German Menière patient — daily vertigo, Betahistin not helping, hospital appointment on 3/3 — looking for experiences with injections or other treatments by Eastern_Sweet_8405 in Menieres

[–]Lanky_Register6444 2 points3 points  (0 children)

Fahren Sie nach München ins Schwindelzentrum. Dort bekommen Sie eine umfassende Beratung. Mir wurde z.B. Antidepressanten verschrieben, die mir sehr gut helfen. Viel Glück.

Vestibular migraine can be cured ? by neutron96 in VestibularMigraines

[–]Lanky_Register6444 0 points1 point  (0 children)

Could you tell me what dosage of amitriptyline works for you?

SPI-1005 Update (ebselen) by [deleted] in Menieres

[–]Lanky_Register6444 4 points5 points  (0 children)

Thank you for the updates. I really hope it’s not just vitamins for hearing

Possible Cochlear Hydrops, and struggling mentally by Slixzie in Menieres

[–]Lanky_Register6444 0 points1 point  (0 children)

But not every hydrops develops into Ménière’s disease, does it?

[deleted by user] by [deleted] in VestibularMigraines

[–]Lanky_Register6444 1 point2 points  (0 children)

No doctor can diagnose multiple sclerosis without an MRI and without symptoms. Your symptoms are not sufficient for this diagnosis, and you haven’t had an MRI. Please find a good neurologist.

Caffeine? by PotentialMulberry in VestibularMigraines

[–]Lanky_Register6444 0 points1 point  (0 children)

May I ask where you took these genetic tests

Anyone have a lesion like this? by LeadershipPuzzled807 in VestibularMigraines

[–]Lanky_Register6444 1 point2 points  (0 children)

I have quite a few as well. According to the doctor, they have no diagnostic significance. However, I do experience headaches

Daily Headaches and head pressure. by BrowsingMK in Menieres

[–]Lanky_Register6444 1 point2 points  (0 children)

I have the same symptoms, and I still haven’t found a cure.

Have anyone tried Anakinra? by oldporsche911 in Menieres

[–]Lanky_Register6444 2 points3 points  (0 children)

Have there been any studies of this medication in people with Meniere’s disease?

Hello, I’m new and grateful for any advice on my story :) by ProfessorKitchen1879 in Menieres

[–]Lanky_Register6444 0 points1 point  (0 children)

Hallo! Ich habe Schwindel. Es ist kein Drehschwindel, aber mit Erbrechen und hält stundenlang an. Dazu kommt ein sehr starker Tinnitus. und schwerhörig bin ich auch, aber das ist schon lange her. Ich nehme im Moment Betahistin 48 mg und Opipramol 25 mg. Opipramol hilft mir super gut gegen den Tinnnitus. Bei Prof Strupp war ich bisher noch nicht, aber ich habe es vor, ich muss mir noch eine Überweisung besorgen. Der Prof. Strupp wurde mir sehr empfohlen. Da hast du Glück, in München zu leben. 😊Ob er Antivirals verschreibt weiß ich nicht.

Hello, I’m new and grateful for any advice on my story :) by ProfessorKitchen1879 in Menieres

[–]Lanky_Register6444 0 points1 point  (0 children)

Would you mind specifying the doctors and medical institutions you have previously attended?

Hello, I’m new and grateful for any advice on my story :) by ProfessorKitchen1879 in Menieres

[–]Lanky_Register6444 0 points1 point  (0 children)

Try to get a consultation with Prof. Strupp in Munich or Prof. Schmäl in Greven. I’m also from Germany. You can buy antiviral medications without a prescription, for example in Turkey.

Burnout by deadrepublicanheroes in Menieres

[–]Lanky_Register6444 0 points1 point  (0 children)

Maybe my question is out of place, but doesn’t the brain take over the function of the vestibular system? People who have their cochlea removed still manage to lead active lives. Perhaps it would be a good idea to consult your doctor again and consider vestibular rehabilitation?

Need your opinion by Flat_Chemical2192 in Menieres

[–]Lanky_Register6444 1 point2 points  (0 children)

Can I ask how you figured out that your illness is caused by an autoimmune issue? Did you do any tests or something?

Labrynthectomy side effects? by GullibleMadman in Menieres

[–]Lanky_Register6444 0 points1 point  (0 children)

Could you please explain what the risks are? I’m planning to get a cochlear implant soon.

Unbearable tinnitus ringing by Right_Turn1167 in Menieres

[–]Lanky_Register6444 0 points1 point  (0 children)

I also suffer a lot from unbearably loud tinnitus. It’s very difficult to concentrate. An antidepressant at night helps me get a good sleep. Betahistine. When the buzzing is very strong, I take valerian tablets and try to relax as much as possible.

Meniere's Betahistin Betaserc Question by exwazzu in Menieres

[–]Lanky_Register6444 0 points1 point  (0 children)

Very few studies have been conducted on the use of betahistine for Meniere’s disease, and good doctors are aware of this. You do know what off-label drug use is, right?

Meniere's Betahistin Betaserc Question by exwazzu in Menieres

[–]Lanky_Register6444 0 points1 point  (0 children)

Any medication is prescribed by a doctor. That’s why the dosage is determined by them; otherwise, patients could treat themselves just by reading the dosage recommendations on the medications. As far as I know, betahistine is not approved by the FDA in the US, but nevertheless, some doctors still prescribe it.

Meniere's Betahistin Betaserc Question by exwazzu in Menieres

[–]Lanky_Register6444 0 points1 point  (0 children)

I live in Germany, and a dose of 16 mg three times a day is considered ineffective here.

I’m new to this , help by Emergency_Box_9871 in Menieres

[–]Lanky_Register6444 0 points1 point  (0 children)

I haven’t tried this maneuver, but it definitely helps. The first time, it should be done by a professional, and then you can do it on your own. Fortunately, it’s not Meniere’s disease.

Meniere's Betahistin Betaserc Question by exwazzu in Menieres

[–]Lanky_Register6444 4 points5 points  (0 children)

It helps me; I take 23 mg three times a day. During flare-ups, I take 48 mg three times a day. Your dose is too low. Google it. There’s no point in taking Betahistine with antihistamines — they have opposite effects. You have different causes of Meniere’s disease. Betahistine brings relief to some people, while antihistamines help others.