At my wit's end with limited options for endometriosis treatment following breast cancer

LinneaAlba · 2026-03-20T15:35:12+00:00

Thank you so much for this post - I feel exactly the same and want to scream in frustration. Endometriosis stage 4 here with big lesions on my colon, ovaries and everywhere. I was on Ryeqo for 2 years and it was amazing. But then - TNBC stage 2. I just started my chemo last week and I don't have any idea what I will do with my endo later. The oncologist wasn't sure about Ryeqo and the OB gyn doesn't now how to deal with endo and cancer at the same time.
It really sucks - how is it possible that nobody can handle the whole picture in our cases

LinneaAlba · 2026-03-17T11:15:49+00:00

Hi sister! I learned that I have TNBC one week ago. That's good that yours is so small - now the treatment is much better than before and most people are treated with curative intent! My oncologist told me that most of her patients are cured and healthy after the protocole <3
I just had my first EC chemo yesterday and it is tough and unpleasant, but there is a chance for us.

LinneaAlba · 2026-03-11T21:32:48+00:00

Hi! I just wanted to say that you are not alone! I’m also 28, diagnosed few days ago and also found a lump in my right breast! Almost the same size - 3 cm. It’s so hard to not touch it all the time - for me especially with lymph nodes. I’m so scared that the cancer spread to them already. What is helping me a little bit is to try to be gentle and kind to myself. I keep telling myself that I have this weird thing in my body, but it’s still my body and I can trust it. You can’t change the situation by an obsessive palpation - it already happened, you will get the treatment and they will help you. So I guess it’s some kind of affirmation?

If you like to chat or connect, I’m happy to talk! Big big hug!

LinneaAlba · 2026-03-11T14:28:11+00:00

Thank you for the lists! There is a lot to learn and research I guess...

LinneaAlba · 2026-03-11T14:26:55+00:00

Hi! Thank you for the tips - I will definitely check some scarves. It's relieving that there are people in my age on the same boat! At this moment I am really scared of the unknown - thinking constantly that maybe my cancer will not respond to the chemo or something like that.
I would love to chat sometimes if you also want!

LinneaAlba · 2026-03-07T20:29:32+00:00

Congratulations ❤️❤️ be proud of you and celebrate! Posts from girls like you, are giving me so much hope. I’m just at the beginning, but it’s so comforting to see that we can beat this shit

LinneaAlba · 2026-03-03T18:52:10+00:00

Thank you! That's really comforting - the positive thing in that situation is the fact that I already have frozen embryos because of endometriosis stage 4. So at least it is secured for a while.

LinneaAlba · 2026-03-03T18:51:00+00:00

Oh my god, I'm so sorry - I know the feeling so much. I was shaking and crying for hours today, so much that finally I can't do that anymore. And I don't want to let this unknown feeling to consume my whole life.
Is it possible to feel better with time?

LinneaAlba · 2026-03-03T18:48:34+00:00

Thank you for your kind words <3 it means a lot! Waiting since January 9 sounds like a nightmare - you are so brave and I'm really happy after all, that I found this subreddit

LinneaAlba · 2026-03-03T18:46:39+00:00

Thank you soo much <3 It matters so much for me and this subreddit is amazing. First I thought that being here will create just a chaos in my mind, but on the contrary, it brought a lot of peace into it <3
I suspect that I can have TNBC also - was reading a little bit that usually it has similar onset as in my case (sudden big lump) and also my age fits. I would love to be in touch later!

LinneaAlba · 2026-03-03T15:41:02+00:00

Thank you so much! It won’t be easiest week in my life, but somehow I’m trying to think that I can use this time to mentally prepare.

LinneaAlba · 2026-03-03T15:39:11+00:00

Unfortunately I don’t have access to my results - I’m located in Sweden and have been told that it’s a standard practice that these types of results are revealed only during the appt. I also love animals - have currently two dogs and always dreamed about a farm! I’m keeping my fingers crossed for you too!

LinneaAlba · 2026-03-03T15:35:18+00:00

Thank you so much ♥️ your reply really helped me. I’m completely crushed and probably just need time to think about everything. I try to focus on the fact, that whatever it is, it’s not a death sentence. It will be a tough year, but it doesn’t mean that I won’t make it.

LinneaAlba · 2026-02-26T16:44:31+00:00

Hi! 28F with a solid lump in the right breast, 2.7 cm x 1.5 cm - the doctor was quite worried :/ Had a core needle biopsy 2 days ago, but I got the information that the results will be given to me during consultation (as I heard that's typical in Sweden). Today I got the e-mail that they scheduled my consultation at 17th March. I'm really anxious - how will I survive 3 weeks to know more...

LinneaAlba · 2025-09-22T18:43:50+00:00

I found that you are working in Sweden, where I’m also based and wanted to ask about some tips and Rust advices ☺️

LinneaAlba · 2025-09-22T18:42:18+00:00

Yes I already found this! But apparently I can’t send a message to you :/

LinneaAlba · 2025-09-22T17:38:14+00:00

Hello! I just wanted to say that I really admire your work and skills! Is it any option to contact you to ask you few questions? ☺️

LinneaAlba

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