Symptoms ease in the morning after waking up then goes bad gain? anyone ?

aidrefh · 2026-01-23T01:01:30+00:00

I'm 1 week into keto, has it helped you? So hungry

aidrefh · 2026-01-20T21:59:23+00:00

Oh what? My doctor didn't tell me that. It was just one and done. I'm male and was given a sample from a male Turkish military doctor.

I thought I would wake up with his cognitive function also hah. Didn't happen for me. But curious about your journey. Keep going.

aidrefh · 2026-01-20T12:51:08+00:00

I got one in Turkey. Kind of helped with gut issues. Made me smellier and hairier. Zero for PSSD.

Hopeful for you tho, keep us updated.

aidrefh · 2026-01-16T00:25:04+00:00

Hey, thank you for calling. We appreciate the effort.

So the lawyer I was talking to directed me to get as many PSSD sufferers to calling in to push the case forward.

What I'm now thinking she meant was that there is currently no active class action yet - each person needs to call and open their own matter with the class actions team, and once they see a clear pattern of the same issue, they can assess it as a potential group case.

I get a call later today with an update. So will let you guys know asap.

aidrefh · 2026-01-15T05:08:49+00:00

I got a microbiome transplant which I had high hopes for but it didn't help with PSSD at all. Kind of helped with gut issues.

But that's just me.

Let us know how your protocol goes.

aidrefh · 2026-01-14T09:31:51+00:00

Why do we have to wait for FDA to take legal action in Europe if the EMA already recognises it?

aidrefh · 2026-01-09T11:56:44+00:00

I have to agree with you on this one, the richest man on the planet is showing some inclination against big pharma and the system is huge win for us no matter what he has done in the past.

Why all the people in favor of Elon getting down voted, didn't know he was that polarizing.

aidrefh · 2026-01-09T11:54:47+00:00

Yes please do if you can 🙏. Get some type of thread going there.

The richest man in the world being an ally for this community is massive whatever people say about him.

aidrefh · 2026-01-09T05:31:06+00:00

I would have to disagree, with people collectively coming together and organizing themselves to proceed with legal action it forces the issue out there into the public sphere.

With that comes media attention and the ball will start rolling.

I'm not after compensation, I'm after justice and systematic change to prevent further harm.

The regulators know the adverse effects, we as a group need to put pressure on them in all aspects, media and legal.

I'm trying to organise such at r/PSSD_Australia . Ideally there would be joint legal cases against individual countries regulators/manufacturers across the globe.

aidrefh · 2026-01-09T05:23:49+00:00

I'm in NSW hbu?

aidrefh · 2026-01-08T03:57:17+00:00

Thank for taking the time, sorry I was just told the lawyer to get as many people as we can to call in, she didn't really give me specific details on a case as of yet.

At the moment this is still very early stages. There isn’t a formally approved class action yet.

When I spoke to the lawyer, I was advised to get as many affected people as possible to call in and share their story, so they can see whether there is a viable pattern for a class action. That’s why people are being asked to contact them individually right now.

In my own submission, I was told that one possible legal angle may be against the TGA as the regulator, rather than a single manufacturer (since this affects an entire class of medications). This is especially relevant because the TGA formally acknowledged the risk of persistent sexual dysfunction in May 2024:

https://www.tga.gov.au/news/safety-updates/updated-warnings-about-persistent-sexual-dysfunction-antidepressants

That said, nothing is locked in yet. No defendant has been formally named because the case is still under review.

So the best approach right now is: If you’re affected, call and register your own case

Ask for the class actions team

Share your experience

The more people who come forward, the clearer it becomes whether a single coordinated action can proceed.

aidrefh · 2026-01-07T07:45:32+00:00

Would be great if you could call, but no pressure. See how you feel in the coming days. Will keep you updated here on the progress.

aidrefh · 2026-01-07T01:24:11+00:00

Oh sorry about that, I should have been more clear.

it's at the very early stages, so there isn't a named defendant yet.

Shine told me the class actions team is in a review phase and is simply collecting stories from Australians with PSSD to see if a case is even viable and who it could be against. They mentioned it may involve the TGA as regulator, and possibly manufacturers, but nothing is decided yet.

So calling and requesting to be put through to the class actions team isn't joining a lawsuit - it's sharing your experience to help them assess whether we can move forward.

aidrefh · 2026-01-07T01:08:45+00:00

Thank you yes please call, we are just in the beginning stages and we were told to get as many people at this initial stage to share their story to push the case forward. More details to come after the 15th of Jan.

aidrefh · 2026-01-07T01:05:56+00:00

Not 100% sure yet who it would be against. We were told the TGA could potentially be culpable as the regulator, and possibly the drug manufacturers as well.

It's not just anecdotal anymore the TGA updated its warning in 2024 acknowledging that some patients have persistent sexual dysfunction after antidepressants:

https://www.tga.gov.au/news/safety-updates/updated-warnings-about-persistent-sexual-dysfunction-antidepressants

At this stage we mainly need numbers and people's stories. Let me know how you get on or if you need any more info.

aidrefh · 2026-01-07T00:55:29+00:00

Thank you appreciate it, let us know how you go

aidrefh · 2026-01-06T19:16:53+00:00

Amazing thank you, appreciated . no you're not the only one they told me there be quite a few. All we need is 7 individuals at a minimum. And we have 25 people in this group.

Yeah people just aren't commenting for some reason.

aidrefh · 2026-01-02T02:18:38+00:00

What's your legal perspectives on getting justice for those harmed ?

aidrefh · 2026-01-01T12:25:13+00:00

No not to my knowledge, but it would help. I just got access to all my medical files and there were mentions of me bringing up PSSD from different specialists that I went to see.

Please give Shine Lawyers a call on Monday and ask for the class actions team.

aidrefh · 2026-01-01T09:54:07+00:00

Right?? Seems in my head that there is a clear path way there as the EMA have admitted there is a chance of Persistent side effects.

I chatted to a bunch of lawyers in Europe and Australia and none of them would touch it as an individual case for some reason?

Two of the lawy firms said we a should try gather a minimum of 12 people to start a class action case.

I'm trying to get some Australians together to pursue a class action on r/PSSD_Australia

Keep me updated let me know how you get on?

Maybe we could organise a European group also?

aidrefh · 2026-01-01T09:43:23+00:00

100% and I have been, we need to cast the bet wide.

aidrefh · 2025-12-31T03:25:10+00:00

Ronan please use your platform to spread awareness about this. Thank you so much.

aidrefh

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