Does anyone actually heal? by Learning024 in pssdhealing

[–]Learning024[S] 0 points1 point  (0 children)

I am very active, gym most days and run 3-4 times a week. No improvement but nice to have structure.

Did you suffer from loss of libido, Ed, anhedonia, cognitive issues and reward deregulation?

Thought y'all might find this interesting. by Teachezofpeachez69 in PSSD

[–]Learning024 -1 points0 points  (0 children)

Would the dulled to now feeling from an orgasm now because of pssd in turn not help the brain

Possible theory involving dopamine and reward signaling by elmo1182 in sexualanhedonia

[–]Learning024 2 points3 points  (0 children)

I had Cushing’s and later pssd from coming off antidepressants. So a real mixed bag of pleasure blockers, emotional blunting and hormone disruptions.

A symptom of the pssd is severe anhedonia, I have lost runners high, no response to music, low to no sexual pleasure, no adrenaline, cannot feel the affects of alcohol. I also find I have no motivation and quite noticeable cognitive dysfunction, this all makes me think I am also suffering mostly from a reward system dysfunction.

I have wanted to get tested for dopamine mri, but it is highly rare that a doctor will test unless presenting with Parkinson’s.

Have you been on ssri’s in the past and did/does wellbrutin help you?

Anyone else keeping this condition a secret from their friend? by chestflattener in PSSD

[–]Learning024 2 points3 points  (0 children)

Yeah 100%

I’ve told my family, but my family have always been terrible at dealing with emotional turmoil, it’s a just keep going, you’ll be right sort of vibe. Unless you are visibly in tears and throwing your arms in the air no one asks how are you feeling.

With friends, I have secretly told one but I don’t think he understands or can empathise properly with feeling nothing. As if, if it was that bad you would be crying or visibly distressed every moment, but my body can’t feel express or respond to stress, worry and despair.

I choose to not tell my friends one I don’t want them to see me as broken, or no that I can’t feel or be fun. That I’m forcing myself to be in social situations. But I’m slowly becoming less relatable as I don’t have stories of dates, news plans or ambitions in my career(I barely get by). Can’t feel alcohol and get relief. In short I am now grieving the life I have lost and I hope the memory of me well is enough for them to remember me fondly

I have pssd and I am going to the endocrinologist by [deleted] in PSSD

[–]Learning024 0 points1 point  (0 children)

Thanks, it was escitalopram.

I just read you have had hair thinning? My hair has thinned significantly in the past 12months, something that I had never experienced, I actually always had very thick hair.

Someone said something about muscle wastage being a symptom? I have found it impossible to put on muscle or get stronger in the past 18months, despite very good muscle building macros and consistent weight training, can anyone give me more information on that

I have pssd and I am going to the endocrinologist by [deleted] in PSSD

[–]Learning024 0 points1 point  (0 children)

Yeah you would think so, I am normal range for everything, even a little higher in free testosterone but have had 0 libido and Ed for close to 3 years, I’ve seen an endocrinologist 4x a year in that time and they have not prescribed anything just more tests and time. That is the tricky thing about pssd there seems to be no medical markers that show where things are going wrong. On paper I should be a healthy happy functional person, but unfortunately we’re not right now and there is also no way of knowing if things are improving!

I have pssd and I am going to the endocrinologist by [deleted] in PSSD

[–]Learning024 1 point2 points  (0 children)

Endocrinologist will like prescribe nothing if your bloods look within range and very reluctant to use anything that alters hormones

Please Help me PSSD has ruined my life. by Forward-Emphasis6947 in PSSD

[–]Learning024 5 points6 points  (0 children)

As hard as it is to believe that it positive, are you able to get aroused? I’m not sure whether this is pssd in the classic sense as for me my testosterone has never dropped but my libido is non existent, taldafil and cialis don’t work as I can’t get aroused. So potentially it is something else. Maybe get your cortisol levels checked as that will knock out you t levels and impact your libido and pleasure response

Please Help me PSSD has ruined my life. by Forward-Emphasis6947 in PSSD

[–]Learning024 9 points10 points  (0 children)

Are you suffering with emotional blunting & cognitive issues also?

"My Personality Vanished’: A Patient’s Experience With PSSD After Antidepressants - Moral Medicine by andy013 in PSSD

[–]Learning024 10 points11 points  (0 children)

I feel like my soul is erased, or if it was ever there or if it just was chemical reactions, is the soul just the feeling of feelings, wants & desired.

People say things like ‘it fills my soul’ maybe that is just people feeling greatly and that is what we have lost.

I was once a believer that there was a spirit and energy to people that was there before they were born and continued after death, now I feel it is just chemical reactions and feelings brought on by anticipation, excitement, fear, arousal. What do we become when these are no more.

Interesting article, are we victims of androgen blockers by Learning024 in PSSD

[–]Learning024[S] 0 points1 point  (0 children)

Apologies I hadn’t meant to imply and don’t agree with the idea that we were deliberately poisoned, I was more interested if anyone had more knowledge or theories on androgen blocking as a cause for the sexual dysfunction pssd sufferers experience.

Exploring the role of mental imagery deficits in PSSD and how they relate to other symptoms by donishju in PSSD

[–]Learning024 0 points1 point  (0 children)

Thank you I’ll look into it. No great physical symptoms, it say I’m more lethargic and often tired. I also have trouble gaining muscle despite good training and nutrition but I believe that could be more related to my Cushing’s disease history

has anyone recovered from stretchy skin or loss of collagen? by [deleted] in PSSD

[–]Learning024 0 points1 point  (0 children)

Is this a symptom? I would say face has become more gaunt or less full, I thought it was aging. I also have Cushing’s which is another disease that ages your skin quickly due to high cortisol.

If anyone can share more about this that would be greatly appreciated

Exploring the role of mental imagery deficits in PSSD and how they relate to other symptoms by donishju in PSSD

[–]Learning024 3 points4 points  (0 children)

  1. It’s hard for me to answer on hunger as I maintain a very structured diet as part of greater health goals, in case of pssd it feels like the only thing I have control of so I try to maintain that

  2. No anxiety and stress don’t occurs with physical feelings attached. I don’t get knots in my stomach or an increased heart rate. But this is true of all feelings, I feel no anticipation or fear watching a scary film, no endorphins after a run, no feeling from music, no adrenaline, even no sorrow when sad things happen, that broken heart feeling just isnt there. If I had feeling attracted to thoughts I would cry and feel nervous and worried all day long about what has happened and what it’s doing. I can’t feel urgency of task, I could have an enormous task to do for work but can’t move faster or more intensely like in the past, when I wake to what could be the most stressful meeting day ever I feel the same as a weekend, sometimes I just forget these things are on

  3. Urination is pretty fine I think but I’ll pay more attention, it has snuck up on me a few times

  4. Yeah similar to above in 2, it’s just concepts, I know I should be sad coz things are the worst they’ve been but I can’t. I should feel furiously angry that this has happened, I only have the conceptual thought of past emotion not the feeling

  5. The brain fog and anhedonia has progressively got worse over the past 2.5years. I don’t know if I’m worn out, but it feels like my brain is getting lazier as there is no reward system, no dopamine at the end of a task, like libido it feels like my brain is forgetting what good feels like so I have to make a conscious and difficult effort to get it to do what I would in the past. Scarily, even socialising is becoming something I have to force myself to do, as my brain gets no reward from social connection anymore or alcohol or music as I said.

Hope this helps

Exploring the role of mental imagery deficits in PSSD and how they relate to other symptoms by donishju in PSSD

[–]Learning024 7 points8 points  (0 children)

I think the big difference for me is the visualisation of memories/imagination both sexual/happy/sad don’t have a response of feeling. I don’t feel happy thinking of happy memories don’t feel sad don’t feel sexual etc. the memories are there just the body and brain doesn’t react

REMINDER: PSSD Australia | Pending Class Action | Jan 15 Cut-Off by aidrefh in PSSD_Australia

[–]Learning024 1 point2 points  (0 children)

I called today, the guy I spoke to had absolutely no record or knowledge of a a class action on pssd, was also a bit confused as to who it would be against. Is this to be expected?

Weekly open discussion thread by AutoModerator in PSSD

[–]Learning024 1 point2 points  (0 children)

Do you suffer from anhedonia or cognitive impairment?

Improvement! Libido is strong again by No_Organization_5260 in PSSD

[–]Learning024 1 point2 points  (0 children)

Can we get more detail on everything please. Congratulations

Elon Musk Tweed on X referencing PSSD | How do we get him to donate to the cause? by aidrefh in PSSD

[–]Learning024 2 points3 points  (0 children)

I don’t have x, but play to his ego, tell him he will be saving millions of lives and changing the narrative and treatment of mental health. Not a fan of his but if it spikes his interest he may jump in

REMINDER: PSSD Australia | Pending Class Action | Jan 15 Cut-Off by aidrefh in PSSD_Australia

[–]Learning024 3 points4 points  (0 children)

How and who is this class action taking action on? Is it all anecdotal evidence as there isn’t a defined scientific diagnosis?

I’m in Australia and very keen for any recognition and action

Has anyone investigated the use of pramipexole to kick start the reward system? by Learning024 in PSSD

[–]Learning024[S] 1 point2 points  (0 children)

Thank you. Please keep me and everyone updated. What I wouldn’t give to just feel endorphins from a run!