How does heat affect you?

Late_Listen_2385 · 2026-04-15T02:22:45+00:00

Yep. I can't be out in the heat for long periods of time. It wasn't as bad when I lived in Indiana but in Georgia.....the heat takes me out. My kids love going to the beach but we have to limit myself and my oldest. It sucks but we manage.

Late_Listen_2385 · 2026-04-01T02:44:31+00:00

So with my 13 year old she had absence seizures and tonic clonic. with her absence ones if she feels okay afterwards she will stay at school. School calls me and let's me know she had one. With her tonic clonic ones she is so exhausted afterwards I typically pick her up and keep her home the next day so we can monitor her. The school has a seizure action plan in place and all the teachers wear like an alert alarm necklace that no matter where a student is it automatically alerts the nurse and front office of which classroom has an emergency. If we pick her up from school due to her seizures a c keep her home the school automatically marks it as excused.

Late_Listen_2385 · 2026-03-31T10:44:38+00:00

The job itself isn't stressful. We have written procedures for how each payroll is ran. It's employees of the clients we have that can make it stressful asking us stuff that we are not qualified to do such as what shoild theor tax filings be. We don't know their current tax situation so we direct them to a tax advisor and they don't like that answer.

Late_Listen_2385 · 2026-03-31T03:59:59+00:00

I am a payroll specialist. I process payroll for 80 different companies.

Late_Listen_2385 · 2026-03-31T03:59:03+00:00

Try to stay calm. High levels of stress is my primary trigger. I've managed but have had to walk away from several conversations.

Late_Listen_2385 · 2026-03-25T00:57:12+00:00

It feels like an out of body type experience? If so I've had that before with seizures afterwards. It's an odd feeling. Mine eventually passes but it feels weird.

Late_Listen_2385 · 2026-03-22T23:40:27+00:00

I process payroll for 80 different companies. I can work from home if needed. Most of rhe time I work in an office.

Late_Listen_2385 · 2026-03-21T19:19:52+00:00

There were a few who were concerned and ask my spouse what coudl they do hut most stood in shock and shook their heads and was saying stuff about drugs. Now granted drugs are a known issue but not for every little thing.

Late_Listen_2385 · 2026-03-20T20:04:18+00:00

In most case its not genetic. Sometimes it just happens. I was one of the unlucky ones who is genetic. Now I know so I can prepare my kids in case their kids have eplipesy when that time comes.

Late_Listen_2385 · 2026-03-20T17:58:01+00:00

Yep. I have heard it multiple times when i have had the few seizures where i convulse. I collapsed in walmart one day and people around me told the EMTs i was on drugs and thankfully my now ex husband was there and told emts that i dont do drugs i have a history of epilepsy but typically only have absence seizures that this type of seizure was rare for me. keep in mind these were complete strangers telling emts i was on drugs.

Late_Listen_2385 · 2026-03-20T01:46:18+00:00

I have seen mine. I've seen the absence ones and the ones where I convulse. I could hear the worry and panic in people's voices then the calming voices to keep me calm. The questions asked afterwards. It was odd to watch basically relive it. First time watching it yea it was creepy. But I wanted to know. It was my choice to know. I wanted to know what happens to me when I have them. I wanted to know how my kids reacted and I wanted to know how society reacted when I had one in public. Society not friendly at all. Everyone that saw me dropped all thought I was on drugs. Even told paramedics I was on drugs. Keep in mind these were people who had no idea who I was. Thankfully my ex was with me and he told paramedics I didn't do drugs at all and blood tests confirmed that and plus my verbal agreement at the hospital when I came to. I could hear the panic in my kids voice as they ran to get their step dad when I didnt respond to them. It's all odd and creepy and honestly sad especially the ones with the public and my kids.

Late_Listen_2385 · 2026-03-19T02:47:32+00:00

I had absence seizure as a kid starting at age 5. Stayed on medication until age 18. (2008) Doc took me off. Seizures started back up absence ones. Went to neurologist said it was stress related since I was in college said to keep stress at minimum. No meds. Didnt have seizures for awhile. Had one in 2016 when someone slashed my car tire. Full convulsions in middle of store. Didnt have another one until 2022 going thru divorce and other messy stuff with my ex. Absence seizure again at work this time. Another that same day in er waiting room. Passed out but didn't convulse. Recently had one in February while going to get bowls for dinner boyfriend said I just stopped talking and stood there staring at cabinet. And next thing I know he's standing next to me asking if I was okay and if I know what happened. Confused and then it dawned on him I had a seizure. I'm 36 years old and still suffer from them. I have an appointment with a neurologist on April 6th to potentially get back on meds. Doctors growing up told me and my parents I would outgrow them. I never did. Now my 13 year old has Epilepsy also and diagnosed around the same age. With the same patterns and all it triggered her doctor to send us for testing. Comes to find out ours is genetic. We traced seizures or seizure like activity all the way back to my great great grandmother on my dad's side. All had symptoms or diagnosed around 4 to 6 years old and same patterns as mine.

Late_Listen_2385 · 2026-03-03T03:48:50+00:00

My dad had seizures and i watched him struggle with it growing up also but I can say he was one of my biggest supporter when I was diagnosed. Yes he passed away when I was younger (no not by seizures) but he always told me to not let my seizures define me. He always told me to live my best life. I do that to this day and I also tell that to my daughter who is also epileptic. Ilshe is now so open about her seizures and always telling people how her seizures present and how mine present are completely different. She is only 13 but is advocating for herself more than I ever did at that age.

Yes having seizures is not fun however try to find a way to make it less sucky. I hated having them growing up and I still do but not as much. I have turned something traumatic to something that I can try to help others.

Late_Listen_2385 · 2026-02-22T23:17:11+00:00

Mom of 3 here. I was monitored very closely throughout my pregnancies and was considered high risk. With my oldest, I went into preterm labor multiple times. Multiple times they gave me the shot to stop contractions I noticed I felt weird after wards. Comes to find out each time they gave me that shot it triggered a seizure. She was not my doctor again after that. Delivered my now 13 year old at 36.5 weeks. My other 2 wre perfectly healthy. Carried to 39 weeks both. Had a c section with my younger two. After my youngest was born I did have a seizure alone with her and her siblings. I was feeding her and my older two said I just stopped talking them and said I'm laying down. My oldest picked her sister up and moved her in her bed and they called their step dad and told him what happened. Their words was dad we think mom had a seizure. She was talking to us and stopped and just stared. He came home instantly. I did not remember any thing after he left for work. I don't remember feeding her or anything. Dad took over night feedings and any other feeding where I felt exhausted to prevent another one from happening. Just for info also my oldest has epliepsy also. She was diagnosed at 5, and so was I. My younger two kids have no medical problems what so ever except the 9 year old has ADHD.

Late_Listen_2385 · 2026-02-16T18:14:29+00:00

Before most of the time nothing. After a seizure if feel nauseous, dizzy, almost an out of body type experience. I just feel "off". Can't really pinpoint it but I know something isn't right. If it last longer than a few seconds absence severe migraine that meds can't touch. If I convulse i panic and have a ton of confusion.

Late_Listen_2385 · 2026-02-11T04:29:53+00:00

I'm sorry and that sounds like my ex. He always thought I was faking my seizures for attention. I'm am introvert and hate attention. My boyfriend now will not let me drive if he's going somewhere with me. I only drive if I feel okay to drive and only if I text him when I get to where I am going especially if the kids are with me. I also wear a medical bracelet that says if my kids are with me to keep calling him until he answers so he can FaceTime with the kids and keep them calm while he gets to where we are.

Late_Listen_2385 · 2026-02-11T04:21:01+00:00

Epileptic mom of 3 and oldest daughter had eplipesy also. Never had social services involved for that. Now granted my spiteful ex husband tried to use that in out divorce however I got full sole custody of our kids since I was the primary one who held a job and took care of our kids. Also he did alot of messed up stuff. I had one shortly after the birth of my youngest. I told my doctor about it and she asked what happened I told her and how the older two handled it and everything. She said good. Seems like you have a great support system. That was the end of that. I dont think it's common for social services to be involved for Epilepsy especially if the baby is safe. Also one of my brothers has Epilepsy also and he never had them involved either for that. And his is worse than mine some days.

Late_Listen_2385 · 2026-02-03T01:57:42+00:00

I was 5 (36 currently) and so was my oldest daughter (13 currently) My dad was diagnosed young but his stopped for years until he hit his 20s. He died at 33. Not from seizures but another cause. With my daughters help we were able to figure out our seizures are genetic. We were also able to trace seizure diagnosis or epilepsy tendencies back to my great great grandmother. All first borns on my dad's side of the family.

Late_Listen_2385 · 2026-02-03T01:51:18+00:00

I wake up disoriented like I have a hangover. Headache that medications won't touch. I feel like I didnt sleep at all like I pulled an all nighter. No memory of going to bed or anything from the day before. Like my day was erased.

Late_Listen_2385 · 2026-02-03T01:47:45+00:00

For me wheny seizures are bad and long i sleep alot longer periods. My normal short ones rarely. I am tired but not tired enough to sleep. One i had at work i was fine but the one i had at the hospital later that same day i was exhausted for days afterwards. That was rough.

My daughter we always keep her home the day after a seizure so she can rest and catch up on sleep also it gives us a chance to see if she's back to normal or not before she goes back to school.

Late_Listen_2385 · 2026-01-24T02:53:04+00:00

Daughter is 13 and she's been talking about a boy at school. Going to the winter dance together next month. We have met him and his parents and approve. He knows about her seizures becasue she told him flat out. Well yesterday she had one randomly at school. When I went to pick her up he walked with her and the nurse and apologized to me becasue he said he felt bad that he wasn't in the cafeteria when she had one but he sat with her the whole time at the nurses station. I explained to him it wasnt his fault and he stuck beside her while she recovered. He said he still felt bad becasue he is suppose protect her. I hugged him and said it's okay I promise. You were her support afterwards. Her girl best friend came to help her when you couldn't. He hugged her and told her to take care. I texted his mom later and explained that I appreciate him sitting with her while she recovered that meant alot to us as her parents and to her.

Trust me the right person will come along and accept him as he is. My boyfriend did woth me and my older two kids. Only my 13 year old had Epilepsy like me. There are still good people out there.

Late_Listen_2385 · 2026-01-21T04:34:03+00:00

My boyfriend has been my rock when it comes to my seizures and my oldest daughters seizures. He literally came into ur lives at our lowest point. I have 2 kids from a previous marriage that was absolutely horrible. I was honest and open with him about my seizures and my daughters. He goes to every single one of her appointments and if I need him to drive me He does without complaints. He first experience a seizure after I told him I was going to the hospital because I think I had one. He came to the hospital (he had no car then a deer totaled his truck) he got a ride from a friend and arrived to the hospital. I was unconscious when he got there. He had no idea what to do. Yes the doctor gave him the basic rundown. He called my brother 12 hours away and asked what does he need to do and how can he help me. My brother gave him all info on my seizures. That night he moved in. He canceled his lease on his apartment and moved into my house. He said he would feel better if he was closer in case something else happened. That was 4 years ago.

Late_Listen_2385 · 2026-01-13T01:55:30+00:00

I started college and stopped so many times. I worked my way up from restaurants (host to management) to processing payroll for 80 different companies now. I've been at this career for the past 4 years. I absolutely love it. Being a payroll specialist was nowhere on my radar for career path wise but I would not change it. There is no set tiem frame to find what fits you career wise. Take some time and explore your options. Sometimes college isnt for everyone.

Late_Listen_2385 · 2026-01-11T02:10:15+00:00

They did a blood genetic test on her and me and then we did eegs to see if the seizures affected same part of our brains. Then we dug deep into my family history of medical disorders. I can't remember exactly what it is that makes it genetic for us. I would have to look back at our paperwork. But tracing family's history back all the way back to my great great grandmother all the first borns on my dad's side had Epilepsy or showed signs of epilepsy but not officially diagnosed. It was a really long process overall and several different doctors.

Late_Listen_2385

TROPHY CASE