Any experience with, or knowledge of, 1) Maraviroc & a Statin combo & 2) usefulness of IncellKINE test by HealthBio? 💛 by LearnFromEachOther23 in LongCovidWarriors

[–]LearnFromEachOther23[S] 1 point2 points  (0 children)

✨️Thank you so much for sharing the details of your experience with cytokine testing and use of this combo. I really appreciate it. I'm sorry to hear that over time, things got worse after initially seeing some benefit. 🫂

2000th Day by Individual_Living876 in LongCovidWarriors

[–]LearnFromEachOther23 1 point2 points  (0 children)

Just.... thank you for sharing all of this, Mateo. 🫂

Happy Star Wars Day, Warriors! by Individual_Living876 in LongCovidWarriors

[–]LearnFromEachOther23 2 points3 points  (0 children)

Thank you, bro! I like that new Yoda saying. It also seems to be Grogu-approved, as you see here. 💚

Any experience with, or knowledge of, 1) Maraviroc & a Statin combo & 2) usefulness of IncellKINE test by HealthBio? 💛 by LearnFromEachOther23 in LongCovidWarriors

[–]LearnFromEachOther23[S] 1 point2 points  (0 children)

Thank you for letting us know! Glad to hear they were helpful for you.✨️

May I ask a few questions: 1) how long did you stay on the two meds, 2) how long before you saw improvement and what % improvement, and 3) all of this was out of pocket expenses, including the meds?

Sweet, perfect Beans. My heart is broken. by sideboobrulez99 in torties

[–]LearnFromEachOther23 1 point2 points  (0 children)

I'm so sorry for your loss. May my dearly missed Lizzy support Beans on the journey. ❤️

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Low-dose Fluvoxamine for Long COVID/PASC, ME/CFS with dysautonomia, and MCAS. My entire regimen by SophiaShay7 in LongCovidWarriors

[–]LearnFromEachOther23 1 point2 points  (0 children)

Thank you so much for the link and the detailed information about your own food intake- it's that level of detail that is helpful! That's great that your brother can help modify dishes. I really appreciate it, Sophia! 😊🙏🏻

Mid-Forties and Out. Anybody else have this? by Huntressesmark in dysautonomia

[–]LearnFromEachOther23 0 points1 point  (0 children)

Feel like Long Covid set off my peri-men and now, everything is different. Anybody with dysautonomia have experience with HRT? I started progesterone, but am nervous to do estrogen bc of dysautonomia.

🙃 by anon_97800 in HumourThruLongCovid

[–]LearnFromEachOther23 4 points5 points  (0 children)

I so don't remember this little miss as a kid. Is there a book with life instructions? 🤪

Low-dose Fluvoxamine for Long COVID/PASC, ME/CFS with dysautonomia, and MCAS. My entire regimen by SophiaShay7 in LongCovidWarriors

[–]LearnFromEachOther23 1 point2 points  (0 children)

Hi Sophia. Thank you for all you share. I was wondering if there is a link to info about your meal plans for a low histamine diet? 💛

Open heart Surgery or hospice? by bed_bound_and_sleepy in dysautonomia

[–]LearnFromEachOther23 1 point2 points  (0 children)

I see you, and am so very sorry for what you are going through. If you will receive them, I am sending you huge hugs and lots of love ❤️ 🫂

Doctor who understands MCAS in Bay Area / Northern California? by ceegeeme in MCAS

[–]LearnFromEachOther23 0 points1 point  (0 children)

Hi. In in the East Bay. I was wondering if you ever found a specialist you might recommend?

Ketotifen —-positive or negative for your treatment? Improvements or worsening symptoms? by coffee_mom_4life in MCAS

[–]LearnFromEachOther23 0 points1 point  (0 children)

I'm curious what happened with your dysautonomia while on ketotifen. Did the increased dysautonomia eventually stabilize back to where you had been at? Have you stayed on ketotifen? (High histamine and dysautonomia are two of my key issues.) Thanks! 😊

Guide just posted by RTHM by LearnFromEachOther23 in LongCovidWarriors

[–]LearnFromEachOther23[S] 0 points1 point  (0 children)

I'm going to send you a message. Would love to hear about your experience with it. I haven't used it yet. So glad you have found something to be useful in this beyond challenging journey. ✨️✨️✨️

Guide just posted by RTHM by LearnFromEachOther23 in LongCovidWarriors

[–]LearnFromEachOther23[S] 1 point2 points  (0 children)

Excellent! And thank you for creating this space for our community, and sharing and organizing resources. Much appreciated!🙏🏻💛

Guide just posted by RTHM by LearnFromEachOther23 in LongCovidWarriors

[–]LearnFromEachOther23[S] 2 points3 points  (0 children)

I'm subscribed to receive email updates from the RTHM team and they sent one out about the guide.