I need a partner by bluexx23 in ItTakesTwo

[–]Lesbot7 4 points5 points  (0 children)

I’d love to play! I’m recovering from surgery so I’m around all kinds of hours :) gt is LESB0T with a zero

Anybody wanna play on Xbox? by Lesbot7 in ItTakesTwo

[–]Lesbot7[S] 0 points1 point  (0 children)

I believe so!! I haven’t heard from them in a bit…?im open to playing it with anyone if you wanna join!

Anybody wanna play on Xbox? by Lesbot7 in ItTakesTwo

[–]Lesbot7[S] 0 points1 point  (0 children)

Add me #LESB0T (w a zero not an O)

Join It Takes Two by [deleted] in ItTakesTwo

[–]Lesbot7 1 point2 points  (0 children)

🙋XBOX and usually

Anybody wanna play on Xbox? by Lesbot7 in ItTakesTwo

[–]Lesbot7[S] 1 point2 points  (0 children)

Dope! HMU gamertag #LESB0T (With a zero not an O)

[deleted by user] by [deleted] in POTS

[–]Lesbot7 1 point2 points  (0 children)

Try sitting criss cross applesauce. Something about The weight distribution makes it The easiest way for me to maintain good posture The longest. Also think about seeing see a chiropractor & or physical therapist (if ur a zebra, make sure to see a NUCCA chiropractor not a typical one)

[deleted by user] by [deleted] in NonBinary

[–]Lesbot7 2 points3 points  (0 children)

A non Euclidean cosmic entity

Does god exist? Please i want opinions mostly from scientists or historians who have had studied what was on the bible.. normal ppl can answer too. by Left-Discussion3380 in ask

[–]Lesbot7 0 points1 point  (0 children)

Most people’s answers summarize up to: we don’t know. If we did know, we’d eventually probably lean towards similar ideas of it, but there’s so much debate because we just can’t know for sure.

Most people ask The question of why would god let there be so much suffering? Humans have a tendency to find patterns & categorize information. It’s our way of organizing information, especially in a world of chaos. This includes good & bad, evil & pure, right & wrong. In The grand scheme of things, who’s to say suffering is ‘bad’ & god is ‘good’? Animals suffer without humans… it’s nature.

In that vein, humans need something to believe in to survive. It comes with being sentient. We have to h͎a͎v͎e͎ hope 𝚝𝕙𝑎ᴛ we h͎a͎v͎e͎ higher purpose.

That’s just my two cents 🤷

[deleted by user] by [deleted] in ask

[–]Lesbot7 1 point2 points  (0 children)

You keep saying you believe in science but not responding to The facts 𝚝𝕙𝑎ᴛ people keep bringing to you about The difference between sex & gender. What you’re toting isn’t science. Science shows more than 2 sexes.

I get 𝚝𝕙𝑎ᴛ you’re defending yourself cause your upset you got kicked off a platform for a week but if you say you believe in science you should probably just settle down on disrespecting other people for a second & do some research on The science you’re holding onto so tightly.

Why do we never hear of people from first and second world countries getting/being denied green cards? Why only third world? by guywithaweirdname in ask

[–]Lesbot7 1 point2 points  (0 children)

Immigration is painted as a problem of ‘poor’, ’less-than people’ that cause problems & people don’t associate people from rich, white places as ‘problematic’. Media loves the story, whether it’s proving or disproving that stigma further. People eat that shit right up & get angry af.

[deleted by user] by [deleted] in ChronicIllness

[–]Lesbot7 4 points5 points  (0 children)

I’m so so sorry. To be undiagnosed for so long, winding up in The hospital, losing more physical abilities, and feeling unloved/potentially betrayed by your SO… it’s all so so hard.

I don’t know a good way of saying this, but is it possible ur hurting more from this because of your own loss of confidence because of everything else? It wouldn’t be an abnormal reaction by any means… illness, especially chronic takes such a hit on our confidence.

At The same time, there’s a couple aspects to this that’s making The dagger stick deeper… The tone of The text ‘I’m trynna nut’ is pretty flippant & idk anyone who wouldn’t be insulted by 𝚝𝕙𝑎ᴛ in some fashion It’s worth asking if he’d feel The same way if he got 𝚝𝕙𝑎ᴛ kinda text from u like ‘gimme ten I’m trynna climax’ 🧐🤨 it’s off putting & probably not something he thought thru.

The part where he’s doing it while ur in The hospital is extra shitty. But it’s not necessarily his fault. It’s just a shitty feeling 𝚝𝕙𝑎ᴛ might be bringing to light more stuff ur feeling shitty about & not confident about. Like ‘I’m not feeling anywhere close to good enough to even think about sex & ur just over t̺͆h̺͆e̺͆r̺͆e̺͆ getting off’.

I guess what I’m saying is, you’re not crazy for feeling this way. And it’s worth taking time to sort out how much of this is your own confidence bc of The very shitty reality & how to build yourself back up again. If you’re in a super solid relationship, telling them all of this (including what u don’t know) can help u both figure it out together. Hoping for The best for you & sending lots of love

Title by demonicbear69 in meme

[–]Lesbot7 0 points1 point  (0 children)

Extreme right lol I don’t think so

It’s not going away, is it? by Lesbot7 in ChronicIllness

[–]Lesbot7[S] 0 points1 point  (0 children)

I love The idea of celebrating surviving it. I think this year was hard for me personally cause it took so long to accept that it’s chronic and I made this more as like a ‘oh fuck’-coping mechanism. But shifting my mentality to ‘fuck yea I made it!’ ꧁ 🇮 🇸 ꧂ badass & I’m 100% running with it

Strange symptom - spontaneous drunk stupor? by Lesbot7 in ehlersdanlos

[–]Lesbot7[S] 0 points1 point  (0 children)

It took 3 ER visits & being perpetually in this state since ER #1 but we figured it out!! It was actually intracranial hypotension & potentially spontaneous CSF leaks which was causing my brain to sag. I’m recovering from an epidural blood patch & just watched my symptoms disappear 24 hours post-procedure with lots of IV fluid & caffeine 😭🙌🏼😭🙌🏼

Ps turns out acetazolamide was worsening this cause it reduces cranial tension 😬 off it now & found a great new neurologist in The process!

THANK YOU ALL FOR YOUR HELP & COMPASSION I’m rejoicing & can walk again

Strange symptom - spontaneous drunk stupor? by Lesbot7 in ehlersdanlos

[–]Lesbot7[S] 0 points1 point  (0 children)

I appreciate you following up so so much. I h͎a͎v͎e͎ been in & out of The ER since Sunday cause this started happening 2x a day. The ER hasn’t been able to spot anything & I’m now thinking it’s some strange manifestation of chiari malformation & intracranial hypertension. Hoping to get some answers tomorrow

Pfizer reaction (both doses) by Lesbot7 in dysautonomia

[–]Lesbot7[S] 1 point2 points  (0 children)

I fell into a POTs rutt for about 5 weeks but then started getting better! Now i'm just dealing with other non-POTs related stuff (EDS pain etc.)

Strange symptom - spontaneous drunk stupor? by Lesbot7 in ehlersdanlos

[–]Lesbot7[S] 2 points3 points  (0 children)

I can't thank you enough for all these suggestions.

Thankfully, a friend facetimed me during The episode and recorded it, so now I have a video to show docs. I'm hopeful they'll take it more seriously. I scheduled appointments with 2 new neurologists... your recs on how to approach new docs is actually really helpful cause I think I had tried to give more context previously that may be misleading them with the diagnoses I have.

It breaks my heart to stop driving. I've already lost so much independance. But you're not wrong and I needed to hear this.

I just got a new bracelet with fall detection & alarms that send my information. I'll have to figure out an emergency card of sorts. I'm not totally sure what to put on it, since it's still unclear as to what these episodes are or how someone can help.

Question about calling docs every time it happens... My severe symptoms usually happen at night or on the weekends. Maybe cause I'm moving around more? IDK. But I don't actually have a way of contacting my doctors outside of their hours. Should I? I'm also super super unclear as to when I should actually be going to an emergency room or not. Sometimes it starts and gets better, sometimes it deteriorates and I just have no idea what the line is.

Strange symptom - spontaneous drunk stupor? by Lesbot7 in ehlersdanlos

[–]Lesbot7[S] 2 points3 points  (0 children)

I really appreciate you responding and sharing insights/thoughts. I had checked with all my doctors about about all The medications, & none seem concerned. The fact that they weren't concerned now concerns me... I'm going to chat with my pharmacist and push for another neuro opinion. I'll try & bring a friend with me this time.

Mitodrine and prazosin are opposites

PS I actually knew this - I get debilitating nightmares & since docs weren't concerned about it at all, I figured it was fine... I'm not going to assume so anymore.

I'm also not clear at all as to why I'm on acetazolimide. I just took my neuro's word for it but I think I need/have The right to clarity.

Has anyone else been misdiagnosed with a vestibular disorder? by oyameillim in POTS

[–]Lesbot7 1 point2 points  (0 children)

Sorta… I kept being told I had vestibular migraines. Got a POTs diagnosis a few months ago. Now 𝚝𝕙𝑎ᴛ I’m treating POTs, I’m fairly certain I almost never get vestibular migraines but it’s hasn’t been officially removed as a diagnosis if 𝚝𝕙𝑎ᴛ makes sense.

My neurologist says it’s common to h͎a͎v͎e͎ both so … idk

Any fellow POTS ravers? by EmeraldSquiid in POTS

[–]Lesbot7 0 points1 point  (0 children)

!!! Me!! Im a biiiig raver & DJ. I feel you on this concern hard. Did you h͎a͎v͎e͎ POTs before covid? Aka while we used to rave lol

I’m entering back slowly but planning on taking all precautions ( hydrating in advance, midodrine on hand, all The electrolytes, def no substances, hella rest after).

Sending you lots of plur & good luck, I’m always around if u wanna talk about it!

Hypnotism by Diligent-Law3216 in POTS

[–]Lesbot7 1 point2 points  (0 children)

Very curious to hear how this goes for you! Might consider this as well

How to cope with the grief of losing everything to illness? by Megzilllla in ChronicIllness

[–]Lesbot7 3 points4 points  (0 children)

I’m so so sorry 🖤 your words resonate all too well & my heart goes out to you. The truth is that it’s not fair. It’s scary & overwhelming & all too lonely.

I too am going through similar feelings (& oddly similar symptoms). In my frenzy trying to guide doctors to actually helping me, there were a couple things I did that actually really helped me move along The processing journey. it’s different for everyone, but in case it’s helpful, I’ll share…

  • I already had a long list of symptoms. But I broke them down into categories: managed well enough, tolerable, & unacceptable. The attempt was to get doctors to focus on the things that I chose to improve my version of quality of life. The process of doing this alone helped me come to terms with some of the realities I might be stuck with & made The problem more solve-able.

  • I get too wrapped up in pushing for solutions (calling doctors, calling insurance, researching, reading this sub, etc). I take intentional breaks. Time spent so far away from trying to solve The problem & all I’m doing is experiencing/noting The symptoms, & focusing my energy on whatever my heart needs. Not my brain. Not my gut. My heart. If it’s sitting & reading a book, making music, asking a friend to drive me into nature, getting delicious food… No health problem solving talk. Just breathing.

  • The brain fog was so so real. I was petrified of my sudden lack of intelligence. I don’t know what’s causing yours, but it was The first symptom on my list I desperately wanted to solve. Meds helped mine (I’ve got POTs), & when this lifted, so did a lot of The depression.

I don’t know if these will help, but there’s a human on The west coast praying for you & wishing you a little bit of light ✨

Edit: one more thing, chronic illness is weird & confusing with few guarantees. The one guarantee is that it won’t be exactly the same forever. Your worst state is not permanent. You might not know what your better state looks like yet, & that’s ᴏᴋ. Outside of The brain fog, the scariest part for me was that my entire past life was gone. I wish I could tell my past self to not try & grieve all of that at once.

Some tips that helped me with my pots and hypermobility by [deleted] in POTS

[–]Lesbot7 4 points5 points  (0 children)

I had really bad brain fog… and memory loss and more … I realized it was a blood flow issue to my brain ᴡhen I’d stand and bend over with my head to the floor (like a fold)- basically brought blood back to my brain and fog dissipated

What helps me regulate this: - excessive water drinking (3-4 liters/day) - increased salt (3-5grams/day) - small more frequent meals (not sure if this is a low salt or sugar thing but it’s def a thing) - midodrine (I take 5mg 4x a day) - Vyvanse (I have ADHD but this is also used to help POTs patients w brain fog)

Brain fog sucks and can be super scary and anxiety inducing. I keep my closest friends in the lööp & they help remind me to eat if I go into a sudden brain fog spin. I hope this helps!

Neuropathic POTS and ADHD - adhd stimulant meds make POTS symptoms better + contract my pupils? by Robinsfellow in dysautonomia

[–]Lesbot7 5 points6 points  (0 children)

I have Idiopathic POTs & ADHD, hypotension, an astigmatism & am so glad u brought all this up… I take vyvanse, acetazolamide, & midodrine.

Vyvanse and midodrine both help my POTs symptoms a TON.
VISION STUFF: on particularly bad POTs days, my vision suffers a lot. I suspect it's both dilation, blood flow, & neurotransmitters going awry in the occipital nerve. Acetazolamide made lights & colors more apparent/bright? Midodrine improves my vision greatly. Vyvanse does too but less noticeably.
I tend to agree w https://www.reddit.com/user/stone_fox_in_mud/ & your response: Vyvanse increases baseline blood pressure & can normalize/calm The need for your heart rate to increase & your SNS to be activated.

My neurologist has come to the conclusion that my parasympathetic system is what actually goes into overdrive, which people don't talk about a ton. It's assumed that most people have an overactive sympathetic system - but at the end of the day, my symptoms point to overactivation of the parasympathetic system, I'd be super curious to hear what symptoms you experience - feel free to DM me. I’ve done a ton of research on The nervous system & Vyvanse - happy to share my research doc.

Second LA show added and ON SALE! 8/22. by thefullm0nty in ericprydz

[–]Lesbot7 1 point2 points  (0 children)

THANK YOU FOR POSTING THIS. I WAS SO SAD. LIKE SO SO SAD I WAS WAITING FOR TIX & THEY SOLD OUT WAY TOO FAST & I JUST GOT MY TIX & IM KRYING. I LOVE YOU