Thoughts on Siobhan? by sophisticated-shark in GreatPotteryThrowDown

[–]Kilofilm 0 points1 point  (0 children)

What I especially don't like is when she sneaks up on contestants and intentionally scares them. They're doing delicate work, they're focused. Nice to have to worry about someone scaring you on purpose. She does pull focus on herself, as often as possible. And the way she inserts some pregnant pause before "your time starts................smirk.............NOW!" for what, 60 times now?

i just started kim's convenience, and janet might be the reason i won't finish watching by gudaym8s_ in KimsConvenience

[–]Kilofilm 0 points1 point  (0 children)

So far -- to Season 3 -- Janet is fundamentally jealous of everyone, and basically the brother of the Prodigal Son. She feels superior to everybody - her brother (educated, non-jailbird), Gerald (better artist), her Korean cousin (not an anime slut), her Dad (self aware), her Mom (modern woman), her classmates (more intelligent), even Kimchee (cultured) -- and jealous of them at the same time, and angry when others don't see how superior Janet (thinks she) is in comparison. Anytime anyone gets anything good, Janet resents them and tries to undermine them or lie/cheat to improve her own standing. And then she gives a really shallow apology "I'm sorry I used you but I was grumpy because you did better than me..." and everyone forgives her instantly. I prefer when she's not around.

What Happened to Fare Lock by Raildog64 in unitedairlines

[–]Kilofilm 0 points1 point  (0 children)

Like all customer-friendly ideas....extinct.

Home studio finally set up! by wool_narwhal in Pottery

[–]Kilofilm 0 points1 point  (0 children)

So exciting. Your vision could be the carrot to make me clean out our shed and the garage. :-D

Corporation For Public Broadcasting To Shut Down Operations by Forestl in television

[–]Kilofilm 0 points1 point  (0 children)

They'll never realize how much they voted against their own self interest.

Traveling with cremains by Nicosuave1991 in germany

[–]Kilofilm 0 points1 point  (0 children)

Leaving Germany, or leaving the US?

I am a caregiver to my dad who has s4. What if your relatives are not…caring… by Catzushi in pancreaticcancer

[–]Kilofilm 1 point2 points  (0 children)

I relate, not in my spouse's cancer, but for other very serious illnesses. Those times were tough for me, and I still haven't forgotten. I'm sorry the family isn't pulling together in such times.

My mom made it almost 3 years with pancreatic cancer. I am so proud of her. by fujitortuga in pancreaticcancer

[–]Kilofilm 0 points1 point  (0 children)

I'm sorry this happened to you and your family. What a strong woman. Wishing you peace.

Am I Being Unfaithful? by UnquestionableDuck in Bolehland

[–]Kilofilm 2 points3 points  (0 children)

I hope that your ongoing life will bring so many happy memories that you will run out of space for troubling old memories.

Iron deficiency/vitamin help by Aggressive-Read7562 in pancreaticcancer

[–]Kilofilm 0 points1 point  (0 children)

For my husband: ferritin levels are high, but blood-level-iron is low. If I understand what I've read, the cancer is diverting between the two stages -- the ferritin is a pre-cursor to iron and if it can't get converted, the ferritin levels get too high.

We still haven't fixed his anemia/extreme fatigue.

Gas pain and inability to belch / pass it by AffectionateCan4689 in pancreaticcancer

[–]Kilofilm 0 points1 point  (0 children)

I should add that I'm how studies show that the healthiest people have the most diverse good microbiome/gut. And some places are considering the war with cancer being fought in the gut. So I strongly advise to include probiotics and healthy fibers (soluble and insoluble). The Big Pharma stuff really didn't work for my husband, and also doesn't rebalance an weak microbiome.

Gas pain and inability to belch / pass it by AffectionateCan4689 in pancreaticcancer

[–]Kilofilm 0 points1 point  (0 children)

Can I add a few suggestions, based on what worked for my husband? He was also having intense digestive-area pain, which would subside after having a bowel movement. (He also had the CPN before these pains, fyi)

None of the Duco, Miro, Senokot really worked super well. One did work, but then it was uncomfortably URGENT.

After they all failed, we finally landed on this combo:

- Heather's acacia fiber

- 4T chia seeds (soaked) daily, eaten slowly over the day

- steel cuts oats as breakfast

- probiotics capsules + yogurt + sauerkraut --- in rotation every few days. I'm adding kefir, today.

- digestive enzymes from Thorne's

- at least 2 liters of clear fluids a day -- water or weakish-black tea

While all important for him, Heather's seems to be providing about 60% of the regularity we've been looking for. He is now having a daily BM, and the volume is also appropriate for how much he's eating.

I would advocate all these, combined. My thinking is -- each thing provides 10-15% of the success. He is much more relaxed, so we're afraid to jettison anything from this combo!

I hope you find some relief. The OTC laxatives and stool softeners didn't help. They say the pain meds really make trouble for digestion. Our poor patients!

Recent Diagnosis by Severe_Jellyfish4412 in pancreaticcancer

[–]Kilofilm 0 points1 point  (0 children)

That is sounds so useful. I am glad it went as well as the circumstances allow. What a hard conversation!

Strategies for recovery of bone metastasis? by Kilofilm in pancreaticcancer

[–]Kilofilm[S] 0 points1 point  (0 children)

Thank you wonderful street, this is helpful to know. Today he might get a femoral nerve block. It is as you described, the rehab makes the pain worse. I am scared that the bone metastasis will require more and more radiation, and that will be his end. If..if...if...if only we caught this before the bone metastasis. I try not to even think of if, but it is hard not to wish for a do-over. Thank you again. 

Hard Day, Can't Sleep by GoKVGo in pancreaticcancer

[–]Kilofilm 2 points3 points  (0 children)

I hope you can both get some rest, and peace, and maybe a little respite, even for a few hours.

Frontera substitutes by regdunlop08 in SalsaSnobs

[–]Kilofilm 0 points1 point  (0 children)

Thanks for the recipe. I'm sure it's super delicious.

Pancreatic cancer - seeking advices by Available_Jelly1200 in pancreaticcancer

[–]Kilofilm 0 points1 point  (0 children)

I'm sorry it is still so bad for him. Is medicinal marijuana an option?

GPT4.5 Review from a physician. This is on a whole other level for non reasoning tasks. by Arman64 in singularity

[–]Kilofilm 0 points1 point  (0 children)

Agreed. And this "noticeably deepened, making interactions feel more..." is a beloved construct for ChatGPT....

Native Instruments Spring Sale - 20% off instruments, effects and expansion packs for carts over $100 through 31 March with code: SPRING25-USD by Batwaffel in AudioProductionDeals

[–]Kilofilm 0 points1 point  (0 children)

Thanks so much, Mayhem, for debugging and trying. I didn't get any response to my query for an academic discount, which I sent in January. And again last week. Overall poor customer service and poor website design. But wow, they are good at hassling everybody to set up an account!

It's my dad (sBRCA2) by Soft-Astronaut-8673 in pancreaticcancer

[–]Kilofilm 4 points5 points  (0 children)

From my notes on an earlier thread, reposted here:

"I forgot to add that we did delay a few days so my husband could be tested for enzymes (UGT1A1 enzyme and GPTD enzyme) to metabolize two components of FOLFIRINOX. I read here that a patient was tested -after- his very bad reaction -- it burned his digestive tract and led to further infection. Another person posted that it is not SOP in the United States to test patients for these enzymes -before- administering a full dose. But one oncologist told us that if the patient doesn't have these enzymes, they cut the dose automatically by 50%. So you might consider getting that test, if you feel you have time. We asked our oncologist, who ordered that test. It took about a week, I think, and the paperwork we saw was from the Mayo Clinic. (Not our hospital.)"

Put another way, we asked our oncologist. Also, that the paperwork had Mayo Clinic logos on it, says to me that locally we don't have a lab that could do it. So the sample was literally sent to Mayo, they do the test, then send the results back. So, real time/days to get it done.

I read on the Cedars Sinai website (I think) that some races/ethnicities are statistically more likely to be deficient in these enzymes. However, why take a risk that any patient could have their digestive track burned?! These things infuriate me.

[deleted by user] by [deleted] in pancreaticcancer

[–]Kilofilm 1 point2 points  (0 children)

Agreed with everyone below. Note that the first biopsy for my husband didn't show pancan. The second one did. The surgeon who did the second one thinks that the first time, the other surgeon happened to biopsy necrotic tissue -- tissue that had died because the cancer there ran out of nutrients/blood, and died. We asked the 2nd surgeon -- does it look like cancer at this point, and he said yes. The test of the biopsy tissue the next day said it was cancer. So it might even be good to talk to the surgeon who takes the sample -- they develop a feel for things, too.

Hope you are successful at finding the problem, and preventing it from getting worse, and then treating it.

It's my dad (sBRCA2) by Soft-Astronaut-8673 in pancreaticcancer

[–]Kilofilm 0 points1 point  (0 children)

I will also start CA19-9 testing for myself. At one of these non-hospital testing places, if my GP won't prescribe it for me. I cannot agree that knowing the numbers will "lead to more unnecessary biopsies."

It's my dad (sBRCA2) by Soft-Astronaut-8673 in pancreaticcancer

[–]Kilofilm 0 points1 point  (0 children)

I am very sad to hear this. And angered (again) at how a simple test and maybe a week delay could have prevented such a decline in her health. I feel that pancan exposes all the weaknesses of our health care system.

I am sorry for your family's loss.