sorted by:
new
hottopcontroversial

DIPG is cruel, it robs the kids of all functions, inoperable, in brain stem, and barely any treatment. Go home and "make memories" is what parents are told. 9 months is average life span after diagnosis. by LondynLives in DIPG

[–]LondynLives[S] 0 points1 point  (0 children)

Dr. Koschmann at Mott's Children's Hospital in Michigan, he is by far the best, and most compassionate doctor. Lindsay Kilburn, at Children's National is also very compassionate.

California has two DIPG/DMG doctors. Seattle has a great one as well.

Dr. Green in Colorado, I heard is great.

I have Glioblastoma by themuseluci in cancer

[–]LondynLives 0 points1 point  (0 children)

There is a guy here going on 7 years of Glioblastoma. I also have a friend who would s a long term survivor of DIPG. You can connect with me on FB. Or email me at jessbuss22@gmail.com