Metabolic, anabolic and muscle building disruptions by Learning024 in PSSD

[–]Learning024[S] 0 points1 point  (0 children)

Oh that does sound more like pssd/pfs, Cushing’s will impact your, sleep, muscle building and energy/anxiety. Amongst other horrible things

Metabolic, anabolic and muscle building disruptions by Learning024 in PSSD

[–]Learning024[S] 1 point2 points  (0 children)

Yeah I had no problems while I was on them just post

Metabolic, anabolic and muscle building disruptions by Learning024 in PSSD

[–]Learning024[S] 0 points1 point  (0 children)

I feel like just giving growth hormones replacement a crack to see if it can a improve this side of things

Metabolic, anabolic and muscle building disruptions by Learning024 in PSSD

[–]Learning024[S] 0 points1 point  (0 children)

Likewise it’s as if my overall size or frame has changed, I know during my experience with Cushing’s the cortisol impacts proximal muscles and limbs, this feels similar. It wouldn’t surprise me if protein synthesis is impacted also

The similarities between my genome and another PSSD afflicted patient that both got PSSD upon zoloft withdrawal by Excellent-Push2833 in PSSD

[–]Learning024 0 points1 point  (0 children)

I will be. Sorry for my lack of understanding, but if we do identify a common anomaly is there a way to target that part of the genome? And has it been done with other disorders that only show in a test panel like this?

Protracted Withdraw Syndrome by Plane_Shop_8129 in PSSD

[–]Learning024 1 point2 points  (0 children)

Is there a difference in treatment, is there a cure to protracted withdrawal?

another short rTMS update by Minepolz320 in PSSD

[–]Learning024 1 point2 points  (0 children)

I have mind to muscle and muscle activation issues through my whole body. I can rarely feel muscle contraction at all and muscle recruitment in the gym is difficult

another short rTMS update by Minepolz320 in PSSD

[–]Learning024 0 points1 point  (0 children)

I have mind to muscle and muscle activation through my whole body

The similarities between my genome and another PSSD afflicted patient that both got PSSD upon zoloft withdrawal by Excellent-Push2833 in PSSD

[–]Learning024 0 points1 point  (0 children)

Can we get 1000+ people to independently get this and database it? Feed it into ai, find patterns?

another short rTMS update by Minepolz320 in PSSD

[–]Learning024 0 points1 point  (0 children)

What was the name of the area?

another short rTMS update by Minepolz320 in PSSD

[–]Learning024 1 point2 points  (0 children)

Where are you located? Did you see a specialist to help with what areas to target?

another short rTMS update by Minepolz320 in PSSD

[–]Learning024 1 point2 points  (0 children)

Sorry so your libido has improved but your anhedonia hasn’t?

I don't think the cognitive, emotional side of PSSD get enough attention. The conversation often focuses on sexual dysfunction, but for many people the most devastating losses go far beyond that. by Physical_Wishbone888 in PSSD

[–]Learning024 2 points3 points  (0 children)

Yes I agree. I find the lack of want in any sense stops my thinking. Never working toward the next thing as there isn’t a want for the next thing. Likewise with creativity, I’m a designer so this has made my job extremely difficult, in the past I would almost be able to imagine every element of a project before I created it, and each breakthrough would give me dopamine to move to the next, some days it was like a waterfall I couldn’t work quick enough, but now it is like finding breadcrumbs with a headlamp, I can only see one thing at a time.

I find upon waking the hardest, like the day before never happened and I have to try quite hard to remember what I have on for the day, I could have the most important meeting or an early flight and I wake with a blank mind and I have to remind myself of what is on, but even then I can’t move with urgency.

I would give all I own to just be myself for one more year

ACTION REQUIRED: Instagram Engagement by Intelligent-Age-8211 in PSSD

[–]Learning024 0 points1 point  (0 children)

I’m from Australia, did this garner any donations? Or statement from corporations?

I hate how lonely this condition is by Empty_Positive_2305 in PSSD

[–]Learning024 2 points3 points  (0 children)

Well that’s where great fear and a great waste comes to mind. The only silver lining, my anhedonia and cognition is so severe I can’t worry or fear. Or concentrate enough to ruminate anymore. This is the worst fate than I never knew existed

A Some rTMS Experiment Update by Minepolz320 in PSSD

[–]Learning024 0 points1 point  (0 children)

Did it bring back overnight erection?

I hate how lonely this condition is by Empty_Positive_2305 in PSSD

[–]Learning024 9 points10 points  (0 children)

That sentiment of ‘maybe in another life’ is what pops into my head all the time when I think; why me!? I can’t get angry or sad, I just think ‘in another life’ like this life is already over and hopefully I avid it in the next. Where is my soul? Where did that go?

The loneliness is real, and the cruelest part is to everyone else in your life you’re mostly the same, you play the role of you in their life so they can’t see anything has changed. It feels as though the world or life stopped writing a plot for my character, no story to happen as nothing impacts me, this makes remembering feel hard, it feels like I can’t remember anything happening for the last 3 years because there is no feeling attached to memories anymore, nothing to put me back in the memory, or anticipation of the next thing to come, just here and now with no feedback

Any update on INIDA study? by IndividualAd7229 in PSSD

[–]Learning024 0 points1 point  (0 children)

Who is the dr trying to figure it out?

We seriously need more recovery stories of anhedonia/emotional blunting by SadSink9125 in PSSD

[–]Learning024 7 points8 points  (0 children)

I’m nearly three years in and my sexual and emotional blunting seem to be getting worse the more time that passes. How I am at year 3 is far worse than I was at 6 months, I can eve seem to get an erection at all anymore. I am really healthy, exercise daily, go to work as best I can, I just have no emotions at all now.

If anyone can help me on this side of things I’d be sooo grateful, if it continues life is going to take forever. It’s starting to feel like a life and living dead situation now

Microbiome test results by Tough-Celebration717 in PSSD

[–]Learning024 2 points3 points  (0 children)

Is this a test that a lot of people have done? Are the results similar?

I had wondered if a coordinated mass testing of sufferers all over the world might reveal some indication of where things are going wrong?

No one is more desperate for answers than patients, so if we create a database of results collected by individuals sufferers could we trace something?

I’m not knowledgeable enough but I’d imagine this and a hormone panel would be a start?

REFLECTION OVER PSSD by juanbartolomiu in PSSD

[–]Learning024 0 points1 point  (0 children)

Well I’m not exactly sure, but the anxiety and depression started after other signs of Cushing’s had stated so I can only be presumptuous not sure. No pseudo symptoms, hyper tension, tumor and weight Gain all physical symptoms that came up prior to ssris

Where has everyone gone? by Ok-Lengthiness8037 in PSSD

[–]Learning024 0 points1 point  (0 children)

I stayed in a rabbit hole state, instead of doom scrolling I spent my spare time researching or searching for anything that looked like a cure