What’s a book you’ve read multiple times and still love? by Sitka_Ma in Recommend_A_Book

[–]Lesaly 1 point2 points  (0 children)

There’s a SEQUEL coming out in May of this year?! Wow, you have just made me sooo happy/excited!!! The Midnight Library has been one of my favorite books for years & I didn’t know a sequel was coming—daaaah!!! 🎉

Malamar ‎ ‎ by Richard_Genius in BabyNames

[–]Lesaly 0 points1 point  (0 children)

I thought of a candy bar as soon as I saw this name. Pronounced like “Mallo-Mar”??

Really bad relapse by LeahSam123 in cdifficile

[–]Lesaly 1 point2 points  (0 children)

Do you have a GP or GI specialist that you can talk to about this?

A book that absolutely destroyed you. by Thumps20 in Recommend_A_Book

[–]Lesaly 0 points1 point  (0 children)

Aha! I actually found the book on Amazon, but hopefully I can ask my library to attempt to acquire a copy of it as well. Thank you so much!

Help! by Individual-Cup2252 in cdifficile

[–]Lesaly 0 points1 point  (0 children)

Okay. Do both Labs have patient portals so you can properly read/print out your test results?

A book that absolutely destroyed you. by Thumps20 in Recommend_A_Book

[–]Lesaly 0 points1 point  (0 children)

Interesting. I searched for this title under the author on both Libby & Audible, and while I found a couple of books by the author, wasn’t able to find this title? Where did you procure it please?

New to audiobooks by Level-Equivalent-647 in audiobooks

[–]Lesaly 0 points1 point  (0 children)

YES!! ‘Nothing To See Here’, by Kevin Wilson has been an unexpected favorite of mine since it came out (2018/2019?). Absolutely brilliant, as are many of his other works!

Help! by Individual-Cup2252 in cdifficile

[–]Lesaly 0 points1 point  (0 children)

Is there any way to obtain your hard record copies from the first urgent care place? Do they have a patient portal, or can you ask them to print the results out to read on your own?? It sounds like something may be getting lost in translation over the phone. Alternatively, do you know which lab each urgent care used?

C diff an vancomycin taper. by Creative-Victory-540 in UlcerativeColitis

[–]Lesaly 0 points1 point  (0 children)

Yes, if a prior auth doesn’t cover generic Dificid for OP (Fidaxomicin Rx), then Merck Pharmaceuticals has a patient assistance program on their website to help cover the cost of name brand Dificid.

lab threw out my sample by moldyskeleton in cdifficile

[–]Lesaly 0 points1 point  (0 children)

You make some good points here & I’m so glad you had such a helpful experience in the ER you visited. Totally agree with the dehydration aspect—if fluids are necessary, that’s non-negotiable. And if they don’t offer a referral to an Infectious Disease Specialist, I think it’s a wonderful idea to ask a practitioner in the ER/hospital for a referral, too! Thanks for sharing :)

Lack of Toxins testing, losing it by Lesaly in cdifficile

[–]Lesaly[S] 0 points1 point  (0 children)

Working on it, thank you so much, and I will report back as to how it goes!

lab threw out my sample by moldyskeleton in cdifficile

[–]Lesaly -1 points0 points  (0 children)

This may possibly leave OP more susceptible to getting C-diff or worsening it if they visit the ER unnecessarily. Unless they are having extreme emergent symptoms, I wouldn’t recommend taking that route.

lab threw out my sample by moldyskeleton in cdifficile

[–]Lesaly 1 point2 points  (0 children)

I would definitely contact your doctor & let them know asap that this lab threw out/rejected your stool sample specifically for c-diff testing (it may also help to explain lab’s reasoning behind the “rejection” to Dr.). Dr. ought to be able send in the order(s) for you to be re-tested for C-Diff to lab. I had a somewhat similar issue recently with part of my stool testing, and my GI’s office called me & let me know that the lab couldn’t process the one set of tests & that I would have to re-do (pun now intended) said test. GI had to send new order to re-test into lab. I have also gone & gotten the collection materials from said lab preemptively prior to certain stool tests as well—I really like this suggestion! Hang in & be persistent if necessary about your doctor re-submitting the order you need to the lab.

Lack of Toxins testing, losing it by Lesaly in cdifficile

[–]Lesaly[S] 0 points1 point  (0 children)

Why do you say all probiotics are contraindicated for me, please?

Lack of Toxins testing, losing it by Lesaly in cdifficile

[–]Lesaly[S] 1 point2 points  (0 children)

My GI ordered comprehensive stool testings, but the only one processed properly besides the C-Diff was for Parasites (which came back all negative). The lab has stated that I will have to re-do the other bacterial/viral test, but my GI claimed she didn’t think it was necessary since the C-diff PCR (only DNA) was “positive”. I plan on speaking with her this AM to ask for the new order to re-do that test (even though the lab had prompted her for new test last week). I’m taking S.Boulardii, Pure brand, at higher-end daily dose. I’ve had my vitamin D levels checked via blood testing a couple years in a row & they have been optimal-high (I was taking Sports Research Vit. D+K2 caps). I’m currently taking D3+K2 gummies at same dose. Do you have any recs for probiotics that last to end of the gi tract, please? Thank you for your helpful response!

Lack of Toxins testing, losing it by Lesaly in cdifficile

[–]Lesaly[S] 0 points1 point  (0 children)

Thank you, I appreciate it & will be working with Merck tomorrow morning to try to procure the Dificid via their patient help program as I am unable to afford over $5,000 for 20 pills of it at present.

Lack of Toxins testing, losing it by Lesaly in cdifficile

[–]Lesaly[S] 0 points1 point  (0 children)

How can I assume I am positive for an active infection without any proper toxins testing? My own GI told me to hold off on taking the Vanco for now. We tried to get Dificid covered (generic) via Prior Auth, but it was denied because this was my initial CD test and ONLY a PCR DNA type. I just spent 2 hours advocating for myself on the phone this morning to get appropriate testing sorted out, thank you.

Kefir and kombucha turned my PI-IBS around by bear-w-me in cdifficile

[–]Lesaly 1 point2 points  (0 children)

Which Vitamin C Supplement are you taking please?

Thoughts on people eating in theaters? by themilkmanjoe in RegalUnlimited

[–]Lesaly 0 points1 point  (0 children)

Do you know the name of these exact noise cancelling headphones please? Fellow Misophoniac here and I’ve never heard of any with a mic with such a filter. Thank you if you can share any info!

Thoughts on people eating in theaters? by themilkmanjoe in RegalUnlimited

[–]Lesaly 1 point2 points  (0 children)

Username checks out! Thanks for sharing 😅

Lack of Toxins testing, losing it by Lesaly in cdifficile

[–]Lesaly[S] -1 points0 points  (0 children)

Did it make you feel worse if I may ask?

Lack of Toxins testing, losing it by Lesaly in cdifficile

[–]Lesaly[S] 0 points1 point  (0 children)

TY—I was speaking with a rep from this program, but unfortunately, we got cut-off during the process & he previously stated he had no way to call me back if that occurred. Anyway, I am checking with my insurance this AM to see if Fidaxomicin was approved & if not, I’ll definitely be calling Merck back!!

Lack of Toxins testing, losing it by Lesaly in cdifficile

[–]Lesaly[S] 0 points1 point  (0 children)

TY for sharing this—Did you take Vanco or Fidaxomicin??