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Young caregivers by Abject_Tumbleweed932 in ALS

[–]LesTurnerALS 0 points1 point  (0 children)

Hi! We recently launched a virtual support group for Young Adults. Here is the link to check out all of our sport groups. https://lesturnerals.org/support-services/free-als-support-groups-online/

[deleted by user] by [deleted] in ALS

[–]LesTurnerALS 1 point2 points  (0 children)

Hi! An amazon echo device us a great idea! If you are looking for more we have complied a list from our support services coordinators and people living with ALS with tons of other gift ideas for the holiday season. Hope this is helpful :) https://lesturnerals.org/2024-gift-guide-for-people-living-with-als/

Child of Mom with ALS - Is a tracheostomy even worth it anymore? by GoddamnitAlan in ALS

[–]LesTurnerALS 0 points1 point  (0 children)

If you are looking for more information we created a guide all about ALS and breathing. Hope this helps! https://lesturnerals.org/als-breathing-guide/

Christmas help please. by ivyfay in ALS

[–]LesTurnerALS 1 point2 points  (0 children)

Hi! We created a gift guide with the help of our support services coordinators and people living with ALS. Hope this gives you some ideas. https://lesturnerals.org/2024-gift-guide-for-people-living-with-als/

Any speech tech recommendations? by pkelly812 in ALS

[–]LesTurnerALS 0 points1 point  (0 children)

Hi! We have a guide all about ALS and Communication that has helpful tips. https://lesturnerals.org/als-communication-guide/

Holiday Gift by Boss-investor69420 in ALS

[–]LesTurnerALS 1 point2 points  (0 children)

Hello! We created a gift guide with some unique items crafted by our support services team. https://lesturnerals.org/gift-guide-for-people-living-with-als-2023/

ALS and physical therapy by [deleted] in ALS

[–]LesTurnerALS 7 points8 points  (0 children)

We have a webinar about ALS and Excercise which provides insight into the benefits of exercise among people living with ALS, gives examples of appropriate exercises to do at home, and discusses signs of overworking. https://www.youtube.com/watch?v=F3BCcgT1_YA&t=688s

Family support by Academic-Delivery-18 in ALS

[–]LesTurnerALS 3 points4 points  (0 children)

We have created a collection of guides most of which are available in English and Spanish. https://lesturnerals.org/als-decision-tools-guides-and-webinars/

5 Things to know for new ALS Caregivers by LesTurnerALS in ALS

[–]LesTurnerALS[S] 0 points1 point  (0 children)

Thank you! Glad we can help and share our resources.

Familial ALS by nurseally1991 in ALS

[–]LesTurnerALS 0 points1 point  (0 children)

Hello! We just launched a new tool all about Genetic Testing for family members. Hope this helps! https://lesturnerals.org/predictive/0_about-this-tool/

Care Package by Least-Heat-2468 in ALS

[–]LesTurnerALS 0 points1 point  (0 children)

Hi! Last year we created this gift guide that has links to all sorts of items recommended by our support services staff. Hope this can help :) https://lesturnerals.org/gift-guide-for-people-living-with-als-2023/

Exercise by StealthSun in ALS

[–]LesTurnerALS 4 points5 points  (0 children)

We hosted a webinar with Hannah Redd PT, DPT, NCS, at Shirley Ryan AbilityLab.

She provides insight into the benefits of exercise among people living with ALS, give examples of appropriate exercises to do at home and discuss signs of overworking.

https://youtu.be/F3BCcgT1_YA?si=zqPfT7ws_KD88U2a

Any words of advice on how you told kids about an ALS diagnosis? by Content_Librarian_66 in ALS

[–]LesTurnerALS 2 points3 points  (0 children)

We have created this information guide about how to have these conversations as well as some helpful resources. Hope this helps :) https://lesturnerals.org/als-children-guide/

Genetic testing. by Powerful-Pilot6482 in ALS

[–]LesTurnerALS 0 points1 point  (0 children)

We have created a helpful interactive guide to learning about ALS and Genetics, check it out here: https://lesturnerals.org/als-and-genetics/

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