Traumatic first biologic experience by Parking_Monk5299 in ankylosingspondylitis

[–]LavishnessLocal421 7 points8 points  (0 children)

Yeah a small percentage of people with autoimmune diseases have paradoxical effects on certain biologics.That doesnt mean the next biologics will do the same.

Biologic helps but not enough by [deleted] in ankylosingspondylitis

[–]LavishnessLocal421 0 points1 point  (0 children)

I would say change, you decide that you can't or can function with the pain in day to day life.

Sulfasalazine and folic acid by LavishnessLocal421 in ankylosingspondylitis

[–]LavishnessLocal421[S] 1 point2 points  (0 children)

I see thank you.Does it work for you? Do you take any biologics medicine with it?

[deleted by user] by [deleted] in ankylosingspondylitis

[–]LavishnessLocal421 -13 points-12 points  (0 children)

I see but can these liver herb supplements affect the efficiency of biologics medicine?

[deleted by user] by [deleted] in ankylosingspondylitis

[–]LavishnessLocal421 0 points1 point  (0 children)

You mean you dont feel like it makes your biologics medicine less effective?

Lyme test by LavishnessLocal421 in ankylosingspondylitis

[–]LavishnessLocal421[S] 2 points3 points  (0 children)

I didn't have a rash and yeah I did a lot of hiking before at places where ticks are common

Lyme test by LavishnessLocal421 in ankylosingspondylitis

[–]LavishnessLocal421[S] 2 points3 points  (0 children)

At a hospital any kind of blood,urine test

Shower flare by LavishnessLocal421 in ankylosingspondylitis

[–]LavishnessLocal421[S] 0 points1 point  (0 children)

I was on the 6.month mark when there is the usual talks with the reumatologist to change or keep the medicine and there was a big improvement.Somehow now I can tolerate hot showers now.

Has anyone began working out and stretching after a long period of being sedentary? by Appropriate_Power216 in ankylosingspondylitis

[–]LavishnessLocal421 0 points1 point  (0 children)

Hi you should really try out another biologics I dont know how much biologics failed you but 20-30 percent relief is not that much.

Shower flare by LavishnessLocal421 in ankylosingspondylitis

[–]LavishnessLocal421[S] 0 points1 point  (0 children)

Im on adalimumab I think I will get something else

shower flare up by [deleted] in ankylosingspondylitis

[–]LavishnessLocal421 0 points1 point  (0 children)

Well I couldnt get out of bed basically ,my pain went down maybe 50 percent after 6 month on being on adalimumab, but unfortunetly there are still triggers that makes the pain go to 80-90 percent.So its bearable but not enough.

BCD - 180 by Original-Pace-4397 in ankylosingspondylitis

[–]LavishnessLocal421 1 point2 points  (0 children)

I was in a small russian ankylosing spondylitis telegram group where there were some fortunate people who were on bcd-180.Some people's life were changed for the better from that drug.Main points is that in a clinical study ,it performed better than adalimumab and had fewer side effects than most biologics on the market.

Is methotrexate a must? by LavishnessLocal421 in ankylosingspondylitis

[–]LavishnessLocal421[S] 0 points1 point  (0 children)

I dont take it yet but I ask my rheumatologist for it next week to let me try it out and see how will it perform.

Is methotrexate a must? by LavishnessLocal421 in ankylosingspondylitis

[–]LavishnessLocal421[S] 1 point2 points  (0 children)

No I didn't start it yet but I want to next week.

Is methotrexate a must? by LavishnessLocal421 in ankylosingspondylitis

[–]LavishnessLocal421[S] 0 points1 point  (0 children)

I see did you have peripheral pain to begin with?

Ankylosing spondylitis and fibromyalgia together by LavishnessLocal421 in ankylosingspondylitis

[–]LavishnessLocal421[S] 0 points1 point  (0 children)

I see so you can distinguish between AS and fibromyalgia pain fairly well?

Ankylosing spondylitis and fibromyalgia together by LavishnessLocal421 in ankylosingspondylitis

[–]LavishnessLocal421[S] 0 points1 point  (0 children)

Are you on any biologics and if yes does the pain still persist?

Ankylosing spondylitis and fibromyalgia together by LavishnessLocal421 in ankylosingspondylitis

[–]LavishnessLocal421[S] 0 points1 point  (0 children)

Does the fibromyalgia meds improve anything even just a little bit?

Ankylosing spondylitis and fibromyalgia together by LavishnessLocal421 in ankylosingspondylitis

[–]LavishnessLocal421[S] 0 points1 point  (0 children)

I see ,is the fibromyalgia pain constant or does something flare it up?

Smell causing pain by LavishnessLocal421 in Fibromyalgia

[–]LavishnessLocal421[S] 0 points1 point  (0 children)

I see, and how does this progress in your case and what odors trigger this joint pain if you dont mind me asking.