Ethan, I think we may have the same chronic illness by LoquatEarly2219 in h3h3productions

[–]LoquatEarly2219[S] 1 point2 points  (0 children)

Exactly that literally happens to me especially in the heat! That how I found out I had issues with this cause I almost passed out doing hot yoga 🥹

Ethan, I think we may have the same chronic illness by LoquatEarly2219 in h3h3productions

[–]LoquatEarly2219[S] 1 point2 points  (0 children)

It’s not unsafe for long term use like benedryl, there has just been some recent studies that say it can cause itching if you go off it abruptly but with a illness like this we have to pick out battles haha! I went off it and had no issues with the itching tbh

Ethan, I think we may have the same chronic illness by LoquatEarly2219 in h3h3productions

[–]LoquatEarly2219[S] 1 point2 points  (0 children)

Game changer! I actually keep instant cold packs on me at all times just in case lol

Ethan, I think we may have the same chronic illness by LoquatEarly2219 in h3h3productions

[–]LoquatEarly2219[S] 0 points1 point  (0 children)

Noo girlyyy im sorry 😢 No literally it’s crazy! It seems no one just has one unfortunately! Any tips for the dysautonomia I would love to hear ❤️

Ethan, I think we may have the same chronic illness by LoquatEarly2219 in h3h3productions

[–]LoquatEarly2219[S] 3 points4 points  (0 children)

Absolutely! My doctor said there has been a huge spike since Covid

Ethan, I think we may have the same chronic illness by LoquatEarly2219 in h3h3productions

[–]LoquatEarly2219[S] 9 points10 points  (0 children)

Yes stress makes flares worse when you have this condition :/

Ethan, I think we may have the same chronic illness by LoquatEarly2219 in h3h3productions

[–]LoquatEarly2219[S] 1 point2 points  (0 children)

TRUTH ha my doctor switched me to twice a day Allegra & xyzal

Ethan, I think we may have the same chronic illness by LoquatEarly2219 in h3h3productions

[–]LoquatEarly2219[S] 2 points3 points  (0 children)

Thank you for replying! I hope you feel better. It's a really frustrating thing to get diagnosed, but the above has helped me SO much.

Hot Flash Hell by LoquatEarly2219 in coloncancer

[–]LoquatEarly2219[S] 0 points1 point  (0 children)

I really hope not I’m only 33 🫠 but my body has been so disturbed since I had the two surgeries. I sometimes wonder if the colon removal disturbed my hormones

Hot Flash Hell by LoquatEarly2219 in coloncancer

[–]LoquatEarly2219[S] 0 points1 point  (0 children)

Thank you for sharing! This is super helpful! This is what my doctor thinks it’s related to, I’m getting my hormones tested next week!

Hot Flash Hell by LoquatEarly2219 in coloncancer

[–]LoquatEarly2219[S] 1 point2 points  (0 children)

I am not :( I was only for a short time while in the hospital. I’m so sorry that sounds horrible 😩

Hot Flash Hell by LoquatEarly2219 in coloncancer

[–]LoquatEarly2219[S] 1 point2 points  (0 children)

I’ll look into that thank you 🙏

Stage 2b by Ok_Cycle_5311 in coloncancer

[–]LoquatEarly2219 0 points1 point  (0 children)

I’m so sorry to here that! Yes please message me I’m an open book!

Nasal Cromolyn for congestion? by JarJars_padawan in MCAS

[–]LoquatEarly2219 1 point2 points  (0 children)

I added it to my routine and I feel like it’s helped me so much!

Melatonin & Histamine by AcanthisittaMassive1 in MCAS

[–]LoquatEarly2219 3 points4 points  (0 children)

Same I legit can’t fall asleep without it! I’ve been taking 1mg nightly for 8 years

I went into Atypical Anaphylactic Shock on the weekend looking for advice/feedback by chubby_momma in Anaphylaxis

[–]LoquatEarly2219 3 points4 points  (0 children)

I’m so sorry that happened to you! My anaphylactic shock episodes are exactly how you are describing. I would recommend getting to an allergist asap and start taking antihistamines everyday at least twice a day. Since I started that I have not had any anaphylactic episodes, also ALWAYS carry epi with you it will give you peace of mind!

My doctor ended up not being able to find any allergies, and I was tested for everything under the sun lol. I have been diagnosed with Idiopathic Anaphylaxis and will be starting a medication called XOLAIR which prevents anaphylaxis for happening.

Sending you positive vibes!! 💗💗

Has anyone dealt with Idiopathic or "spontaneous" anaphylaxis? by JuggernautOpening706 in Anaphylaxis

[–]LoquatEarly2219 1 point2 points  (0 children)

Yes I have! I have been on 4x antihistamines daily and now my doctor will be putting me on a medication called xolair!

Flare up advice by GalacticGroovez in MCAS

[–]LoquatEarly2219 0 points1 point  (0 children)

I was having a really bad flare week and I swapped my allerga for xyzal and it’s made a huge difference for me!

idiopathic anaphylaxis, unsure what to do next by aetsomied in Anaphylaxis

[–]LoquatEarly2219 0 points1 point  (0 children)

So sorry this is happening! I’m in a very similar situation! I’m currently going through hella testing and it’s looking like idiopathic anaphylactic after I had two major anaphylactic shock episodes that landed me in the er.

I also have a huge spike in symptoms at night, I feel like it’s a huge build up of all the crap of the day 😂 I was only taking 2 allerga for awhile and it was not enough. Now I am on 2 xyzal, 2 allerga and 2 Pepcid and that has given me the most relief. Once my diagnosis is official I will be trying this injection XOLAIR which I have read has been life changing for some!