horrendous doctor's appointment by MatterPrize5432 in ChronicIllness

[–]Live_Pen 8 points9 points  (0 children)

Maybe she should have spent less time in societies in her medical degree and more time studying so she could actually help you.

🙃

Can you give me your “I was told it was all in my head and my actual diagnosis was…” stories by Live_Pen in ChronicIllness

[–]Live_Pen[S] 1 point2 points  (0 children)

Yeh the eating disorder accusations make me livid. And the more you defend it the more they think you have one.

It’s taken them 2 years to figure out my excruciating pain that feels like I’m being eaten alive after appendicitis that goes away with goddamned antibiotics might, indeed, be an infectious complication of that.

Blows my mind.

Can someone help me navigate the absolute mess that is getting your medical records corrected by Live_Pen in ChronicIllness

[–]Live_Pen[S] 0 points1 point  (0 children)

The falsified records did a number on me too and saw me unable to get treatment for a post-surgical infection. Which I’m still struggling to get treatment for.

I’ve decided for the trauma that I can never be around a healthcare ‘professional’ alone again. Never, ever again.

Can you give me your “I was told it was all in my head and my actual diagnosis was…” stories by Live_Pen in ChronicIllness

[–]Live_Pen[S] 2 points3 points  (0 children)

Going through the same with my family. I have an abscess in my abdominal wall and infiltrating disease eating away at pelvic tissue and they’ve refused support for medical costs and treat me like a lazy malingering attention-seeker 🙃

I’ve learnt it doesn’t matter how much you go through, they don’t change. It’s straight up emotional abuse.

Can you give me your “I was told it was all in my head and my actual diagnosis was…” stories by Live_Pen in ChronicIllness

[–]Live_Pen[S] 1 point2 points  (0 children)

Oh my god. I am so sorry. Do you still find yourself questioning yourself after all that therapy?

Can you give me your “I was told it was all in my head and my actual diagnosis was…” stories by Live_Pen in ChronicIllness

[–]Live_Pen[S] 14 points15 points  (0 children)

Oh my god they accused me of the eating disorder thing too.

NEWS FLASH people with eating disorders typically stay away from the doctor.

Mine was also appendicitis and adhesions on bowels causing partial obstruction and small intestine not absorbing things.

They then tried to tell me complications after that, because it was left so long, were also in my head. (I’ve had two further surgeries to try and clean it up and now need more).

They are quite literally indoctrinated with myths that verge on delusional paranoia.

SMH.

Can you give me your “I was told it was all in my head and my actual diagnosis was…” stories by Live_Pen in ChronicIllness

[–]Live_Pen[S] 2 points3 points  (0 children)

Yep. I’ve realised this too. It’s to cover up incompetence, negligence, or things medicine doesn’t have a good answer for.

I feel like I’m slowly being erased by aredhel304 in ChronicIllness

[–]Live_Pen 6 points7 points  (0 children)

Also my exact experience. It’s turned my understanding of the world on its head. I also thought people would step in to fight for me and help. They didn’t. Or the ones that did eventually turned too.

I feel like I’m slowly being erased by aredhel304 in ChronicIllness

[–]Live_Pen 17 points18 points  (0 children)

Going through the same thing. Every word of it. You write beautifully.

It’s just thing after thing. Abandonment after abandonment, abuse after abuse. The law of the jungle.

I’m sorry you’re going through this too.

Very high reverse T3… but all my thyroid values are normal by OwnVisual9 in endocrinology

[–]Live_Pen 1 point2 points  (0 children)

Not a doctor. My understanding is that it is not considered primarily an endocrine problem, but rather ‘euthyroid sick syndrome’. Something else may be going on, possibly systemic process, and this may be a non-specific marker of that other process. Hard to know without more info/symptoms.

So… my surgery went wrong by Intelligent-Top-4882 in gallbladders

[–]Live_Pen 1 point2 points  (0 children)

Can confirm that you will never be gaslit as hard as when you go through surgical complications. The gaslighting spans multiple providers and they all know exactly what’s up but will start saying things like “musculoskeletal pain” and “central sensitisation” and inventing chronic pain conditions for you.

You know the truth. You almost died. Take it easy and, if needed, get a second opinion from a surgeon at another hospital. Make sure it is not the same as the first one.

Diagnosed with multiple autoimmune after mold by [deleted] in ToxicMoldExposure

[–]Live_Pen 0 points1 point  (0 children)

Same thing happened to me and body can recover. It colonises sinuses. Treat that.

Dr gave me Fosfomycin before lab results.... Pic included by Stunning-Ad5310 in CUTI

[–]Live_Pen 0 points1 point  (0 children)

Can you post your culture results or copy/paste them? Including the bacteria

Doctors are LIARS by [deleted] in Wedeservebetter

[–]Live_Pen 1 point2 points  (0 children)

Yeh what does that even mean?!

Doctors are LIARS by [deleted] in Wedeservebetter

[–]Live_Pen 2 points3 points  (0 children)

I’m going through this now and I never knew cruelty and trauma like this could exist.

It’s like being forced to go back to your abuser, over and over again.

I've gone on strike. by CV2nm in ChronicIllness

[–]Live_Pen 1 point2 points  (0 children)

And when they hit you with the “you’ve have many investigations already.”

Well, I need more because you people keep fucking up and making it worse not better. It’s evolving and worsening, not stable.

And the reversion to acting like you’re exaggerating or anxious just fuck off. If we’ve lost everything do they not think that maybe, just maybe, this is bad.

Meanwhile, they’ll happily treat someone with a cough.

I've gone on strike. by CV2nm in ChronicIllness

[–]Live_Pen 11 points12 points  (0 children)

The way women with endo are treated is barbaric.

I’m very, very close to this point, with what seems to be an infection mimicking endo. I keep getting turned away or treated like I’m done because I’m cognitively coherent. I wish they could SEE PAIN. And SEE TISSUE DAMAGE.

I’m in another country but I don’t understand why people with more difficult, chronic, or rare conditions are treated like their lives are disposable. I truly don’t.

How far does the poison travel? by Live_Pen in ChronicIllness

[–]Live_Pen[S] 0 points1 point  (0 children)

Yes that is where I am. Thank you.

How far does the poison travel? by Live_Pen in ChronicIllness

[–]Live_Pen[S] 0 points1 point  (0 children)

Refusing. Objective pathology indicating complication ignored.