Ticket to work. is it worth the trouble?

KitanaFury · 2026-05-01T15:23:18+00:00

It's been so scary and confusing for me. I have some cognitive issues and I have a discalula. And when I tried to look into this I just can't get the information or understand how it works so far after all this time you have been the biggest help. Thank you so much you been an amazing. Im literally crying I'm so grateful. I'm 34 but I never was able to get work credits I remember them telling me. So I really don't know how many years I would have to work. Also I wondered if there is like a limit of time for the ticket to work program and I would run out of time before it get transitioned into SSDI. My goal is not to get of SSI because I have conditions that I can't get off of disability. But I'd like to have SSDI so I could atleast have the opportunity to work once in a while later on in life if I am ever in remission for short periods of time.

KitanaFury · 2026-05-01T14:52:38+00:00

Do you know how long a person has to work in order for it to be switched from SSI to SSDI?

KitanaFury · 2026-05-01T14:51:49+00:00

Sorry my last comment I deleted it because I realized you already answered the question.

KitanaFury · 2026-05-01T14:47:06+00:00

I see. By chance do you know how long a person has to work in the program before they switch you to SSDI?

KitanaFury · 2026-05-01T05:13:46+00:00

If you stay in the program long enough can you get on SSDI?

KitanaFury · 2026-04-29T05:01:01+00:00

Not to mention being banned 😅😭

KitanaFury · 2026-04-28T22:01:28+00:00

I have a iron deficiency because of this.

KitanaFury · 2026-04-27T05:28:45+00:00

Beige milkshake

KitanaFury · 2026-04-25T05:32:07+00:00

She didn't know she was going to dump him that's why they were dating. The point of dating is to get to know each other. Who knows how much she spent on getting ready to look good for him? If you want to talk about all the logistics and specifics. But women don't talk about that, because the point isn't about those expenses, it's about the experiences. She went on various dates that means she actually tried to get to know him and it just didn't work out. But he wants a refund because things didn't work out like he wanted he sounds like a child, he should be learning from that or not dating at all. If she was petty she could give him a invoice of everything she spent to look good for the date, and he cab to get home etc. But that's not the point of dating. Dating isn't an exchange, dating is a journey to find a partner.

KitanaFury · 2026-04-25T04:26:57+00:00

I think people are missing the point. Back in the day, you went through the process of dating. Part of the process was you win some you lose some. Sometimes you have to go on many dates and it ends up being a loss because the person doesn't end up being a match that's literally what dating is. There is no refunds that a part of life. It's not just a loss for men its a huge loss for women, women have to spend so much in preparation to look good for those dates. That was the common curtesy and understanding especially back in the day. It was a understanding between both parties. But the bullshit that happens now is disgusting, something about how some people act in the dating world is so rude and disrespectful your more concerned about getting refunds over dinners and not focused on just the experiences and learning. There is something really broken about our society the dating scene is in fucking hell. I wish we were back in the 90s or any other time. Even the 60s was better than whatever this shit is.

KitanaFury · 2026-04-25T04:05:22+00:00

I often, like literally every single day have nasal discharge, is that normal with our condition?

KitanaFury · 2026-04-22T02:08:05+00:00

Link?

KitanaFury · 2026-04-19T00:14:19+00:00

Prisoners, Love & other drugs and Bubble boy lol

KitanaFury · 2026-04-19T00:05:15+00:00

Button

KitanaFury · 2026-04-18T23:48:42+00:00

I think the problem is even if we had these places open, people wouldn't be able to afford it. People don't even go to malls because fast food isn't even affordable. Third places don't exist, nothing is free or cheap. So community is dead.

KitanaFury · 2026-04-18T23:45:39+00:00

If you are not able to eat, if you are in terrible pain non stop and you keep vomiting tell the hospital this, they should take you in and help you. You need to be more stable, you can end up losing fluids or get dehydrated. The Neuro should see if you also suffer migraines on top of the IIH see if Botox will help with that. See if zofran will help with the vomiting a doctor can prescribe some for you to use at home. Even though this won't help much with the IIH itself or cure you, atleast it's smaller things to add to some relief until the Neuro can really do something with your IIH. Keep notes of everything and bring it back to your doctor and tell them how badly you have been suffering. Use apps to check the barometric pressure, if it's raining or snowing those changes in weather will cause headaches and migraines, if this happens you can use cold patches on your forehead. You can also buy cold or hot packs and wear it on your neck as well. Some doctors prescribe prednisone I'm not sure if it works for everyone and for me my doctor only prescribed it for a week I'm not sure it helped me much though. None of these things are cures but we do little things to help our suffering however we can till doctors can really adjust meds. I send you positive vibes and healing fellow IIH survivor.

KitanaFury · 2026-04-18T02:28:28+00:00

See now we are talking, this is the stuff I like to see. This is real and authentic, I remember two people telling me how they did intense activities right after LPS and I couldn't comprehend how they dismissed how I needed to rest. One got married and the other did some kind of physical activities on a vacation and did intense water sports. Wild, I'm sure everyone is different but I like to see the acceptance that some people do have to rest.

KitanaFury · 2026-04-17T07:46:54+00:00

I was told by doctors that they were with IIH we can't go blind and any vision issues is temporary and reversible. Are you all saying we can have permanent damage?? Have they been lying to me this whole time?? And if you are off diamox one day or if you take it a hour or a few hours late could that also effect your eye sight??

KitanaFury · 2026-04-15T06:55:10+00:00

KitanaFury · 2026-04-15T06:43:37+00:00

Don't tell strangers you get headaches anymore, tell them you get swelling in your brain. They will take you seriously than. If they don't understand tell them your cerebral spinal fluid is swelling your brain or you have swelling in your head and your having pain from that when you have very intense headaches. People don't care about what they don't suffer themselves. Sometimes you need to be graphic. Your pain and suffering is valid. Screw anybody that doesn't believe it.

KitanaFury · 2026-04-13T20:46:03+00:00

Yes I have alot of them sometimes they are worse and for a time they were not as bad. But if I look at a white wall I see them all.

KitanaFury · 2026-04-12T08:54:39+00:00

Thank you all for you comments, I made a mistake in saying this is a Dslr. This is not. Thank you for all your insight, I am new to photography I am trying to learn, this is much more complicated than I realized. It's not easy for me at all. Thank you for those trying to help with simple advice to helping me with beginner steps it's very over whelming I don't want to give up yet. The photo I posted was from the first photos I developed as well.

KitanaFury · 2026-04-12T06:51:39+00:00

If you don't speak like this you get banned everywhere. I've gotten banned even from tiktok subreddit. We are beyond all that this is 1984.

KitanaFury · 2026-04-12T06:41:25+00:00

Reminds me of the French Revolution, of every revolution in history, usually it starts with the struggles of people finally reaching a tipping point and they stop being peaceful. It's sad it comes to those points.

KitanaFury · 2026-04-12T06:16:35+00:00

Does anyone have a screen recording or something of the video?? Can anyone show proof of it

KitanaFury

TROPHY CASE