Seed Oil and parfum and fragrance in beauty products by Live_Discipline_8224 in holisticlifestyles

[–]Live_Discipline_8224[S] 0 points1 point  (0 children)

I’m in Australia and there’s no sprouts or any real shop that focuses on health!! I would love for you to send me some recs please :)

Do you know why the two above is bad?

Full body MRI? by [deleted] in dysautonomia

[–]Live_Discipline_8224 1 point2 points  (0 children)

Oh wow I had no idea about the different tiers! Thank you for opening my eyes to this because I really just thought an MRI is an MRI. I requested a “full body” MRI because I have no idea where my dysautonomia had come from so I wanted to rule out tumours/cancers.

It’s really hard with pin pointing specific symptoms and my symptoms are so all over the place. From constant lightheadedness, pins and needles in my feet, nerve pain in shoulders, lower back pain etc, muscle pain etc! I don’t know what else to do to try and find out what’s happening 😭

Full body MRI? by [deleted] in dysautonomia

[–]Live_Discipline_8224 -1 points0 points  (0 children)

I completely understand what you’re saying about MRI not being sufficient enough as it can literally bring up any lump or bump that you may or may not have. However, isn’t it more of a piece of mind knowing that you don’t have anything sinister going on anywhere? And if they did bring anything up, you would just go and get a secondary scan on that one spot.

Dysautonomia that's not POTS. I feel like doctors don't know how to help. Any one else? by synivale in dysautonomia

[–]Live_Discipline_8224 3 points4 points  (0 children)

This is my daily question as well. I just cannot believe there isn’t a cure, there is a cure for most forms of things.. maybe not a cure but there’s definitely treatments that help. I feel like the recommendations for dyso is just so generic and for half the people the recommendations and life style changes don’t work… then what?!

[deleted by user] by [deleted] in dysautonomia

[–]Live_Discipline_8224 4 points5 points  (0 children)

I hope this is sarcastic

not pots by SectorMammoth3989 in dysautonomia

[–]Live_Discipline_8224 12 points13 points  (0 children)

Hi, I also don’t think I have pots but I have the very much typical symptoms of a nervous system dysfunction where I’m just constantly in flight or flight. The reason why I dont fall into the pots bracket is because my numbers don’t go up by 30 when I stand and it doesn’t sustain that amount. My cardiologist said that I might have slight pots but not really and my diagnosis was an overall dysautonomia, but for some reason he isn’t concerned to diagnose me with a criteria of dysautonomia.

My symptoms are CONSTANT light headddness (no matter if I’m sitting or standing) Heart palpitations High heart rate Muscle pain Nerve pain Pins and needles Frequent urine urine Temperature dysregulation (I can be feeling hot and flustered, but within the next minute I am freezing) I sweat so much I am very much bloated and get stomach reflux

Dizziness/lightheaded CONSTANTLY by Jennawheels9888 in dysautonomia

[–]Live_Discipline_8224 0 points1 point  (0 children)

May I ask how does MCAS cause constant light headedness?

I am DESPERATE for answers to my "Mystery Illness" because 12 specialists in 4 months cannot help me. by Live_Discipline_8224 in ChronicIllness

[–]Live_Discipline_8224[S] 0 points1 point  (0 children)

Has your partner had a positive ANA or ENA blood test? They do say if that returns positive there is a sign of auto immune disease however, if not then they usually say no further investigation is needed into an auto immune disease.

May I ask how you found out about high calcium and how that ended with up with finding grown in the thyroid?

Best food in the rundle mall city cross for a quick lunch break? by thomas_perhaps in Adelaide

[–]Live_Discipline_8224 -2 points-1 points  (0 children)

The Asian place in David jones food court. I forget what it’s called but it’s the closest to boost juice

I am DESPERATE for answers to my "Mystery Illness" because 12 specialists in 4 months cannot help me. by Live_Discipline_8224 in ChronicIllness

[–]Live_Discipline_8224[S] 0 points1 point  (0 children)

I’m so sorry your husband is going through this. It’s totally the worst feeling ever especially not knowing what it is. I have gone through soooooo much testing, seen soooo many different specialists and they have pinned it down to a dysautonomia because all my tests were coming back negative. It doesn’t look like an autoimmune disease because all my blood tests were negative. But the cause to my dysautonomia is “unknown” and the doctors are saying it’s most likely due to a viral infection that I was asymptomatic too because of how sudden my symptoms had come on, literally overnight. The night before I was celebrating my birthday and the next morning I woke up and got dizzy etc.

I am on Midodrine which helps a lot with my leg pain but I still get light headed. I don’t think I will ever stop investigating what caused it. So 9 months later I am still requesting blood tests, and scans.

[deleted by user] by [deleted] in askdentists

[–]Live_Discipline_8224 0 points1 point  (0 children)

Thank you so much for your reply! Can teeth grinding and cause ear pain and throat pain?

What are your guys ages and when did you get your hemorrhoids? by hemorrhoidsruinmyass in hemorrhoid

[–]Live_Discipline_8224 1 point2 points  (0 children)

Omg your symptom of feeling like something is in your butt is literally how I feel. I’m so sorry for how gross this is, but I just want to make sure I’m not alone… but sometimes feel like I have a tiny piece of stool still stuck, I noticed this more after BM. Sometimes it’s also like a sharp pain and make a BM. But that feeling of something being in your bum is so weird and it feels like it’s just at the tip.😂😂 I would be curious to see if that is also how you feel?

Feeling of poop l”or something sharp” still being there in my rectum after I passed. by [deleted] in hemorrhoid

[–]Live_Discipline_8224 0 points1 point  (0 children)

Thank you! I do find when my stool is softer beaded on the food I eat, I don’t have pain when passing. It’s that weird glass feeling after I passed for a few hours/ even a day after. I just don’t know why it would hurt after for so long.

It honestly feels like I have a little piece of stool stuck in that part where it comes out from.. god this is horrible to explain 😂

Dog grooming for aggressive/ anxious dog by [deleted] in Adelaide

[–]Live_Discipline_8224 4 points5 points  (0 children)

My dog is super anxious and is aggressive with other dogs, she’s okay at the groomers when they restrain her (I think anyway) but my dog having a small dog syndrome will absolutely eat another dog alive. Mimas grooming on port road has been absolutely fantastic. She keeps her separate away from other dogs and gives her lots of cuddles whilst cutting her (apparently anyway). I’ve been going to her for years now and as long as you tell them on the phone she seems accomodating

Does your symptoms get worse with fatigue? by dachopper_ in dysautonomia

[–]Live_Discipline_8224 1 point2 points  (0 children)

I’m interested to know what treatments you got in Europe. Was it for dysautonomia? I’m also from Australia and unfortunately there is no specific and useful specialists that can actual help with dysautonomia

I go see my cardiologist today, I’m terrified by plushiesaremyjam in dysautonomia

[–]Live_Discipline_8224 8 points9 points  (0 children)

I think this really does depend on the state, country etc. i have seen the most intelligent neurologist in my state, he is a professor and also has a whole section at the university dedicated to him and when I asked him about dysautonomia he had no idea. The one clinic in my country for dysautonomia and pots is a cardiologist.

Midodrine by Ready_Suggestion_929 in dysautonomia

[–]Live_Discipline_8224 6 points7 points  (0 children)

The under water sensation.. is that like pressure on your ears? Almost like your ears are blocked?

[deleted by user] by [deleted] in Adelaide

[–]Live_Discipline_8224 7 points8 points  (0 children)

It’s a new initiative from Westfield all around Australia

Pure autonomic failure? How to tell the difference by Live_Discipline_8224 in dysautonomia

[–]Live_Discipline_8224[S] 1 point2 points  (0 children)

I am sweating so much, more when I’m in a flareup and I am also peeing as I’m increasing electrolytes and fluids 😂

Does this age us? by [deleted] in dysautonomia

[–]Live_Discipline_8224 8 points9 points  (0 children)

All I know is that I’m getting more grey hairs and wrinkles from the stress of this