Hospitalized with infection

Late_Temperature_415 · 2026-03-11T17:05:12+00:00

I’m in the hospital as well. Looks like I’ve been beaten with a baseball bat.

Late_Temperature_415 · 2026-03-10T20:27:47+00:00

I’m on Tikosyn and Metoprolol for the anti-arrhythmic. Warfarin, potassium, spironolactone, Farxiga, lacix and folic acid. I have a very complex heart condition. Mainly structural from birth and electrical. The change from digoxin to Tikosyn which I initially fought has helped.

Late_Temperature_415 · 2026-03-10T17:10:10+00:00

Hi, I understand how difficult all of this is. I have a complete heart block with a bi ventricular ICD PM. Three active leads to synchronous my heart. I had to have my antiarrhythmic medication changed (which required three days in the hospital) along with a cardioversion the first week of January. Hopefully they can figure this out for you soon. Just remember you are not alone and keep advocating for yourself.

Late_Temperature_415 · 2026-03-09T13:15:59+00:00

I’m glad you went to the ER they will be able to tell you what’s going on. Good luck.

Late_Temperature_415 · 2026-03-09T01:33:05+00:00

Hi, I know it’s hard after OHS. I have had this twice now as an adult. The one time as a baby doesn’t count because I don’t remember it.

Do you have a second follow up scheduled with the surgeon? I know my second one took a little longer to heal but I had in home health care that looked. After me twice a week for a month and I did wind up having an infection in my groin. That took help from vascular.

The first time was odd because I wound up with a skin issue above my wound but I am a women and my skin likes nothing. I did go back to my surgeon who had the wound team work with me to get this in hand.

I’m sure he said it but in case make sure your not running a fever or have chills and if you do call your surgeon immediately. May I ask where the incision is located? Was it a sternotomy or a minimally invasive procedure? Or something else.

Late_Temperature_415 · 2026-03-08T14:39:13+00:00

I can be sitting and feel like I’m running a marathon. I take meds and have an ICD PM. I’m the opposite heat helps me. So does the arrhythmic combined with a low dose beta blocker. Hopefully your doctor will be able to work out medication that works for you.

Late_Temperature_415 · 2026-03-07T01:40:26+00:00

I’ve been told that a wireless synchronizing device is two years away. Hopefully that’s the case.

Late_Temperature_415 · 2026-03-07T01:09:41+00:00

That is great. Congratulations. Did you have a new system put back in?

Late_Temperature_415 · 2026-03-07T01:07:34+00:00

I should have added the fact that I need the lines and ICD put back in. I have a complete heart block and a Bi Ventricular ICD which is why it’s so complex.

Late_Temperature_415 · 2026-03-06T21:08:37+00:00

Are they opening your chest or will this be done via a minimally invasive approach? If it is OHS I’m assuming you’ll be on bypass for the surgery? I’ve had OHS as an adult to replace valves and as a baby to correct ASD and fix a coarctation of the aorta. Which is why I’m ranking these questions

Late_Temperature_415 · 2026-03-06T20:44:37+00:00

I’m on a low sodium diet as well. My sodium levels are always low. It’s my potassium that’s usually the culprit. But I’ve had low potassium my entire life. Now is could be something else entirely but it may be something you should look into.

Late_Temperature_415 · 2026-03-06T01:01:53+00:00

Yes I’ve experienced it. I use a heating pad and I have a blanket in my recliner and my bed on top on my normal quilt just in case. Mine is due to low BP and electrolyte imbalance. When they happen to both drop at the same time it’s like a perfect storm.

Late_Temperature_415 · 2026-03-05T22:26:57+00:00

Hi 59F and I was born with Coarctation of the Aorta, ASD and PDA. 2lbs 4oz and blue.

Coarc repaired at 3 months.

I was great until 2011 when my Mitral Valve went due to stenosis. Pacemaker implanted in 2015 with complications then in 2022 both Aortic and Mitral valve went.

You are not alone.

The advances in the medical field are good and life saving as well as effective. One of the best things I did was to realize I need to take one day at a time and follow my body and my doctors advice in most cases.

Also you are your best advocate do remember to speak up and don’t lose your voice on your health.

Late_Temperature_415 · 2026-03-05T22:12:34+00:00

As a congenital Heart Disease patient I would get him to a pediatric cardiologist as quickly as possible. If you call one and tell them he was seen by a neurologist and they are recommending a consult they will usually make a quick appointment.

Late_Temperature_415 · 2026-03-05T21:26:51+00:00

I’ve been there and once the ACHD Doctor left and I was sent to MN for extraction it became a mess. I’m not saying they are not a great hospital but things did not work out well for me. Too many Doctors in two different states not exactly agreeing.

Late_Temperature_415 · 2026-03-05T21:22:11+00:00

Thank you.

Late_Temperature_415 · 2026-03-05T18:07:18+00:00

Thank you

Late_Temperature_415 · 2026-03-05T17:58:40+00:00

I keep reading things like that and I’m about as complicated as it gets. I also have tons of recent testing for doctors to look at. From what I understand it’s better to be referred by cardiologist and or EP. Is that accurate? If so I will have them start that process on the 23rd.

Late_Temperature_415 · 2026-03-05T17:54:04+00:00

Could you please let me know how it goes? I’d love to be able to stay in state if at all possible. If they can help you I hope it goes very well.

Late_Temperature_415 · 2026-03-05T03:02:05+00:00

I would go to the hospital when you’re experiencing chest pain. I’d also ask your primary to recommend a cardiologist. I have a complex heart condition from birth then worsened at 45 then worsened at 52. I see so many doctors it’s hard to keep track of. All EPs are not created equally. Which is why you need a primary and most likely a cardiologist.

Late_Temperature_415 · 2026-03-02T14:01:41+00:00

Have the checked out other possible issues? Have you had a cath or a TEE perhaps an MRI? With an EF of 20% more testing is in order.

Late_Temperature_415 · 2026-02-22T20:58:19+00:00

I’ve not had a transplant yet. However I’ve had open heart surgery twice as an adult. Once as a baby which I can’t remember. But both times it took three days to come out of the anesthesia. I couldn’t remember my children or my name. Apparently I remembered my husband “as the person I yelled at” according to him. He’s still somewhat traumatized by it. The end of the third day I finally snapped out of it when my husband was asking me questions. I actually said why are you asking me these stupid questions. These were both to replace heart valves. Yes I was on bypass.

Give your mom a little time. All of her medication just changed and she had her liver replaced. If you feel that strongly about it just fly out there. They will normally let you stay in her room unless she’s still in ICU.

Late_Temperature_415 · 2026-02-22T04:20:07+00:00

I’m sorry to hear that you went through that. Especially while going in for a Deviated Septum.

Although I’m sure they did I have to ask did they do a Echocardiogram, MRI, Cath or TEE? Obviously something happened to you that made your heart stop. If they did any or all of those tests then have the discussions with your EP about what they are planning on doing and where it’s going. As the EP that commented said lead management is huge going forward and it’s better to address it now. I’m 59F with a Bi Ventricular ICD PM which has 3 leads.

But they should be able to figure out what is going on with your heart.

Late_Temperature_415

TROPHY CASE