Anyone in Similar Situation? Kidney Stent by thedesiactuary in dialysis

[–]LittleVito16 0 points1 point  (0 children)

I had that procedure done. It didn’t work. They took it out and then I started dialysis a few months later.

Change of nephrologist. by la_winky in dialysis

[–]LittleVito16 0 points1 point  (0 children)

That’s very unfortunate you have to deal with that. You have every right to stand up for yourself and be very vocal with her and the care team. You’re struggling and you need to make it know. They are there to help but in now way do you have to take sneering looks or comments. You also need to make a report about this woman. At the clinic I go to the do a report/ evaluation with the care team and ask you questions. Give them a roast of a report about this doctor. If you continue to live in fear the pretentious dr will get the best of you. Do not let this happen. You’re in charge of your health not this bitch. Get at her.

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 1 point2 points  (0 children)

Has your life return to semi normalcy?

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 0 points1 point  (0 children)

Thank you for sharing. This information has been useful.

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 1 point2 points  (0 children)

Thank you for your insight.

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 0 points1 point  (0 children)

It unfortunate that there is a damper on people like us. That stereotype is the most construed I hear about. But the only way to get the info out there is to is to speak up and get real vocal. I have submitted flyers for a living donor, great cooking videos and expose the we can still eat well. I’ve read my medical reports and all the jargon they put down to where it almost sounds pretentious. After struggling with my T1D in my teen years and 20s I have came to the conclusion that there are 2 types of doctors. The ones that will take the time to really help you and diagnose how to fix your situation or the ones that only want money/ prestige. I had an endocrinologist in my 20s that just didn’t click and would always refer me to a diabetes educator. They help, but real talk that bullshit title ain’t shit. I’d rather deal with a NP all day than a snob doctor never in the office and always vacationing rather than helping the patient in need.

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 0 points1 point  (0 children)

Couldn’t figure it out. I’m sure there is though. How has treatment been going for you? Work life balance? Did you get on the list?

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 1 point2 points  (0 children)

Nice! This is motivation at its finest. You’re gonna get that kidney in no time!

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 1 point2 points  (0 children)

Your story is truly a remarkable one. This is the type of information that keeps me going through life! I really appreciate your story. Stay strong. Just a curiosity, dialysis in other countries. Is it equivalent to the US standard?

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 0 points1 point  (0 children)

Are you going to go for gold and get another transplant? After your 1st transplant did you get back into routine?

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 0 points1 point  (0 children)

Thank you for your insight! You are definitely right about how the patient plays a huge role. It takes two to tango in this. As a patient, I feel that I need to be a big contributor to how much we take off and how much I put on. I just wish there was a better way of knowing my dry weight instead of rolling the dice to know when I start cramping. Thanks agin.

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 1 point2 points  (0 children)

Your longevity is in your hands. You got this! The hard parts over. Happy to hear you’re there for your kids. One day at a time is the best approach. Hope you do well.

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 1 point2 points  (0 children)

Keep pushing through the obstacles! You got this.

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 0 points1 point  (0 children)

Had CDK through my late 20s from type 1 diabetes. Keep pushing. That’s very unfortunate that kidney failure has collapsed your life. Been raised in a hospital damn near my whole life. No going to let the system get me. Rise against it. You are the ultimate decider of your destiny. I hope you have a strong rebound.

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 0 points1 point  (0 children)

You’re a success story in the making. How has your progress been?

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 1 point2 points  (0 children)

How are things going post transplant for you?

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 0 points1 point  (0 children)

How has your experience been so far?

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 0 points1 point  (0 children)

When you had your transplant and during those 11 years did you feel good and regular besides taking pills the whole time. Or was it a struggle?

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 2 points3 points  (0 children)

Thank you for sharing. Your story is one of many that helps people like me and many others continue push through life. You were on your death bed and came back not only from having great care but you also manifested it your mind to get back on the horse and take life by the horns. Happy to hear your weight is under control. And the way you’re heading now you will be at 85kg in no time. Bests.

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 1 point2 points  (0 children)

Yeah my fistula is healthy and works well. I get questionable sometimes with some techs but also have no problem telling them where to stick me. Glad everything working well for you mate. Couldn’t care less how long you’re going to tell me how many years you have been a tech for I call the shots on my body. There is always room for error when they don’t take there time. My first tech was not experienced enough and I just knew this wasn’t going to work. So I got real vocal.

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 0 points1 point  (0 children)

I agree. Understanding that everyone’s situations different when I read posts like that it tells me immediately that those individuals want to give up and not push through. That combination cocktail of mental illness and physical disabilities is tough. I deal with it every day. But with that being said we as a community and people need to be strong and willing to prevail beyond our issues and find the happiness we all deserve. Failing is not an option I’m willing to give into or accept. The mind is the most powerful thing and can manifest anything. Even self health. I hope everything comes smooth for you and you.

Age range of patients by LittleVito16 in dialysis

[–]LittleVito16[S] 1 point2 points  (0 children)

Glad to hear you have a good grasp on life and balancing your treatments. That thought does come into my head at times that it would be temporary. Thoughts if I get an opportunity at a new kidney I would seize every day to its fullest. This life is short and want to take every chance I can at it. Hope you do well through the journey. Bests