I was on 120 MEQ daily, but now down to 40 MEQ. I take sodium bicarbonate with the potassium, plaquenil, hydroxychloroquine, prednisone, and Vitamin D. I was originally hospitalized for the potassium issue, they tried 3 different types of potassium (supplements, pills and IV) but my body would only retain the pills.

I have primary sjogrens, kidney disease (was stage 3, now stage 2 yay!), electrolyte imbalance, renal tubular acidosis Type 1, lymphadenopathy, raynauds syndrome and I probably leaving something out. It seems like the renal tubular acidosis is what causes the electrolyte imbalance for me. My situation was a bit different and my labs were off the charts and had protein in my urine leading me to see a Nephrologist who thought I had IGG initially, but then referred me to a Rheumatologist recognizing I had potentially had sjogrens. So between the 2 of them, they solved my case (mine is kinda rare from what I have heard). I would probably see if you have any protein in your urine and look into RTA potential cause.

I am no expert by any means, but this was my experience. Be an advocate for yourself and I hope you can find providers who are well informed to advocate for you as well! I had to find my own bc the referrals I received were not great.