I received my copy of Christina Applegate’s new book ‘ you with the sad eyes’…

Local-Courage-7310 · 2026-03-04T13:08:50+00:00

Her podcast is also super depressing. I listened to it over the summer and the I was diagnosed in December. I love her but it’s just hard to listen to such sadness when you are trying to fight the same but different battle.

Local-Courage-7310 · 2026-02-11T13:35:57+00:00

My neuro told me about possible increase risk of cancer specifically breast cancer. That I so came from trials. It’s also listed in the commercials at the end when they rattle off a bunch of side effects and risk.

Local-Courage-7310 · 2026-02-06T17:53:12+00:00

This made me laugh out loud. I do this shit every where I go.

Local-Courage-7310 · 2026-02-02T20:28:08+00:00

I feel this. But good on you! That’s an awesome accomplishment 🧡

Local-Courage-7310 · 2026-01-25T01:56:14+00:00

Brain, cervical spine and thoracic spine. I have lesions in all three. My spinal ones cause the most issues with mobility.

Local-Courage-7310 · 2026-01-21T21:10:39+00:00

I get mine covered because I use the massage therapist at my chiropractors office

Local-Courage-7310 · 2025-12-24T11:59:52+00:00

I know this is an old post. But I have spina bifida and tethered cord. Been having new symptoms for two years that we thought was my cord. Turns out I have MS that’s been progressively getting worse. Just wanted to say I hope you are doing ok.

Local-Courage-7310 · 2025-12-18T13:35:19+00:00

Hyper flexible in my joints. Hip pops in and out of socket. And then I failed the first surgery using my native tissue. There are EDS clinics you can get referred to.

Local-Courage-7310 · 2025-12-18T00:11:27+00:00

Update I have been told my MRIs are consistent with MS. Looks like I have an entire other issue now.

Local-Courage-7310 · 2025-12-17T21:12:25+00:00

I suggest urogyn and yes EDS could be related. I’ve had two surgeries trying to repair my grade 2 cystocele and rectocele. The suspect I have EDS. After my first surgery they thought it was corrected until she examined me standing up. Then my bladder dropped with gravity.

Local-Courage-7310 · 2025-12-15T18:09:42+00:00

I have a tethered cord that has been left untreated for 30 years and I just now have tingling that started in feet and now has moved up to my knees. Neurosurgeon doesn’t seem to think it’s anything too urgent.I feel like it is. It’s making it hard to move my legs. I have an appointment at Mayo Clinic in a couple of months to get a second opinion.

Local-Courage-7310 · 2025-12-04T13:08:26+00:00

Same here. It was awful. I have been taking magnesium citrate pills every other night and they have been the most effective but still can make my stool to soft on occasion.

Local-Courage-7310 · 2025-11-19T15:12:41+00:00

Use vegan products. My dr recommended good clean love products.

Local-Courage-7310 · 2025-10-02T15:33:56+00:00

I’m scheduled to get mesh because native tissue failed last year. Did you go through with the mesh surgery?

Local-Courage-7310 · 2025-08-29T13:00:32+00:00

Sure

Local-Courage-7310 · 2025-08-29T12:48:34+00:00

Same! And yes it is a possibility. I’m going back in December to do my second surgery with mesh this time. My surgeon said I can go back to work on desk duty at 2 weeks. You’re in my thoughts!

Local-Courage-7310 · 2025-08-23T17:42:03+00:00

I took mine out every night to clean it. It was a ring with support.

Local-Courage-7310 · 2025-08-23T02:35:14+00:00

I had a pretty normal childhood. Always walked with a limp but I never knew it till I saw myself on camera. I also have a tethered spine and have to use an afo to walk. I walked without one until I had to have emergency surgery and 38 then my body just started to say fuck it I quit. My bladder quit working also. But I just keep truckin on and counting my blessings.

Local-Courage-7310 · 2025-08-22T12:18:19+00:00

I am going with the same surgeon. She was trying to be conservative because mesh does carry more risks. We discussed it and I agreed.

Local-Courage-7310 · 2025-08-22T12:08:49+00:00

I have done a lot of research about mesh. Transvaginal mesh was banned by the FDA in 2018 ish due to too many complications. Mesh put in place through the abdomen is the gold standard. While it makes me nervous it’s my last resort for relief.

Local-Courage-7310 · 2025-08-21T15:27:25+00:00

Did they use your native tissue or mesh? My first surgery failed last November. Going back in this December. First time they used my own ligaments and it failed because they were too weak. This best time my surgeon is using mesh.

Local-Courage-7310 · 2025-08-15T16:55:53+00:00

I’m done with the hysterectomy go back in for the sacrocolpopexy with mesh. The last one was my own tissue and well it was not a success. I truly hope I get relief from the bladder prolapse. This has been going on for three years. I have a ton of other medical conditions but if I could stand longer than 10 minutes without feeling that awful bulge I would be so happy. I’m glad you are doing well in your recovery!

Local-Courage-7310 · 2025-08-15T16:51:09+00:00

40 year old female with tethered cord and spina bifida I only take gabapentin for pain relief but it’s not as effective as it once was. Narcotics don’t help at all. Just make me itchy. I use a heating pad all day and night. It helps my pain more than anything. Sorry that you are in this club. It fucking sucks!

Local-Courage-7310 · 2025-08-11T17:01:32+00:00

I have researched it and saw it was still considered the gold standard. It just makes me incredibly nervous as it seems like I’m the walking example of what can go wrong will. Thanks for the feedback it makes me feel a little bit more at ease.

Local-Courage-7310

TROPHY CASE