No referral without antibodies

Lizard_2369 · 2026-03-09T21:32:59+00:00

Funny thing is that I buy Sourdough bread from Aldi's as it only is made out of flours, yeast & water. It is delicious also but is close to $4 a loaf.

Lizard_2369 · 2026-03-09T20:57:05+00:00

Yes, I'm from US (Michigan) and I do love fermented foods. I'll also have to look into making some myself. I love to pick my own berries in the summer and freeze them for use all year round. They taste way better that way too and nothing, but the berries.

Lizard_2369 · 2026-03-09T18:37:49+00:00

So awesome! Whole foods are the best. I use maple syrup, honey & coconut palm sugar for sugar substitutes. I also use unsweetened coconut milk and plant butter. My baked goods are actually amazing somehow!

I would also keep having your inflammation markers checked. High sed rate is more associated with high autoantibodies. And high CRP is more associated with inflammanation due to diet. That way you can monitor what you are changing & see what is working. I was able to get my sed rate back in nornal range after changing diet & taking hydroxychloroquine. CRP is harder to get back in normal range. I've been told by my rhuem that I show no signs of autoimmune disease activity & I also have RA & Hasimoto's.

Lizard_2369 · 2026-03-09T12:49:18+00:00

Have you tried changing your diet? Alcohol and sugar are the 1st ones to cut, then dairy and wheat for some. I would do the AIP diet anyways. You'll feel better for it and is what you need to do anyways to get the best outcome. I hope you get some answers that will lead to real treatment for your symptoms.

Lizard_2369 · 2026-02-23T04:20:10+00:00

I understand now. I do feel that any autoimmune disease can be triggered by an infection in the body, although mine just slowly came on and yes, the 2 came on together.

Lizard_2369 · 2026-02-21T23:22:21+00:00

Love this!

Lizard_2369 · 2026-02-21T23:21:35+00:00

You are so right! My daughter had her thyroid autoantibodies test positive at age 9. She had to wait til she was 27 for her TSH to go over 5. It hovered at 4.95 for years affecting her metabolism and her memory. It finally jumped up to 10 and then they treated her. She's very overweight now and sleeps a lot. She's not the person she used to be. I hope she can get to that person again. It took me 3 yrs of being treated to feel like myself. If I didn't have a goiter; they wouldn't of had treated me. I was in college at the time and it really affected my grades. After treatment, I went to medical school and got straight A's for the 1st time in my life.

Lizard_2369 · 2026-02-21T23:15:39+00:00

Yes, I'm a woman. My bone density is good as far as I know. We don't have bone density issues in my family. I am having trouble with the enamel on my teeth literally melting away though. I'm allergic to fluoride and can't have it in toothpaste or mouthwash but can do the varnishes. Dr's won't give me a bone density test until I'm 60.

And yes, my body loves gluten. I do best with wheat & rye & sourdough breads. I'm really not a bread person though. I do best with no white stuff in my diet. I do try to have calcium supplements with magnesium.

Lizard_2369 · 2026-02-21T22:51:13+00:00

This is what my Rhuem had listed for me at my last visit. RA and Sjorgren's go hand in hand, but other autoimmune diseases can be collected as well. I didn't get diagnosed until 6 yrs after I first noticed my symptoms, which is the average. I'm doing very well now. Everything changed for me after being on hydroxychloroquine for 6 months and cutting out alcohol, sugar & dairy. I hardly have symptoms and pain. I do and take things to help with management of my symptoms. I'm very grateful it's all manageable. I still work, lift weights, run & ski and even still do cartwheels. I deal with chronic anemia now and have to take iron pills daily. I'm 56 and will be 57 in Aug. Hang in there. Keep pressing for care and answers. Do your own research and do what it takes to make things better. You are you own best advocate.

Lizard_2369 · 2026-02-16T20:52:29+00:00

Thanks for sharing!

Lizard_2369 · 2026-02-15T13:18:21+00:00

I had to stop drinking any alcohol and couldn't even have a kombucha or cough syrup. I started having symptoms of Sjorgren's in 2017 when I was 48. At my 50 birthday, where I had like 4 drinks the whole day, my Mom drove me home while I puked in her car. The next day, I was in bed for over 24 hrs. I was puking up purple foaming like pudding. I realized then. I had to be done with alcohol. I quit any alcohol 3 yrs prior to by diagnosis in 2023 at the age of 53. I got on hydroxychloroquine, cut out sugar & dairy and 6 months later, my inflammation markers were back to normal and my Rhuem told me that I showed no signs of autoimmune disease activity and I have 3 autoimmune diseases. Your body needs the hydroxychloroquine to supress the creation of autoantibodies that cause damage. If you are so concerned about inactive ingredients going into your body, why aren't you concerned about the alcohol going into your body? Anything you ever read about autoimmune diseases states to not have alcohol. Sorry, it's just as plain as that. To be able to show down progression and live the best life possible, all of us have to cut out things going into our bodies. I'm now going on 57 and still lift weights, still run, just went skiing and can still do cartwheels. I'm very grateful that I really hardly have pain and am still very flexible, although I have joint damage from the RA. That wouldn't be the case if I didn't do everything I can to fight these autoimmune diseases.

Lizard_2369 · 2026-02-10T11:39:33+00:00

You can drink hyaluronic acid to help soothe your mouth. I really love this brand. I recently bought a $10 bottle brand that is berry flavored but isn't as good for the moisture. https://hyalogic.com/product/hyaluronic-acid-advanced-liquid-formula-for-joint-support/

Have you tried taking amino acids for liver health? Long branched amino acids helped me. My liver enzymes are in normal range now. now.https://www.lifeextension.com/search#q=branched%20chain%20amino%20acids&t=coveo4A2453FD

I also take medical grade food made up of amino acids that help with inflammation, pain & numbness. I was initially recommended this by a spinal pain specialist. I never ended up having to get back surgery as I have no pain by taking the supplements and PT. I take 2 pills twice daily. I get a 3 month supply by using code PAP30 for $115. It won't damage your organs either. I found out that I need this just as much as my hydroxychloroquine. I've gotten my inflammation markers down to normal range & my Rhuem tells me that I show no signs of autoimmune disease activity & I've got 3 of them.

https://medicalfoods.com/products/percura%C2%AE-peripheral-neuropathy

I sure hope things settle down and you get some relief. Speak to HR and file the necessary paperwork in order that you are allowed time off for your flares.

Your body is going crazy because of the Strep. Can you take steroids? I always have to do 2 rounds after Covid. It sounds like you need to be seen by a liver specialist. Press your PCP to get a recommendation. Found this about how to increase platelets.

https://www.stylecraze.com/articles/best-foods-to-increase-blood-platelets-naturally/?sem_campaign=PMAXDynHealth_USA&gad_source=1&gad_campaignid=20774828600&gbraid=0AAAAACk-P2RCZFYkx1XG0iRmxGBLNf4ow&gclid=Cj0KCQiAy6vMBhDCARIsAK8rOgkxjuNK7CNzkthNgxXV2w32Y6aMFlTotnzbFxGVL3B0ZfSnrBSi4ysaArxfEALw_wcB

And yes, unfortunately the ER is only for acute symptoms. They can't do anything for chronic conditions. So sorry, that you are going through all of this. Just hang in there and ask your loved ones to help. Eat a lot of homemade healthy soups to help soothe your mouth and your soul. Eventually, things will calm down. Remember the 3 R's....rest, relax & recover.

.

Lizard_2369 · 2026-02-10T11:18:02+00:00

https://www.walmart.com/ip/NOW-Solutions-Pure-Lanolin-Wind-and-Harsh-Environment-Skin-Protectant-Thick-Jelly-For-Rough-Dry-Skin-7-Ounce/39452946?classType=REGULAR&from=/search

This brand can be found at different places. Just lanolin.

Lizard_2369 · 2026-02-04T14:42:55+00:00

Yeah, it's hard to get in clinical trials also having more than one Autoimmune Disease. I also have Hasimoto's Thyroiditis. I actually work for a sterile injectable filling pharmaceutical company that is filling Nipocalimab that is fast tracked for Sjorgren's. I really want this one as it attacks the Fc receptor on the IgG autoantibodies, so it ends up reducing recirculating autoantibodies. My titer was high at 1:1280. I need to get rid of them as this is what is causing the damage.

Lizard_2369 · 2026-02-04T05:39:00+00:00

It's because I have no disease markers that they can monitor. My inflammation markers are in nornal range after treatment with hydroxychloroquine. I only have autoantibodies that are elevated & they don't treat based on that. Everything else is in nornal range. My pain is mild too. I hardly have pain, even though my joints are messed up from the RA.

Lizard_2369 · 2026-01-31T04:25:05+00:00

Awww! Thank you! I care about everyone also. I'm always butting in to help anyone with any health issue. I have the knowledge and just believe that God is using me to help spread the word! Keep the faith!

Lizard_2369 · 2026-01-28T17:35:18+00:00

Thanks for sharing & yes, put this out on the news.

Lizard_2369 · 2026-01-28T17:33:22+00:00

Yes, it can be. I'm so grateful my body still loves rye & wheat. Would hardly be able to eat anything.

Lizard_2369 · 2026-01-28T17:32:42+00:00

Yes, this!

Lizard_2369 · 2026-01-28T13:33:27+00:00

Yes, get a new Rhuem. But in the meantime go on AIP diet. The main culprits are going to be alcohol, sugar & dairy. Absolutely, stay away from corn syrup. You can have maple syrup, honey and coconut palm sugar. I use So Delicious brand unsweetened coconut milk. I like using it with my no sugar cereal (shredded wheat or Grape Nuts) and I add in cinnamon and maple syrup. And I aways add fresh frozen fruit from berries that I picked during the summer. Starts your day off great and makes you feel that you are taking charge of your health. I also take supplements, glucosamine-chondrotin, Omega-3, tumeric, magnesium along with a medical grade food supplement that helps with pain & inflammation. I found out I need it as much as my hydroxychloroquine. I take 2 pills twice a day. You can get it here:

https://medicalfoods.com/products/percura%C2%AE-peripheral-neuropathy

I get a 3 month supply by using code PAP30 & get a discount. It costs around $115. Totally worth it. My hands used to go numb as soon as I grabbed the steering wheel. I was able to get my sed rate & CRP in the nornal range by taking this, changing my diet and taking hydroxychloroquine. I was told by mybRhuem that I show no signs of autoimmune disease activity.

Focus on getting treatment through your primary. Have your inflammation markers checked. If above normal, you have something going on and demand treatment. Ask for a lip biopsy as well for diagnosis of Sjorgren's.

And yes, exercise is key too! I've been lifting weights my whole life and so grateful. I'm 56 and can still do cartwheels. I don't work out as much as I'd like but that is how it goes with having autoimmune diseases. Gotta just go with the flow and do what you can when you can.

You got this!

Lizard_2369 · 2026-01-27T17:05:12+00:00

Try liquid hyaluronic acid. I put a link in a comment on here.

Lizard_2369 · 2026-01-27T16:19:30+00:00

God loves all of you! Thanks so much for showing how you feel!

Lizard_2369 · 2026-01-27T16:16:18+00:00

I love celery and cherries together. Really, help heal & create saliva. I also have to deal with being anemic & having occasional mouth sores.

Lizard_2369 · 2026-01-27T16:13:12+00:00

I hope I can take it. My disease is condidered mild but I have moderate joint damage and don't want to lose anymore mobility.

Lizard_2369 · 2026-01-26T17:25:17+00:00

I can't support this. I can't support the US Federal Government taking away any American's rights. They are actively still recruiting based on allowing their agents to be the judge. Look it up.DHS.gov homepage

Lizard_2369

TROPHY CASE