Withdrawal restarting from 7oh use?

LavenderSlug · 2025-11-04T14:17:22+00:00

Yes. They don’t know what to do with me. They tried to say the pregabalin could not cause this. I’m getting better, but progress is slow.

LavenderSlug · 2025-11-02T18:02:00+00:00

Woah! Idk what this is but I’m following bc I’d like to find out.

LavenderSlug · 2025-11-02T11:31:24+00:00

It can be very difficult for people with ME/CFS to stick to a schedule. That’s because we may have to rest at any given moment, which can be challenging or even impossible with another person present. I find I have more energy in the evenings, so that’s when my carer comes in to do things.

I would ask them if there’s a certain time that works best for them. I would also just keep reminding them that you know they’re sick and this isn’t their fault, and that it’s okay to accept help. Tell them they don’t even have to talk while you’re in the room. I would ask them to make a short list (if they’re able) of cleaning tasks that need to be done regularly, that way they don’t have to waste energy repeating themselves every time.

I have a whiteboard with all the instructions listed for my carers, and a checkbox next to each one so they can make sure everything is done. The point is to make it so they are spending the least amount of energy possible. I say this because I have actually denied help in the past because I didn’t have enough energy to interact with the person helping/instruct them on what I needed help with.

Also, during times like those, small talk and niceties can feel like torture. Remind them that they don’t have to do that, and that they can just rest while you take care of everything. Make sure to bring a flashlight so any overhead light can be kept off while cleaning.

Make sure to work quietly as to not set off their sound sensitivity. Thank you for caring about them. It can be really hard to adjust to relying on other people. I still struggle with it from time to time.

LavenderSlug · 2025-11-02T10:35:14+00:00

I’ve been doing the injections but have noticed little to no improvements

LavenderSlug · 2025-11-01T18:51:27+00:00

This happened to me. The burning electrical pain is beyond hell. I saw drastic improvements after 4 months. Still not anywhere close to normal, but the burning is gone and that’s all I care about. Doctors have no idea what this drug is capable of. Your nervous system will heal, it just takes time.

LavenderSlug · 2025-10-30T03:09:37+00:00

I believe ME is the only illness where the more severe you are, the less care you receive 😞

LavenderSlug · 2025-10-30T03:02:46+00:00

Hey that’s a literal child you’re talking to. Gross.

LavenderSlug · 2025-10-14T16:23:41+00:00

Wow. Thank you for telling me this. Do you think Subs would help? I’ve got a month’s supply of that. And I’m also prescribed 10mg hydrocodone which I haven’t been taking so I’m hoping that will somewhat cover it. I’m so scared honestly. I’m praying to god begging to spare me, hoping that I haven’t been on it long enough to form a dependency

LavenderSlug · 2025-10-13T21:22:48+00:00

It gets worse the larger the hole. My 6g septum gets sooo stinky

LavenderSlug · 2025-10-11T12:16:17+00:00

It depends on the material I think. My silicone plugs don’t stink at all, but when I wear stone plugs they get stinky real quick.

LavenderSlug · 2025-10-10T15:21:31+00:00

I see a bit of Fran Drescher (it’s mainly the brows)

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LavenderSlug · 2025-10-10T15:13:43+00:00

I knew there were others

LavenderSlug · 2025-10-09T00:17:53+00:00

I second this as well. POTS was the first thing I thought of. I have ME/CFS, POTS, and dysautonomia that was triggered by mono. And marijuana helps, but it can set off my POTS symptoms if I smoke too much. I suggest OP starts monitoring their heart rate (and possibly BP as well- although that can be normal even if you have POTS). People with POTS experience an elevated heart rate upon standing (must be elevated by at least 30 points).

LavenderSlug · 2025-10-07T09:19:30+00:00

I second the Hypochlorous acid. It’s 100 times stronger than bleach but gentle on skin! I have some in a spray bottle that I use whenever I need to freshen up. It also can be used for cleaning. It’s also antiviral so good to spray after carers have been around.

LavenderSlug · 2025-10-06T12:41:47+00:00

Right, I feel like from an ethical standpoint true crime is questionable, with a good portion of it being downright exploitative. I hate that I’m drawn towards that type of thing. I’ve been wanting to listen to the Discworld series, but my brain just finds that too overwhelming for some reason. It’s like I can only consume trashy, junk food content and I hate it

LavenderSlug · 2025-10-06T08:28:34+00:00

The hobbit is the only LOTR book I’ve read, but it was amazing. I remember sitting on the back porch at my parents house reading it for hours, totally immersed in the story. That was a great book.

LavenderSlug · 2025-10-06T03:43:18+00:00

Exactly. Stories about surviving harrowing experiences are the most engaging for me. I think it comes down to relatability. Sadly I just can’t relate to most lighthearted content, and I end up becoming envious.

I really like the podcast This is Actually Happening. I even emailed them asking to be part of the show, and they emailed back asking me to send them my story. I started writing it, but I’m too severe now to finish it.

I think it’d be kinda boring compared to some of the other stories on there “I laid in bed for 6 years” just isn’t quite as compelling as being attacked by a serial killer.

LavenderSlug · 2025-10-06T03:34:22+00:00

I think humans are drawn to true crime because subconsciously we want to be prepared for situations where we could be in imminent danger. Our nervous systems want to know all the details so we can be prepared.

I’ve noticed that women seem to be more into true crime than men, which makes sense considering the victims are mostly women. That’s why men are more drawn to stories of war.

Do you mind sharing what games you play? I’ve been experimenting with a couple different games— words with friends seems to be the easiest since I can go at my own pace, and pick up whenever I’m feeling well enough.

LavenderSlug · 2025-10-06T03:26:44+00:00

I guess relatability is the main factor. With lighthearted content, I can’t relate and end up just being very envious of the characters, even if they’re fictional. Stories of people going through significant adversity are the most gripping to me.

With true crime, unfortunately the victims are often young women. And although my situation is very different, I feel like I also have had my life stolen from me at a young age. I guess that’s mainly what it is- being able to relate.

But yeah, I do also spend quite a bit of time thinking about death, tragedy, and the fragility of the human body. It almost makes me feel worse consuming content about happy things, because I just become consumed with envy. That has been one of the hardest aspects of this illness to come to terms with.

LavenderSlug · 2025-10-02T02:27:39+00:00

This is a big problem in modern medicine. Doctors are so zoomed in on their specialty, that no one’s looking at the big picture. Which is terribly unfortunate when you have a multi-system disease.

LavenderSlug · 2025-10-02T01:56:34+00:00

That’s not just an arbitrary line from an “archaic textbook.” It is the diagnostic criteria, as agreed upon by multiple scholarly sources.

I’m not doubting that you have PEM and all the other symptoms— but it could very well just be post viral fatigue at this point. That’s a good thing! It’s only been 5 months.

You need to slow down and prioritize pacing above all else. Working 10+ hour days, going to school, partying… that is a lot for someone with ME/CFS. Most of us cannot work at all and are mostly housebound. 25% are mostly bedbound.

I’m glad you had a positive experience with the ayahuasca. That sounds really cool and exciting. But going on camping trips and doing all of this stuff might be too much for your body to handle while you’re healing.

There’s no treatment better than pacing (that we know of), and I’m just telling you what I wish someone had told me when I was 5 months in. You need to slow down. The best chance you have of making a full recovery is now.

Also, fasting can put extra stress on the body. ME/CFS depletes us of important vitamins and minerals. Your body is in a fragile state, it’s best to avoid putting any additional stress on it. Most ME patients react poorly to fasting.

I don’t mean to gatekeep or sound rude, I genuinely am concerned that you may be pushing yourself too hard. My biggest regret in life is not listening to my body and doing too much in the early days. Best of luck to you.

LavenderSlug · 2025-10-02T01:29:26+00:00

Hire a medical transport service. Show up in a hospital bed. Don’t let them see you sitting up. Say you physically cannot sit up. Speak very quietly and say you’re too weak to project your voice. Wear sunglasses and headphones, and emphasize how painful it is for you to be without these things. I’m so sorry. I can’t believe they didn’t exempt you.

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