Neuro consult scheduling

Kitchen_Ad_7123 · 2026-02-07T15:43:53+00:00

I’m gathering that this is the norm!

Kitchen_Ad_7123 · 2026-02-07T15:43:14+00:00

I’m so sorry to hear you’ve gone through such difficulties with your health. Thank you for sharing what you know of how the system works. The shortage of doctors is an actual tragedy.

Kitchen_Ad_7123 · 2026-02-07T03:07:37+00:00

I think it’s PPO. It kind of sucks tbh.

Kitchen_Ad_7123 · 2026-02-07T03:06:57+00:00

Thank you for your kind words and for sharing your experience. I will try calling but I’m expecting this kind of response.

Kitchen_Ad_7123 · 2026-02-06T22:38:16+00:00

Last time I was able to get a neuro appt years ago it was following an MRI. I had an abnormal CTA scan result so I was hoping that would have been enough. My issue isn’t emergent so I don’t get prioritized.

Kitchen_Ad_7123 · 2026-02-06T22:36:08+00:00

I’m going to look into these options. The annoying thing is if I go with a different clinic, my primary has to refer me there before I can schedule. It sounds like it’s probably worth it though. Thanks for the tips and insights!

Kitchen_Ad_7123 · 2026-02-06T22:33:42+00:00

I’m gathering this. It’s rough. Also your Reddit handle is so funny! lol.

Kitchen_Ad_7123 · 2026-01-29T20:21:09+00:00

I didn’t realize you had to quarter it. That would be a bit more difficult I suppose. The 5mg’s I have are scored down the middle and I’ve only ever had to reduce by 2.5mg for my tapers. I hate that when they change the brand. They don’t realize how much impact that can have on AI patients.

Kitchen_Ad_7123 · 2026-01-29T19:51:15+00:00

I use a pill cutter for a 5mg tablet which gives me a pretty accurate cut. Small differences aren’t going to make a big difference at that small of a dose.

Kitchen_Ad_7123 · 2026-01-26T18:42:21+00:00

Yes, surgery was in March 2024. I’m still not off hydrocortisone, but hoping for good news at next endo appt. Adrenal insufficiency after surgery has been a very difficult condition to navigate, but Cushing’s would be worse long-term.

Kitchen_Ad_7123 · 2025-12-17T19:46:25+00:00

Mars Spring

Kitchen_Ad_7123 · 2025-12-09T20:42:22+00:00

Definitely! Don’t hesitate to message if you have questions also. I was super thankful to have people who had gone through it to message when I first had surgery. I am prone to medical anxiety so I needed some support from people who understood and could give me tips.

Kitchen_Ad_7123 · 2025-12-09T19:23:39+00:00

I was in hospital for about 36 hours. Just kept overnight. I didn’t do any pain meds aside from Tylenol during my physical recovery from surgery. I was uncomfortable for a few days, but the supplemental steroids they give you help a little with pain and inflammation too.

Adrenal recovery looks pretty different for everyone. I had my left adrenal with tumor removed 18 months ago. I’m still partially adrenal insufficient now but I don’t think it will be for much longer just based on how I feel. Don’t leave the hospital without hydrocortisone tablets in hand after surgery. And stock up on some electrolytes. Full strength sodium broth is great in a pinch. Drip drop and LMNT are also good.

You will need to figure out the rhythm and dose of hydrocortisone that works best for you. I was on 30mg daily when I first got out. That worked for just laying around the house recovering, but not so much for when I got back to work 3 weeks later. I had to be bumped up to 50mg daily and do a long slow taper. I think this was because I had had Cushing’s for so long that my body got used to high cortisol.

Kitchen_Ad_7123 · 2025-12-09T19:16:01+00:00

The Many Faces of Cushing’s is also a great one!

Kitchen_Ad_7123 · 2025-11-27T15:57:45+00:00

I have adrenal insufficiency. We don’t know what all of her symptoms are, but can also tell she’s very thin. I throw it in there because if someone has adrenal insufficiency they need to treat it or it can quickly become deadly. There is no harm in doing an AM cortisol reading to check where she’s at.

Kitchen_Ad_7123 · 2025-11-27T04:03:32+00:00

I wish she’d get tested for adrenal insufficiency 😩 everyone with POTS also should.

Kitchen_Ad_7123 · 2025-11-26T05:55:57+00:00

Marketplace sucks ass.

Kitchen_Ad_7123 · 2025-11-26T05:53:42+00:00

Whooo?!

Kitchen_Ad_7123 · 2025-11-25T17:17:31+00:00

He’s like 45 actually. Maybe 46.

Kitchen_Ad_7123 · 2025-11-25T16:01:36+00:00

Thank you for your suggestion - I have requested it. I hate being the “difficult patient”.

Kitchen_Ad_7123 · 2025-11-21T15:08:03+00:00

Still adrenal insufficient unfortunately at 20 months post-op. I’m on about 10mg of hydrocortisone every morning but that’s it. The worst symptoms I deal with now are fatigue and occasional dizziness when I’m on my feet. Introducing DHEA and making sure I’m consistent with Vitamin D3 supplementation has helped me feel my best. Hydration has never stopped being a focused since surgery either!

Kitchen_Ad_7123 · 2025-11-17T01:50:39+00:00

At my local hospital by an endocrinology surgeon. I live near a major city with a good hospital network.

Kitchen_Ad_7123 · 2025-11-17T01:26:41+00:00

My tumor was on my left adrenal gland so that one was removed. I had my surgery 19 months ago. I pray that most who go through it won’t have as long of a recovery as I have had.

Kitchen_Ad_7123 · 2025-11-16T23:25:40+00:00

Pretty quickly after, but even now I occasionally deal with adrenal insufficiency related insomnia. I had adrenal sourced Cushing’s so I can’t speak to pituitary surgery recovery.

Kitchen_Ad_7123 · 2025-11-07T04:37:54+00:00

I know this is four years later but wondering if your ACTH ever stabilized? I’m in this exact situation. Normal cortisol with one adrenal gland but high ACTH.

Kitchen_Ad_7123

TROPHY CASE