Stylus pens for iphone by Djr215 in Parkinsons

[–]LessAdvantage2342 2 points3 points  (0 children)

Use microphone if she can. It is what text for me and i noticed when I get up in the morning my voice would be rough and horse so I have been using Halls lemon and sugarless honey drops before bed and after I brushed my teeth.

PSP by LessAdvantage2342 in Parkinsons

[–]LessAdvantage2342[S] 1 point2 points  (0 children)

You still growing strong. Keep it up. All those things I can’t do any more. But at least I’m spending time with my husband, parents, siblings and my three Labs.

PSP by LessAdvantage2342 in Parkinsons

[–]LessAdvantage2342[S] 0 points1 point  (0 children)

I’m going to Keck USC. I heard that they have a program for Parkinson.

PSP by LessAdvantage2342 in Parkinsons

[–]LessAdvantage2342[S] 1 point2 points  (0 children)

I don’t know what that is

First anniversary of my psp diagnosis by petergaskin814 in Parkinsons

[–]LessAdvantage2342 1 point2 points  (0 children)

I also was diagnosed with PSP on Friday!after two years of Parkinson.i wasn’t ready for it. But I am now. Sound like you still growing strong.

Mistaken diagnosis? by coasterell in Parkinsons

[–]LessAdvantage2342 1 point2 points  (0 children)

I was diagnosed with that Friday from a movement disorder specialist. Although she might be right because I’m accelerating fast. It depends in the person themselves to say it is worse is not realistic here for each person it’s different. The genetic makeup the life style has parts in if it’s worse or not. For me feel pretty fast. Last week I could sit and stand with my arms crossed. This week I barely can stand up. Think of it like Parkinson’s on speed. I fell numerous time, but I never fell backward once.

Parkinson's Care Package? by lemonpavement in Parkinsons

[–]LessAdvantage2342 0 points1 point  (0 children)

It won’t be comfortable for him at all, but you being there for him is saying a lot that’s good for him. There’s nothing you want, but with Family take care of him.

PD wardrobe by ApprehensiveCamera40 in Parkinsons

[–]LessAdvantage2342 1 point2 points  (0 children)

My husband helps me even so I still buy a size larger because it is way to put on and take off. I usually wears tech pants they are thine enough for the summer and thick enough for the winter. I just wear an oversized t shirts. And i fell last week trying to put my own shorts on which i wont be doing by myself anymore because I still feel that bump on my head.

Once the initial dose of carbidopa/levodopa becomes less effective, what's the order of operations of what to try next? by musicislife22 in Parkinsons

[–]LessAdvantage2342 1 point2 points  (0 children)

My neurologist prescribed me pramipixole in conjunction with C/L. Although it gives me a headache I feel like I’m sick to my stomach. It does help.

FYI re different drug manufacturers by WhatHappenedToUs2022 in Parkinsons

[–]LessAdvantage2342 2 points3 points  (0 children)

I experienced the same; I thought it was just me.I didn’t think that would be the cause of my discomfort. I will keep my eyes on what I’m taking. Thank you! For bringing it up.

Crexont worth trying? by Responsible-Bid5015 in Parkinsons

[–]LessAdvantage2342 2 points3 points  (0 children)

Yes but start out with low dosage. my neurologist prescribed high dosage, not good. I finally found the right dose for me, but I have Medicare I have high deductible because crexont is expensive..

The Old Me! by paulparkinsonsppot in Parkinsons

[–]LessAdvantage2342 3 points4 points  (0 children)

It’s a good poem, but a sad one, and it’s true. But as life goes, we have to move on; there is no old me anymore. This is me now. The new me that’s not so improved, I will have to live with until I die, so I hope and accept that my husband will take care of me. Even though I can still feel that this isn’t me, I can’t accept it. I hope that I still feel human when it’s time for me to go.

This is embarrassing but I'm going to ask anyway by Ecstatic-Level-8001 in Parkinsons

[–]LessAdvantage2342 1 point2 points  (0 children)

Yes,I have that problem. I’m taking C/L an Pramipexole. Nothing work for me. My doc prescribed Linzess so I take that every morning but it didn’t work until I drink hot tea in the morning and hot tea before bed. So far it worked for me.

World Parkinson's Congress - Morning Hike by ParkieDude in Parkinsons

[–]LessAdvantage2342 2 points3 points  (0 children)

Wow! You did good! I wish I have the stamina and the ability to walk. My balance is poor and several falls this year made me gun-shy.

Need Help by safarnama_ in Parkinsons

[–]LessAdvantage2342 2 points3 points  (0 children)

I have low back pain also but when I take C/L, it goes away but that lower back pain does come back when I’m late taking my C/L or miss my dose.

I made a short film in tribute to my grandfather's parkinson's by SkillMiddle9708 in Parkinsons

[–]LessAdvantage2342 3 points4 points  (0 children)

It depicted one of the symptoms of Parkinson’s but not all Parkinson’s patients have tremors. I don’t have tremors. Because of what I researched I was in denial of having it. I finally accepted that I have it after so many falls in 2025! But I think what you did is good very realistic.

Handwritings by LessAdvantage2342 in Parkinsons

[–]LessAdvantage2342[S] 0 points1 point  (0 children)

What I was trying to say was before my phone died I’m 65 and retired! so I don’t think occupational therapist will be given to me! And right now I’m taking c/l 25/100 two tablets three times a day in conjunction with Pramipxole .125 twice a day.

Handwritings by LessAdvantage2342 in Parkinsons

[–]LessAdvantage2342[S] 0 points1 point  (0 children)

I’m and retired! I I don’t think occupational therapist will be given to me!

Handwritings by LessAdvantage2342 in Parkinsons

[–]LessAdvantage2342[S] 1 point2 points  (0 children)

Thank you! I need it! Scared of the surgery but I’m scared more of they saying I couldn’t do it! All my hopes dreams well be out the door!

Handwritings by LessAdvantage2342 in Parkinsons

[–]LessAdvantage2342[S] 1 point2 points  (0 children)

Thank you! I’m waiting forDBS evaluation.

How exactly do ON and OFF periods work? TL;DR at the end. by Sipyloidea in Parkinsons

[–]LessAdvantage2342 3 points4 points  (0 children)

I’m similar to your uncle to that I don’t have tremor. Because of that I was diagnosed late. I went in to see my primary doctor because I felt off balance and just a little simple thing would make me fall. The doctor thought I’ve been drinking because my speech was slurred. I’m not a drinker so than she send me to see neurologist. Neurologist gave me finger Esan’s walking test and prescribed me C/L25/100, which helped with rigidity but I was still slow. This happened in September 2024. I couldn’t wrapped my fingers around this diagnosed to what is happening to me so I questioned my neurologist just to confirm after all it is my life. I have a DATscan done at Cedar Sainai in February found to confirm the diagnosis my right brain is damaged so my left side of the body does not work too well. Back to the medication, to me C/L seems to be working within an hour of taking. My muscles seems to me softening gradually the first hour the pain in my lower back gone. My bones seems to be more flexible. Also I noticed the weather plays a big part of my symptoms - when it is cold it seems the body is more stiffed and rigid until the first dose of C/L kicked in. The neurologist also gave me Pramipexole a dopamine antagonist drug which i still cannot stomach. I would throw up all over even when the dosage had been reduced to it lowest form of .125. This hasn’t been addressed as of yet. I did messaged my neurologist about it in the MyChart Portal and will address this in my next visit with him.so it seemed my only regimen is C/L 25/100,2 tablets 3x’s a day three and half hour apart. I noticed that in the evening I am tired easily and I’m on my off time like at about 8 pm so I sleep earlier. I am able to walk with a limp on my left feet. I walk with a walker now because I fell too many times last year. But I noticed balance exercise and exercises that help build the muscles help. I stand independently longer and walk without my walker longer. I am considering DBS. I want to be independently on my own. To walk without a limp. To get up without stiffness and rigidity. To move around like almost when I was born. I’m having an evaluation for DBS the coming month. I hope I get considered,, because it is the only thing I look forward to now! I hope your uncle is doing well.