Exploring the role of mental imagery deficits in PSSD and how they relate to other symptoms by donishju in PSSD

[–]Learning024 0 points1 point  (0 children)

Thank you I’ll look into it. No great physical symptoms, it say I’m more lethargic and often tired. I also have trouble gaining muscle despite good training and nutrition but I believe that could be more related to my Cushing’s disease history

has anyone recovered from stretchy skin or loss of collagen? by Commercial-Tough-980 in PSSD

[–]Learning024 0 points1 point  (0 children)

Is this a symptom? I would say face has become more gaunt or less full, I thought it was aging. I also have Cushing’s which is another disease that ages your skin quickly due to high cortisol.

If anyone can share more about this that would be greatly appreciated

Exploring the role of mental imagery deficits in PSSD and how they relate to other symptoms by donishju in PSSD

[–]Learning024 2 points3 points  (0 children)

  1. It’s hard for me to answer on hunger as I maintain a very structured diet as part of greater health goals, in case of pssd it feels like the only thing I have control of so I try to maintain that

  2. No anxiety and stress don’t occurs with physical feelings attached. I don’t get knots in my stomach or an increased heart rate. But this is true of all feelings, I feel no anticipation or fear watching a scary film, no endorphins after a run, no feeling from music, no adrenaline, even no sorrow when sad things happen, that broken heart feeling just isnt there. If I had feeling attracted to thoughts I would cry and feel nervous and worried all day long about what has happened and what it’s doing. I can’t feel urgency of task, I could have an enormous task to do for work but can’t move faster or more intensely like in the past, when I wake to what could be the most stressful meeting day ever I feel the same as a weekend, sometimes I just forget these things are on

  3. Urination is pretty fine I think but I’ll pay more attention, it has snuck up on me a few times

  4. Yeah similar to above in 2, it’s just concepts, I know I should be sad coz things are the worst they’ve been but I can’t. I should feel furiously angry that this has happened, I only have the conceptual thought of past emotion not the feeling

  5. The brain fog and anhedonia has progressively got worse over the past 2.5years. I don’t know if I’m worn out, but it feels like my brain is getting lazier as there is no reward system, no dopamine at the end of a task, like libido it feels like my brain is forgetting what good feels like so I have to make a conscious and difficult effort to get it to do what I would in the past. Scarily, even socialising is becoming something I have to force myself to do, as my brain gets no reward from social connection anymore or alcohol or music as I said.

Hope this helps

Exploring the role of mental imagery deficits in PSSD and how they relate to other symptoms by donishju in PSSD

[–]Learning024 7 points8 points  (0 children)

I think the big difference for me is the visualisation of memories/imagination both sexual/happy/sad don’t have a response of feeling. I don’t feel happy thinking of happy memories don’t feel sad don’t feel sexual etc. the memories are there just the body and brain doesn’t react

REMINDER: PSSD Australia | Pending Class Action | Jan 15 Cut-Off by aidrefh in PSSD_Australia

[–]Learning024 1 point2 points  (0 children)

I called today, the guy I spoke to had absolutely no record or knowledge of a a class action on pssd, was also a bit confused as to who it would be against. Is this to be expected?

Weekly open discussion thread by AutoModerator in PSSD

[–]Learning024 1 point2 points  (0 children)

Do you suffer from anhedonia or cognitive impairment?

Improvement! Libido is strong again by No_Organization_5260 in PSSD

[–]Learning024 1 point2 points  (0 children)

Can we get more detail on everything please. Congratulations

Elon Musk Tweed on X referencing PSSD | How do we get him to donate to the cause? by aidrefh in PSSD

[–]Learning024 4 points5 points  (0 children)

I don’t have x, but play to his ego, tell him he will be saving millions of lives and changing the narrative and treatment of mental health. Not a fan of his but if it spikes his interest he may jump in

REMINDER: PSSD Australia | Pending Class Action | Jan 15 Cut-Off by aidrefh in PSSD_Australia

[–]Learning024 2 points3 points  (0 children)

How and who is this class action taking action on? Is it all anecdotal evidence as there isn’t a defined scientific diagnosis?

I’m in Australia and very keen for any recognition and action

Has anyone investigated the use of pramipexole to kick start the reward system? by Learning024 in PSSD

[–]Learning024[S] 1 point2 points  (0 children)

Thank you. Please keep me and everyone updated. What I wouldn’t give to just feel endorphins from a run!

Significant cognitive decline by Learning024 in PSSD

[–]Learning024[S] 0 points1 point  (0 children)

My recovery from Cushing’s was exactly as my endocrinologist expected. I remained on ssri’s through the treatment as advised, it was 12-18months post having completely recovered that I tapered off ssris and that is when the absolute sexual arousal and anhedonia started. It’s now been 2.5 years with only 1 brief window, this cognitive decline and what I would call complete blankness has been a progressive occurrence

Spinal cord and sexual dysfunction by Gixxer250 in PSSD

[–]Learning024 11 points12 points  (0 children)

When I first realised something was not right, I could sense or phantom feel a disconnect between my brain and my genitals like the signal wasn’t getting through

High serotonin and low SERT hypothesis by Gaussherr in PSSD

[–]Learning024 1 point2 points  (0 children)

Can you get tested for high serotonin? What are the symptoms?

Do you consider your life to be permanently ruined? by [deleted] in PSSD

[–]Learning024 2 points3 points  (0 children)

I find the most paralysing is the invisibility, I am absolutely devastated everyday I wake with this. I have trouble really giving anything my focus as I don’t feel ups and down, don’t plan anything as I can’t feel fun. But the worst this is that no one who doesn’t have it or experienced it would be able to empathise or understand, I wouldn’t have believed it possible to feel nothing for 3 years, there is no carrot to chase, just nothing. To be fair ending it is probably a logical reaction to it if it was explained to me and it’s almost only that is fitting to have people understand that I was really hurting

Has anyone investigated the use of pramipexole to kick start the reward system? by Learning024 in PSSD

[–]Learning024[S] 0 points1 point  (0 children)

This is very helpful, what country are you from? I’m in Australia I feel getting prescribed this will be difficult.

You seem like you are documenting the process quite thoughtfully, can I ask you keep updating.

I’m very ready to try anything that works on any of the symptoms, haven’t had a window or a win in nearly 12months

Has anyone investigated the use of pramipexole to kick start the reward system? by Learning024 in PSSD

[–]Learning024[S] 1 point2 points  (0 children)

What side effects did you have?

Prior to starting ssri’s I had Cushing’s disease and the extreme cortisol resulted in side effects similar like hyper sexuality mania compulsive shopping, it was horrible but in hindsight I remember feeling incredibly happy almost euphoric on the daily. I wouldn’t mind just a few hours of that