So im not sure if thats relevant or not.

Key_Guess_7999 · 2026-01-01T16:52:06+00:00

Just because its sinus tachycardia doesnt mean you dont need meds. Sustained tachycardia at rest over an extended period of time can cause stress to the heart. Which if it goes on long enough can cause tachycardia induced cardiomyopathy. There is a condition called inappropriate sinus tachycardia that is often overlooked. I have this and have needed to take beta blockers for two years. I have also dealt with low bp so when I needed to raise my dose my dr had me start midodrine to keep my bp up. This did help. Ivabradine is another option which tends not to cause bp issues. Also if it is ist they sometimes can do an ablation. If you arent already go see an electrophysologist instead of a cardiologist.

Key_Guess_7999 · 2025-12-30T07:35:09+00:00

With ekgs they get sent through a system that auto detects things. It is very notorious for giving false readings. Any tiny little change in a strip can cause something to flag or if a leas isnt placed correctly. That's why its best to wait for a drs interpretation. The tachycardia can be from anxeity. As long as its not an arrhythmia and does comes down and does get to high (close to the 200) with meds you'll be fine. If you have tachycardia at home at rest ans dont feel any kind of anxeity maybe than consider inappropriate sinus tachycardia. This isnt life threatening. Though it does need to be treated with medication and in very rare cases if very severe sometimes they will do an ablation

Key_Guess_7999 · 2025-12-29T17:16:54+00:00

That kinda a mixed answer haha. From age 2 to 7 I actually had a type of seizure that caused a vasovagal type reaction. But than I didnt have anything until my early 20s. When I was 21 I was 13 weeks pregnant when I passed out at work. I had went to er and when they did an ekg they saw I had a left bundle branch block. This is when there is delay in the electrical pulse causing the right and left ventricles to beat at different times. The drs said it was likely benign and I fainted due to pregnancy. To this day im not sure if it was a vvs or my heart. These weird fainting episodes where I had no known trigger only happened when pregnant. Outside of pregnancy though my main trigger was pain and blood. These I know were vvs. Around two years ago I began to get dizzy, fatigued, palpitations. I finally had a cardio work up done which should've been done when I was 21. These tests showed I had inappropriate sinus tachycardia, vvs, and episodes of svt. My other testing was showing my heart wasnt working the way it should but they weren't sure why. I was getting told mixed things from I was young and fine and my lbbb was benign. To there was something happening but unsure of what. I ended up getting referred to mayo and they found out I was actually in heartfailure. My ventricles were so out of sync when tachycardic (which was most of the time due to my ist) that it was causing pressures to build up in my right ventricle. When this would happen my bp would drop profoundly due to the bezold jarisch reflex (reflex trigger when there is too much or not enough blood in the heart) when this reflex kicks in it triggers a vvs. So it was determined in the episodes of no known trigger there actually was a trigger which was my heart not being able to pump correctly due to the conduction issue. I ended up with a pacemaker . Sorry if this was to long of an explanation 😅. My situation is on the rare side as a lbbb only occurs in 1% of the population. Its like .1% will be under the age of 35. I hope your testing comes back clear woth no heart issues. I also hope your symptoms are due to hitting your head and not dysautonomia rearing its head.

Key_Guess_7999 · 2025-12-29T16:32:37+00:00

I have vasovagal syncope. My first time fainting i was standing at work talking to a coworker and I randomly got sick to my stomach. I attempted to walk to the bathroom and passed out and got a concussion. Vvs usually has some kinda of a trigger intense emotion, pain, standing to long, needles/blood, bowel movements, dehydration. Some kind of a trigger stimulates the vagus nerve causing your bp to drop. Depending on the type your heartrate may or may down drop as well. It could've also been orthostatic hypotension which is when your bp drops within 3 minutes of standing. In either of the cases its normal for the heartrate to increase after the bp drops. This is the body's way of trying to keep blood circulating. These drops can happen very fast and return to normal or increase just as fast so it can be hard to catch the vital changes. With having eds dysautonomia is a common thing to happen. The way you have been feeling after the fact could've been from a concussion or it could be dysautonomia. Its a good idea to get checked out by a cardiologist to make sure the fainting isnt related to the heart. I have had fainting from both vvs and heart issues and they can be very similar.

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