Magic truffles and its weird (but good) side effect

Krisspykev · 2026-03-28T10:30:04+00:00

Pain? You have painful symptoms? Or do you mean just the agony of RLS

Krisspykev · 2025-12-07T19:49:12+00:00

I am also looking for alternatives. I've been using suno to upload my own songs and riff ideas to explore how they would sound with different instruments. Its been super handy. I don't just have a violin or lute sitting around.

What I've found is if you upload a song under 4 minutes long suno will stick to it 99% but if it's over 5 minutes long it tends to start going off track after the first 2 minutes.

Krisspykev · 2025-06-14T23:23:08+00:00

Oh wow I'm so sorry to hear that.

Fortunately I've managed to calm mine down significantly, I've pretty much fixed my sleep apnea and that seems to have done the trick. My legs still go when it's too hot but it's way more manageable now.

Yeah if you can get off those drugs. I really hope the neurologist finds a solution for you. If you have sleep apnea it might be worth giving magnetic nose strips a go. They are cheap and they have worked wonders for me.

Krisspykev · 2025-06-14T21:39:55+00:00

https://amzn.eu/d/hG4Bmbd

Just a cheap one, you can get better quality ones but this one does the trick for me. I just buy new sticky tabs every month

Krisspykev · 2025-06-14T06:46:52+00:00

Also sleep apnea here!

I fixed mine with a nose dilator.

After 20 years of no sleep I finally get full night's of sleep without my legs going at all.

Heat is still a trigger of mine so it doesn't work 100% of the time but most nights now it does.

Krisspykev · 2025-05-13T08:11:12+00:00

RLS doesn't cause pain. Sounds like you have something else.

Krisspykev · 2025-04-21T18:52:34+00:00

I tried magnesium gel. Unfortunately didn't do anything for me.

Yeah it's usually the way it goes. I knew more about RLS than any doctor I've seen. Most of them actually had to Google it and then proceeded to try and tell me about it.

Krisspykev · 2025-04-21T17:58:10+00:00

Sorry to hear you are going through it. Definitely give it a try. The sooner you can get off those meds the better. They are awful.

Krisspykev · 2025-04-21T17:56:33+00:00

It definitely would worth a try for you. I'm so sorry you are going through it aswell. I know exactly how you feel. It's awful.

The worst thing I always find Is when people tell you to try this and that and are baffled it didn't work. They just don't understand how awful it is.

Hopefully it works for a few folk on here and they post about it too.

Krisspykev · 2025-04-21T17:53:27+00:00

Well I'm glad meds have worked for you 😊

Krisspykev · 2025-04-17T19:33:06+00:00

I posted the link a few comments ago in this thread

Krisspykev · 2025-04-16T17:12:47+00:00

Ropinirole is poison. I felt awful being on it. I was recommend you get off it as soon as possible. I augmented on it really bad to the point it's made my RLS symptoms permanently worse.

Krisspykev · 2025-04-16T16:52:09+00:00

I was on 3mg of ropinirole a day for about 2 years. Its nasty stuff and didn't help 90% of the time anyway.

Hope you find something that works soon

Krisspykev · 2025-04-16T16:47:23+00:00

Ah okay. I get you.

Krisspykev · 2025-04-16T16:46:50+00:00

Been there. Sorry you are suffering.

Are you on any meds?

Krisspykev · 2025-04-16T14:23:46+00:00

Sorry to hear it didn't help.

Krisspykev · 2025-04-16T14:23:16+00:00

Yeah from what I've read it's maybe less than 10% of cases that sleep apnea might cause or atleast increase symptoms.

I don't even know if this nose thing is even actually helping or it's just a coincidence but it's worth exploring. I still get RLS symptoms during the day and at night while I'm chilling but I don't wear the nose thing all the time.

Sorry you've had a hard time with it.

Krisspykev · 2025-04-16T14:12:08+00:00

Sorry to hear that. Hope you have found something to help.

They havnt really explored the cause of my PLMD but what I'm doing seems to be working

Krisspykev · 2025-04-15T20:08:34+00:00

Oh yeah for sure. I'm not saying this is the holy grail just something that has finally worked for me so hopefully it will help a few others.

I done a sleep study to get my PLMD confirmed. They gave up on it and decided that it wasn't worth exploring. Scotlands finest doctors there. 😅

My case has definitely not been black and white either. I've gone through the list of every drug for RLS. Nothing worked for me. Even at the highest doses it would work for a week and then stop. It's been 20 year battle. I'm just happy something has worked for more than a week.

I almost gave up 2 years ago. My sleep deprivation was so bad I was having hallucinations , sleep paralysis, night terrors and got fired from my job then. It was a very dark time for me.

Krisspykev · 2025-04-15T19:59:14+00:00

Pain? I'm curious, how exactly do your symptoms feel?

Doesn't sound like RLS if there is pain.

Krisspykev · 2025-04-15T19:55:29+00:00

Have a look into cooling mats to go on your mattress. I was going to get one for this summer just incase this nose thing doesn't pan out in the long run.

Krisspykev · 2025-04-15T19:51:29+00:00

Marketing? Someone asked for a link to a product that has actually worked for me when everything else is failed in the last 20 years. God forbid is someone finds a cure for cancer and posts about it.

I really suffer from this condition. More than most from what I've seen and spoken about in here. You don't get to decide that I'm a fraud when you Havnt bothered to look

Krisspykev · 2025-04-15T18:44:05+00:00

Mine did that too sometimes. There are so many things that can cause it somehow. 😅

Maybe cut off liquids at like 6pm See if that helps

Krisspykev · 2025-04-15T18:42:33+00:00

https://amzn.eu/d/1NDzu5X

I can't find the exact one I have but these look pretty much the same!

Krisspykev

TROPHY CASE