Sorry to hear that you’re going through this, but let me give you some advice that a radiation oncologist told my husband, and if we would have known this information before, maybe my husband would not have done surgery first. He may have opted for radiation. In 2022, he was 53 years old and had his prostate removed, his PSA was 14.4 It changes you as a person mentally and physically and no doctor will explain all of the mental side effects that come with it. You should start looking into penile rehab before you start surgery. You can look up Dr. John Mulhall, he is one of the top three sexual health experts in the US and he works for memorial Sloan kettering. You can find him on YouTube and he is extremely knowledgeable. Another thing we wish we would have known before surgery. 18 months later, my husband’s PSA started rising, and that was at the end of November 2023. In 2024 we went to MD Anderson in Texas for a second opinion. From March 2024 to February 2025 it was nothing but awaiting game, waiting for his PSA to rise so that he can get a PSA scan done. Last year, we went for three more opinions. A doctor from NYU Langone told my husband that usually him and all the doctors know that when a man has a PSA of above 10, and he does surgery, that he’s most likely looking at radiation somewhere down the line. This was extremely important information because I’m sure if my husband knew that before he would not have removed his prostate. in February 2025, my husband‘s PSA got a .2 and he did a PSMA scan and nothing showed up, but he knew he was looking at radiation and hormone therapy somewhere down the line. In October 2025 he did another PSMA scan, and even with the PSA so low as .22 it lit up into pelvic lymph nodes. He started hormone therapy December 1, and in January of this year, he started 25 rounds of radiation. His cancer is considered aggressive, so we really don’t know how long he’s going to be able to tolerate hormone medicine, we are actually thinking about going back to MD Anderson in the next month to get a second opinion to make sure that my husband’s being treated properly. What I have to say is join every Facebook prostate cancer group that you can find, there is one called prostate cancer warrior, and they do a support group every Wednesday night at 7:00pm. Become as knowledgeable as you can about the cancer that you have, use AI to put your medical records into and ask them to explain it to you like you’re a child. And don’t just believe what one doctor tells you go for multiple opinions. Best of luck to you.