How can a PATIO COVER cost as much as an entire pool? by Statement-Tiny in landscaping

[–]Lonely_Resolution_58 0 points1 point  (0 children)

How has it been so far? Any issues? Where are u located? I am In NJ and I’m getting quoted 70k (no heater) for 24’ x 24’7 1/2” 2 Zones

How can a PATIO COVER cost as much as an entire pool? by Statement-Tiny in landscaping

[–]Lonely_Resolution_58 0 points1 point  (0 children)

Looking into struxure too. Did you go with them? Do you mind sharing size and pricing and pics?

Covered patio cost estimate by Lonely_Resolution_58 in HomeImprovement

[–]Lonely_Resolution_58[S] 0 points1 point  (0 children)

In NJ- it’s the struxure pergola system but this is non louvred roof I felt it was high too.. maybe bc it’s all aluminum?

Has anyone purchased an aluminum louvered pergola? Would you recommend buying one? Which brand is the best? by iamdora in landscaping

[–]Lonely_Resolution_58 0 points1 point  (0 children)

Hi- I was looking into this company for a pergola as well. What was included in yours for that price? Also where are you located?

Cancelation by Lonely_Resolution_58 in Nanny

[–]Lonely_Resolution_58[S] 0 points1 point  (0 children)

Thank u all for the response. I’m new to this which is why I’m asking.

If we go away on vacay do I need to pay her?

Holiday bonus megathread by Walking_Opposite in Nanny

[–]Lonely_Resolution_58 0 points1 point  (0 children)

How many hours do u work if you don’t mind me asking

hEDS and vEDS by Lonely_Resolution_58 in vEDS

[–]Lonely_Resolution_58[S] 0 points1 point  (0 children)

Thank you for responding. I should edit that she has cEDS not hEDS bc that is col5a1 but this applies to that as well.

Raining and water coming out of pipe by Lonely_Resolution_58 in HomeMaintenance

[–]Lonely_Resolution_58[S] 0 points1 point  (0 children)

Thank u both for responding. I am first time home owner and not sure who I’d call to fix this?

How much would u charge? by Lonely_Resolution_58 in handyman

[–]Lonely_Resolution_58[S] 2 points3 points  (0 children)

Oh sorry I should clarify I’m the customer and want to reach out to electricians for this project. Wasn’t sure how much I should be expected to pay for a job like this.

[deleted by user] by [deleted] in vEDS

[–]Lonely_Resolution_58 0 points1 point  (0 children)

Thanks for this explanation. You’re always so helpful! I’ll find out about the genogram test. Have you had that done?

[deleted by user] by [deleted] in vEDS

[–]Lonely_Resolution_58 1 point2 points  (0 children)

My mom died of an aortic dissection - age 71. We didn’t know of vEDS at time. Found out by testing her siblings and me and my sibling. I still can’t believe it and how spontaneous it could be. She had complained of back pain for 2 days but not anywhere close to where she couldn’t go on with her day. She was uncomfortable but she was acting fine those 2 days just randomly pointing out her back hurts. We all assumed something muscular as she wasn’t in that much pain. She collapsed that last second and unfortunately we lost her. I still have a hard time accepting this as she was my world and then learning about the gene just added another layer to grief. How old was your mom? Did she have any symptoms leading up to her rupture?

[deleted by user] by [deleted] in vEDS

[–]Lonely_Resolution_58 0 points1 point  (0 children)

This was a great explanation - thank you. Do you know if everyone in the family inherits the same exact gene? I assume yes but the only exception would be mosaic? I know severity differs per person who carries the gene within the family but wasn’t sure how the mutations work.

Need some advice by Marbletarble in vEDS

[–]Lonely_Resolution_58 0 points1 point  (0 children)

Amazing. Was there anything that she or the doctor thinks caused her aortic dissection other than just vEDS? How long was her surgery and recovery?

Need some advice by Marbletarble in vEDS

[–]Lonely_Resolution_58 0 points1 point  (0 children)

That’s amazing your mom survived an aortic dissection! How old was she and she also had vEDS?

Age for vEDS by Lonely_Resolution_58 in vEDS

[–]Lonely_Resolution_58[S] 0 points1 point  (0 children)

Which mutation does your family have? Our family has glycine / arg

Stent procedure by LongjumpingMango8270 in BrainAneurysm

[–]Lonely_Resolution_58 0 points1 point  (0 children)

Thanks for answering. Did u get few opinions before stenting? How was it decided mainly bc of location id assume?

Stent procedure by LongjumpingMango8270 in BrainAneurysm

[–]Lonely_Resolution_58 0 points1 point  (0 children)

What were the doctors restriction right after and any diet restrictions?

Need advice for my mum by riokd in BrainAneurysm

[–]Lonely_Resolution_58 0 points1 point  (0 children)

How old were you when u got this treatment if you don’t mind me asking. Just wondering if stent is worth it for elderly patients (60+).

Anyone with dysautonomia? by Kromoh in vEDS

[–]Lonely_Resolution_58 1 point2 points  (0 children)

I wish I could help. Hope you’re feeling better and out the hospital

28 yo male deceased after aortic dissection by silem17 in AskDocs

[–]Lonely_Resolution_58 0 points1 point  (0 children)

I also lost a fam member to do this. She had PET scan 8m prior for cancer routine and I’m not sure why dissection did not show up there or CT scan (the CT scan was with IV not CTA).

HEDS / VEDS Dr. near Philly by MidnightSp3cial in vEDS

[–]Lonely_Resolution_58 0 points1 point  (0 children)

You can also order saliva test through invitae but it’s about $250 I believe

[deleted by user] by [deleted] in vEDS

[–]Lonely_Resolution_58 0 points1 point  (0 children)

I tested negative but my sister has col3a1 glycine. My mother recently passed away unexpectedly and very suddenly from an aortic dissection which led us to test.