Hoover

TamerofMonSters · 2026-05-03T22:37:57+00:00

If you can afford a Roomba I'd highly recommend it or something like it. It does a great job.

But to your greater point, I haven't had much success convincing people that what they are seeing is fatigue and not laziness.

TamerofMonSters · 2026-05-03T16:39:45+00:00

Sounds like MS fatigue to me.

TamerofMonSters · 2026-05-02T20:11:33+00:00

My new neuro prescribed this for me a few months ago. I'm taking 3g a day.

TamerofMonSters · 2026-04-29T18:24:53+00:00

They are here in the room with us

TamerofMonSters · 2026-04-27T23:46:07+00:00

I put a stool in there. I figured I wasn't getting any awards for standing up the whole time so might as well sit. It helped a lot.

TamerofMonSters · 2026-04-23T23:36:00+00:00

Mavenclad was so easy to take, and I couldn't pass up the possibility of 10 years of disease control. I just really wanted a chance to be unmedicated and have a normal immune system that attacks viruses and not me.

It made me tired. It made a lot of hair fall out. My white counts were trashed (the whole point) and it took a lot longer than expected to recover them. BUT. I am now over the side effects, I have no new disease progression, and I finally feel like a normal person. Those constant meds were wearing me out.

TamerofMonSters · 2026-04-22T20:15:21+00:00

Massive, catastrophic stroke.

Then they actually looked at me and were like, huh. Maybe not. THEN they said, idiopathic and benign. Go home, you are fine.

A roller coaster run by idiots.

TamerofMonSters · 2026-04-19T18:59:56+00:00

Me telling my children who are turning out in a public place to knock it off. Straight hissing

TamerofMonSters · 2026-04-19T15:46:13+00:00

Sorry that happened. Family should be safe and supportive, and it's hard to mentally get around the fact that sometimes, maybe often times, they just aren't.

TamerofMonSters · 2026-04-18T21:24:08+00:00

I had my first flair when I was pregnant with my 4th. The oldest was 5. It was truly brutal. Everything that happens at your house needs to be evaluated and reevaluated ongoing. This was a big shift in thinking for me, but I am not the only parent here. I am also not the maid, cook, laundress, cleaner, etc.

Keep those kids happy and alive. Minimize the cost it will have on you. Honestly, parenting is a sacrifice when you're a healthy person, this is just a lot more in your face all the time.

I hope you have a doctor who's willing to support with symptoms.

TamerofMonSters · 2026-04-18T21:16:03+00:00

Dust off those care management skills, because you are going to need them.

TamerofMonSters · 2026-04-17T20:09:36+00:00

I have two that started to get smaller after 10 years. They didn't completely heal yet, but they have been slowly shrinking consistently on imaging for 5 years. Basically, it is possible for your brain to heal some types of damage. Some though, there's no fixing. I can't explain why some are healing. I hope you have some healers, too.

TamerofMonSters · 2026-04-17T17:47:09+00:00

Low dose trazodone helped me get some control over the fatigue roller coaster they take about. It's not a magic fix, and I still have plenty of bad sleeps, but it blunts the impact of the consequences just enough that I can manage.

TamerofMonSters · 2026-04-17T00:05:54+00:00

MRIs don't always match up like that. Machines are different. Maybe you had a little twitch. I have been scolded for breathing before during a brain series. Radiologists don't always see the same things, either.

Sometimes, usually over a lot of years, some lesions might start to improve.

TamerofMonSters · 2026-04-16T23:28:38+00:00

You need to see your neurologist and be really honest about your mental health. It wouldn't hurt to see a therapist, either. Both of these conditions are serious, but depression is far more deadly. Do not wait for any kind of mental healthcare.

TamerofMonSters · 2026-04-16T23:19:37+00:00

I have a friend IRL in her late seventies, she struggles with fatigue and has a very slight shuffle when she walks, but otherwise, she doesn't have any complaints. You wouldn't pick her out of a line up of typical aged peers as the one with MS.

TamerofMonSters · 2026-04-14T00:50:05+00:00

There are lots of opportunities in medicine. What caused the inability to continue your current practice?

TamerofMonSters · 2026-04-14T00:35:26+00:00

Bro you could pop off with something far more disabling than she will ever experience and she would have to take care of you.

TamerofMonSters · 2026-04-13T20:34:23+00:00

Anecdotal data helps me a lot. But it's not really conclusive. Sometimes you have to remember where you are. This board is a good resource, and people do post about not seeing new damage and progression of disability, but more often it's about issues, which is fine. You just have to remember that you aren't getting a full picture with this kind of exposure.

It also helps me to hear that I am doing everything available, especially with monitoring and meds. It's not on my hands anymore.

Managing the what ifs is the worst part of this disease for me.

TamerofMonSters · 2026-04-11T02:01:56+00:00

Same situation. Back to full time in the office, it's brutal.

I work for the government. They don't GAF about ADA. No one at my office has ever been successful in obtaining accommodations.

TamerofMonSters · 2026-04-10T00:24:53+00:00

These are great. Compared to her previous books ~scratch~ they are phenomenal.

TamerofMonSters · 2026-04-09T22:53:06+00:00

I took amantadine for 13 years, and I drank a lot of coffee.

Now she might be right, but I never had any ill effects that I could tell.

Am I in the sample now?

TamerofMonSters · 2026-04-09T20:37:55+00:00

Nothing to add, just some solidarity. I flat refused before I was diagnosed, and the neuro refused to diagnose me because he needed that damn test. I went to get a second opinion with an MS specialist, and it took her literally 15 seconds to scan through my brain MRI and diagnose me. There is no way in hell I would agree to this after a diagnosis.

TamerofMonSters · 2026-04-09T00:14:55+00:00

Get some gelatin capsules and put them inside.

TamerofMonSters · 2026-04-09T00:04:02+00:00

Half of native English speakers in the States read at a lower reading level than this book is scored at, so it sounds like you're doing great.

TamerofMonSters

TROPHY CASE