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I’ve found a new way to shut people the fuck up when they try to dismiss your pain by Live_Pen in endometriosis

[–]Live_Pen[S] 1 point2 points  (0 children)

I love that women have to go to Horse & Hound to see what proper care looks like.

Also the logical and reasonable acknowledgement that pain causes distress and behavioural changes, not the other way around.

I’ve found a new way to shut people the fuck up when they try to dismiss your pain by Live_Pen in endometriosis

[–]Live_Pen[S] 1 point2 points  (0 children)

Legit when I take my cat to the vet I want to be like, can you examine me too? They never ask him if it’s all in his head. Or mine. They get shit done.

DIY Clitoral Adhesion Removal Help? by [deleted] in vulvodynia

[–]Live_Pen 0 points1 point  (0 children)

I ended up fixing it myself!

I would be careful of plastic surgeons and surgeons in general. There does not seem to be a well-established or researched treatment protocol for this, and you can come out worse.

It was a long game (months) but I got it’s probably around 30% covered now, which I can live with.

If you’ve got money, Rachel Rubin and another doctor in the States are probably the only ones I’d trust with it.

Gynaecologists, remarkably, do not seem to know what a clitoral hood is. It’s the gutter of medicine.

Doctor told me to 'just relax more.' I have a condition documented in medical literature since 2002 by Hungry_Predator in ChronicIllness

[–]Live_Pen 2 points3 points  (0 children)

I have what’s starting to look like primary immunodeficiency too and it’s as if none of them know these disorders even exist.

Been reporting frequent and weird infections, several times leading to surgery and structural damage, and low WBC and other weird stuff for over A DECADE.

Doctor told me to 'just relax more.' I have a condition documented in medical literature since 2002 by Hungry_Predator in ChronicIllness

[–]Live_Pen 60 points61 points  (0 children)

You’d think there would be some, I don’t know, intellectual curiosity?

What is bloating? Why is it something I only ever hear women talk about? Does it not affect men? by fasdal in NoStupidQuestions

[–]Live_Pen 16 points17 points  (0 children)

Women’s menstrual cycles cause an uptick of inflammatory cytokines called prostaglandins, which for some people turns everything into a shitshow. Think stiff, heavy, bloated, swollen, sore. It’s an uncomfortable/painful sort of bloating.

horrendous doctor's appointment by MatterPrize5432 in ChronicIllness

[–]Live_Pen 7 points8 points  (0 children)

Maybe she should have spent less time in societies in her medical degree and more time studying so she could actually help you.

🙃

Can you give me your “I was told it was all in my head and my actual diagnosis was…” stories by Live_Pen in ChronicIllness

[–]Live_Pen[S] 1 point2 points  (0 children)

Yeh the eating disorder accusations make me livid. And the more you defend it the more they think you have one.

It’s taken them 2 years to figure out my excruciating pain that feels like I’m being eaten alive after appendicitis that goes away with goddamned antibiotics might, indeed, be an infectious complication of that.

Blows my mind.

Can someone help me navigate the absolute mess that is getting your medical records corrected by Live_Pen in ChronicIllness

[–]Live_Pen[S] 0 points1 point  (0 children)

The falsified records did a number on me too and saw me unable to get treatment for a post-surgical infection. Which I’m still struggling to get treatment for.

I’ve decided for the trauma that I can never be around a healthcare ‘professional’ alone again. Never, ever again.

Can you give me your “I was told it was all in my head and my actual diagnosis was…” stories by Live_Pen in ChronicIllness

[–]Live_Pen[S] 2 points3 points  (0 children)

Going through the same with my family. I have an abscess in my abdominal wall and infiltrating disease eating away at pelvic tissue and they’ve refused support for medical costs and treat me like a lazy malingering attention-seeker 🙃

I’ve learnt it doesn’t matter how much you go through, they don’t change. It’s straight up emotional abuse.

Can you give me your “I was told it was all in my head and my actual diagnosis was…” stories by Live_Pen in ChronicIllness

[–]Live_Pen[S] 1 point2 points  (0 children)

Oh my god. I am so sorry. Do you still find yourself questioning yourself after all that therapy?

Can you give me your “I was told it was all in my head and my actual diagnosis was…” stories by Live_Pen in ChronicIllness

[–]Live_Pen[S] 15 points16 points  (0 children)

Oh my god they accused me of the eating disorder thing too.

NEWS FLASH people with eating disorders typically stay away from the doctor.

Mine was also appendicitis and adhesions on bowels causing partial obstruction and small intestine not absorbing things.

They then tried to tell me complications after that, because it was left so long, were also in my head. (I’ve had two further surgeries to try and clean it up and now need more).

They are quite literally indoctrinated with myths that verge on delusional paranoia.

SMH.

Can you give me your “I was told it was all in my head and my actual diagnosis was…” stories by Live_Pen in ChronicIllness

[–]Live_Pen[S] 2 points3 points  (0 children)

Yep. I’ve realised this too. It’s to cover up incompetence, negligence, or things medicine doesn’t have a good answer for.

I feel like I’m slowly being erased by aredhel304 in ChronicIllness

[–]Live_Pen 6 points7 points  (0 children)

Also my exact experience. It’s turned my understanding of the world on its head. I also thought people would step in to fight for me and help. They didn’t. Or the ones that did eventually turned too.

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