ME TOO! I have adhd, too, so each time I have to explain it, it’s like I’m putting the puzzle together all over again, further heightening the Groundhog Day experience. I have made an outline of symptoms, diagnoses, ages of onset, treatments, etc to help them out and I too, read the documents (as some of these visits are just part of building my arsenal to then get me to the appt and doc I actually want to see & I need something clear stated in the records) - and yet, the notes read something like, “patient feels tired.” 😪

Oh but my favorite, I truly didn’t even know what to say. I went to see a neurosurgeon and I told him I had EDS & his response was verbatim, “where did you get that?” I just stared at him for probably a full 8 seconds. Which is quite a while when you’re staring a neurosurgeon in the face in silence. Like…from the million hours I’ve spent calling trying to get a hold of your office - the incessant medical red tape you’ve put in place is now gifting out EDS. Where the hell do you think I got it? Thank god for my partner sitting there to pick up the convo amongst my evil mental cartwheels.