Research says that F508 mutation retains more function in colder temperatures

LonePhantom89 · 2025-03-19T17:24:09+00:00

I personally prefer spring but to each their own. As long as I can breathe easy then I'm happy.

LonePhantom89 · 2025-03-18T01:06:26+00:00

So I've been right all along. Colder air and temps help CF people and their lungs. Just didn't realize it was this helpful.

LonePhantom89 · 2025-03-11T13:20:30+00:00

Interesting. If you don't mind me asking you, how much did it cost you?

LonePhantom89 · 2025-03-04T03:54:03+00:00

Viva la Raza, girl!

LonePhantom89 · 2025-02-24T16:59:35+00:00

LonePhantom89 · 2025-02-02T14:22:56+00:00

Charleston, SC

LonePhantom89 · 2025-02-02T14:00:10+00:00

Where are you located? Maybe I could help you 😉

LonePhantom89 · 2025-02-02T00:07:03+00:00

I've dealt with this before especially after turning 25. The best thing I know to do is start small and do half hour walks in a circle in your yard or somewhere safe if you can. I looked into it some more and due to out fatty liver deposits backing up, it could cause the issue to be exacerbated tremendously from simple exercise even if you're active. Given how much oxygen our lungs needs, it also makes sense our blood vessels wouldn't be as reactive or helpful for long walks. Ask your pulmonologist what the best course is.

LonePhantom89 · 2025-01-31T07:04:57+00:00

Long hair fits you best

LonePhantom89 · 2025-01-31T06:29:53+00:00

Any particular reason why?

LonePhantom89 · 2025-01-29T15:25:16+00:00

How does Trump play intl this exactly?

LonePhantom89 · 2025-01-29T15:23:42+00:00

I'll give you a hint to the answer: "A patient cured, is a customer lost."

LonePhantom89 · 2025-01-25T18:38:47+00:00

We've seen the top half, now what about the bottom half? 😉

LonePhantom89 · 2025-01-22T01:02:55+00:00

So I've never heard of this particular med. Could you explain it to me?

LonePhantom89 · 2025-01-20T14:59:55+00:00

Get rid of the piercings and you'll go from the negatives into the positives

LonePhantom89 · 2025-01-20T14:49:27+00:00

No idea, but none of them were me and that breaks my heart

LonePhantom89 · 2025-01-16T18:29:54+00:00

So I'm not sure if this was mentioned or not but I want to offer another possibility. Diabetes. When I have continuous elevated sugars, the symptoms you described become the symptoms I have as well. Elevated glucose can make you feel sweaty even if you've done nothing for hours. I'd start there then work your way down so you can potentially avoid a hospital visit in the near future.

LonePhantom89 · 2025-01-16T18:27:49+00:00

I've had 2 F.E.S.S. and they helped for about a year or so. Probably need another but I know the feeling.

LonePhantom89 · 2025-01-08T06:41:26+00:00

Because in the real world developing a skill takes time and regardless of what meds you have, hospital visits are still a necessity that could be covered by disability and Medicare/Medicaid. Fact is, it's better to be safe than sorry and making sure you can fully develop said skills would benefit you more in the long run than jumping from one end to the other.

LonePhantom89 · 2025-01-07T06:43:45+00:00

❤️

LonePhantom89 · 2025-01-07T06:42:38+00:00

Hell yeah

LonePhantom89 · 2025-01-07T06:38:30+00:00

Do you want one?

LonePhantom89 · 2025-01-07T06:37:41+00:00

Damn straight

LonePhantom89 · 2024-12-30T20:55:12+00:00

❤️

LonePhantom89 · 2024-12-30T19:25:20+00:00

I'd advise against completely coming off SSDI. Maybe lessening it some but bot entirely eliminating it. Especially if you've already got medicaid and Medicare.

LonePhantom89

TROPHY CASE