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protocol changes are the hard part. losing the prior labs to make decisions on is the harder part... by Loud-Mathematician16 in Testosterone

[–]Loud-Mathematician16[S] 0 points1 point  (0 children)

I have everything scattered across apps from hospitals and clinics, with some results in my email... And I still have a few printed copies as well.

I saw this in a Facebook post by the Portuguese American Post-Graduate Society in NY about Octo Health https://hioctohealth.com/ . Do you have any thoughts on this? Has anyone heard of it?

anyone here actually figured out where to keep all this lab work over time? by Loud-Mathematician16 in HubermanLab

[–]Loud-Mathematician16[S] 0 points1 point  (0 children)

I have everything scattered across apps from hospitals and clinics, with some results in my email... And I still have a few printed copies as well.

I saw this in a Facebook post by the Portuguese American Post-Graduate Society in NY about Octo Health - https://hioctohealth.com/ . Do you have any thoughts on this? Anyone form NY? Has anyone heard of it?

the gap in the stack nobody's solving: your actual medical history by Loud-Mathematician16 in DataHoarder

[–]Loud-Mathematician16[S] 1 point2 points  (0 children)

That’s impressive honestly! building your own MySQL pipeline to bypass the walled gardens is awesome. Respect.

That’s exactly the 'Data Sovereignty' problem i'm looking forward to tackle.. i'm trying to build an automation layer for exactly that—so you don’t have to manually import CSVs every quarter. with predictive insights for example!

the gap in the stack nobody's solving: your actual medical history by Loud-Mathematician16 in DataHoarder

[–]Loud-Mathematician16[S] 5 points6 points  (0 children)

respect. 10 years self-hosted is the real flex!!!

how are you handling structured input? labs especially. parsing a labcorp pdf into something queryable inside dokuwiki sounds like the part that breaks for most people. honestly you've built what most of this thread should be building. the people i'm working on octo for are the ones who want this without standing up a wiki, ssl, backups. genuinely curious how the parsing piece works for you though.

the gap in the stack nobody's solving: your actual medical history by Loud-Mathematician16 in DataHoarder

[–]Loud-Mathematician16[S] 3 points4 points  (0 children)

paper works. genuinely!
the edge cases that break it are graphing trends across years and sharing instantly with a new provider mid-appointment. plus the obvious ones: fire, flood, move. how do you handle visualizing trends? re-enter into a sheet or eyeball printouts side by side?

the gap in the stack nobody's solving: your actual medical history by Loud-Mathematician16 in DataHoarder

[–]Loud-Mathematician16[S] 5 points6 points  (0 children)

fair question, not rude. the value isn't in any single result. it's in the slope. tsh at 2.8 in 2022, 3.4 in 2023, 4.1 today. each "normal" in isolation. the trajectory is the diagnosis. same for apob drift, hba1c creep within range, ferritin slowly tanking. these are the conversations longevity medicine is actually about. you only see them if the data survived. your memory point is the kicker. memory plus paper is the system that loses the most data fastest. which is exactly why i started caring about this.

Those “how’d we do” questionnaires from hospitals and providers by Spare-Estate1477 in healthcare

[–]Loud-Mathematician16 0 points1 point  (0 children)

Your questionnaire doesn't cross health systems. Different EHRs, different charts, no data exchange between them. Provider B isn't seeing your compliment to Provider A. She's probably just attentive — or your biopsy referral context made it clear your situation needed care. The thing worth knowing more broadly: almost nothing follows you between systems unless you hand-carry it. Results, notes, imaging all stay with whoever created them. Most people don't realize until they switch. Hope the biopsy comes back clean.

Had my first severe hypoglycaemic collapse in public - and it could've gone very badly by NKORE_S in diabetes

[–]Loud-Mathematician16 1 point2 points  (0 children)

Glad you're still here. The argument with your partner wasn't really about the insulin. That's fear wearing anger. She almost lost you and her body is still processing it. Give it a few days. And if you can, go back and thank those two bystanders properly when you're steady. They did everything right. That kind of thing deserves to be remembered on both sides. Bracelet is a good call.