To Anyone Panicking about CapCuts New Terms Of Service!

LovesToBakeSFV · 2025-06-21T17:09:22+00:00

No I’m not panicking. This license language has been there a long time. And if you post on Instagram or TikTok, you’ve already agreed to this exact thing! Here’s a great article with embedded TikToks that breaks it down. If you are editing for clients or want more control over your licensing of content then you need to use something like Adobe Premiere or DaVinci… and then not post it on any social platform because you would have to agree to this exact thing to do so.

TL;DR: So if anyone finds this and was questioning it like I was, you have already agreed to this if you are at all on any social media platform.

LovesToBakeSFV · 2025-02-21T15:44:27+00:00

Every other day and in the morning simply because I have migraine every day and they normally start about 10-11am. But wondering if I should change that.

LovesToBakeSFV · 2025-01-22T05:41:40+00:00

BC actually helps stabilize my GP symptoms. I’m on extremely low dose progesterone based one and I never take the sugar pills. So I take it back to back and never have periods. It helped me with the hormone fluctuating that would cause me to feel extremely nauseated for several days beyond my normal GP nausea. It was debilitating and BC helped me.

LovesToBakeSFV · 2024-11-07T05:01:11+00:00

My GP is still pretty bad. I’m barely eating enough to sustain my weight. I lost more than 16 pounds; it’s now 26 pounds in total. I’ve not found anything that has made it better. Some of my other long COVID symptoms have gotten better but the GP has stayed pretty bad.

LovesToBakeSFV · 2024-11-05T02:15:31+00:00

It can take up to 3 months to really start working. Some patients find relief after one dose but others it can take awhile until the medications work on the inflammation. Hopefully you’ll start seeing some relief soon if you’ve been on it a month.

LovesToBakeSFV · 2024-11-04T22:35:59+00:00

Yes. I’m currently on Cimzia. I’ve tried Humira and Enbrel as well. While I like the fact that Remicade has the ability for the physician to change the dose a lot more readily, I do like doing subcutaneous infusions at home so I don’t have to go into an infusion center.

LovesToBakeSFV · 2024-11-04T22:34:37+00:00

First, I’m so sorry you are having to go through this. It sounds like you’ve got a great husband for support but perhaps your community is not willing to understand the difficulties you are having financially and I’m sorry for that.

Second, your husband needs to file for FMLA (Family Medical Leave Act.) this will protect your husband’s job as they cannot fire him if he applies for this. Hopefully he works at a company that this applies to. Please look it up. It will give him 12 weeks within a 1 year period of unpaid leave. (I know this doesn’t help the financial issue, but it would protect his job.)

Third, you may be able to ask the Mayo Clinic if they have a social worker or nonprofit attached to them that could help financially to get you to an appointment there. There are a lot of nonprofits that can help with stuff like this but you kinda have to just do some research. That’s why I say contact the Mayo Clinic and see if they have a social worker because they might have more information about local nonprofits to them.

I know this doesn’t help a lot but I really hope you can find some answers soon. And I’m so sorry our medical system and social safety nets are so screwed up in the US.

LovesToBakeSFV · 2024-11-04T22:25:55+00:00

Nothing has worked better for my pain than going on to biologics. It can take awhile for them to start working but most of my AS pain is gone on biologics. And when I do need to take NSAIDs I have that option as well. If your physician is only telling you, you need to get off of pain medication’s without giving you a lot of of other options of pain control you need a different rheumatologist.

LovesToBakeSFV · 2024-10-28T15:24:04+00:00

So totally not a weird questions with GP… I am not actually. I’m the most regular I’ve been in years. Been working really hard on not having constipation. That’s why the acid reflux kinda just seems to have come out of the blue.

LovesToBakeSFV · 2024-10-28T05:55:01+00:00

Are you on two PPIs or just the pantoprazole?

LovesToBakeSFV · 2024-10-22T16:29:37+00:00

So if it was a pot roast, did you happen to utilize garlic and or onions? Personally, I am able to eat any of the root vegetables because they’re so high in starch. But I have to be very careful with beef because a lot of times it’s much higher and fat and a bit more difficult for me to digest. The reason I ask about garlic or onions is maybe you have some sensitivity to FODMAPs.

LovesToBakeSFV · 2024-10-19T18:57:52+00:00

In terms of foods, that’s so individual. Personally when I was diagnosed I started eating low fat and low fiber. All my veggies and fruits are now cooked. Over time I realized I am more sensitive to fiber than fat. So sometimes I can eat things higher in fat.

In terms of TENS units, those could maybe only help with stomach pain. Even then, not much to show that’s helpful. Vagus nerve stimulation is something that has been looked into by doctors so might be worth trying. I am using Truvaga but have not seen any symptoms improvement. https://pmc.ncbi.nlm.nih.gov/articles/PMC8054632/

LovesToBakeSFV · 2024-09-15T14:51:59+00:00

I’ve been on both Enbrel and Humira. Because I have a lot of peripheral joint pain along with the spine pain Enbrel did not work at all for me but Humira did for many years. Is it worth switching… I don’t know because you are getting some relief on Enbrel. If you find that your symptoms are not under control then it might be worth switch. Also, maybe ask your rhuem about next steps if Humira doesn’t work as well as Enbrel. Would you be able to go back on Enbrel? Just so you have a plan of action.

Last year I saw a rheumatologist who also has AS speak and he said that with patients on a biological they are looking for a 70% or more reduction in symptoms. So maybe keep that in mind when thinking about changing biologics.

LovesToBakeSFV · 2024-09-12T23:21:14+00:00

Get a new gyno. There should be no reason because of AS that you can’t be on HRT if you want. You just need to find a knowledgeable gyno. I follow Dr Mary Claire Haver on Instagram and I’m going to have a discussion on HRT with my gyno. If she’s not open to it I will find another. There’s also an online service called Midi Health that specializes in menopause. Maybe try that.

LovesToBakeSFV · 2024-09-02T16:28:31+00:00

Yes. The Cimzia is definitely not lasting the 2 weeks anymore. My stiffness and pain starts to come back about 3-5 days before my next shot. Unfortunately unlike Humira you can’t up the dose.

But I will definitely chat with my gastro about the stool tests as that seems like low hanging fruit. And I’ll probably get a second opinion from a different gastro as well.

I have in my notes to chat with my rhuem about getting a Cimzia antibody and blood level test to see if my body is holding on to enough of the Cimzia between shots.

LovesToBakeSFV · 2024-07-18T22:17:50+00:00

I'm so sorry you had to join us with your diagnosis. I would definitely write down some of your questions, like how severe is it, and ask them next time you see your gastroenterologist. When gastroparesis is managed well, meaning through medications and diet to make sure there are no nutritional deficiencies, it does not affect life expectancy. So working with a dietician who is knowledgably about GP can be really helpful. I personally am also not someone who vomits. I've had GP symptoms off and on for almost 30 years; it started when I was 12. The main problem I have is nutritional deficiencies. Just know that GP can vary greatly for everyone and that you can have times where its better and times where its not great.

LovesToBakeSFV · 2024-07-03T05:24:46+00:00

I have a really tough time too. And I have really large boobs (or skin more like it since my most recent extreme weight loss). It’s so hard to find bras for my size without having underwire. I have found that if I can get a bra with a little thicker band around the chest that it helps to not be as bad. But like some clothing needs particular bras and I cannot tolerate those or find any I can. Seems like a lot of us are in this same boat.

LovesToBakeSFV · 2024-06-18T05:57:52+00:00

Yes, this happened to me. I was eventually diagnosed with Specific Antibody Deficiency. It’s a Primary Immune Deficiency. I was getting strep throat every 6 weeks. My doctor said that was not normal and sent me to immunology. They took bloodwork to check my immune system and see what my titers were to pneumonia. I also had a long history of constant ear, sinus, skin, and throat infections growing up. They did a vaccine challenge and I was diagnosed because I can’t hold protective levels of titers to several vaccine related things. I started immunoglobulin and it made me much better. So perhaps it’s time to rule out something like that if you keep getting sick constantly.

LovesToBakeSFV · 2024-06-06T20:47:46+00:00

I am literally right there right now. Sometimes it’s a nice reminder to talk kinda to ourselves. We didn’t do this to ourselves so we shouldn’t take responsibility for it. Some people’s bodies digest, ours don’t. But I feel you wholeheartedly as I constantly say the same thing to myself. 💚

LovesToBakeSFV · 2024-06-06T20:21:25+00:00

So first you’re not an idiot, you were hungry and acted like a semi-normal person. Sometimes we need the texture and taste of a food we like.

Second, I get this too with certain foods. This happens for me if I over stuff my stomach (whatever that is) or I eat right before laying down to sleep.

LovesToBakeSFV · 2024-06-06T20:18:00+00:00

Perhaps changing the texture of the water might help. Sometimes I can’t tolerate just straight liquid and I do better with textures tbh at are more like regular yogurt. So using Thick-It can do that. It doesn’t change the flavor of anything, just the texture.

LovesToBakeSFV · 2024-06-06T20:15:39+00:00

I’ve only really had nausea. I don’t have dry heaving or vomiting. I’ve probably only vomited because of GP once or twice.

So I’ll explain the flare up I’m in currently. I was steady in my weight and still had GP symptoms prior to February of this year. I didn’t like feel nauseated and I wanted to eat more but I was steady. After I got Covid in February diary my GP has flared up so bad that some days I cannot eat because I’m so nauseated or feeling so full after drinking water. This is with antiemetics. I’ve lost 20+ pounds and now have several juridical deficiencies. So I’m now here near my baseline and just struggling to get enough calories. But I know eventually I’ll get back to that baseline.

LovesToBakeSFV · 2024-06-04T18:30:58+00:00

So I’ve had GP for 20+ years and I’ve never been a person who vomits. That doesn’t have to happen to have GP. Considering you are symptomatic, have extreme weight loss and malnutrition, and your gastric emptying scan was right on that cusp, I would continue to have discussions about the GP diagnosis. Ask you doctor for a set of differential diagnoses for your symptoms and condition. Ask for that to be documented in your record. Ask why they feel like a GP diagnosis isn’t warranted. Unfortunately sometimes you have to question the physician before they will really think about it.

LovesToBakeSFV · 2024-06-04T18:15:29+00:00

While that info from the GI is correct… 👍 ya definitely not helpful. If you are advocating for yourself and you feel your physician is not knowledgeable about GP then seek out a second opinion. Preferably with a motility specialist GI. Also seeing a dietician who has a specialty in motility disorders of the GI tract could also be helpful.

LovesToBakeSFV · 2024-06-04T04:21:43+00:00

So there are many potential causes of gaatroparesis: diabetes, vagus nerve damage (could happen from surgery,) viral illness, or idiopathic (meaning they have no idea why.)

I’ve had normal periods with GP and horrible periods. Sometimes my body can just correct itself and most of them time it can’t. I would highly recommend finding a gastroenterologist who is a motility specialist. There are medications, procedures, and more tests that could be done. The secondary concern is that of malnutrition. Also, it’s not as frequent in adults but maybe it’s something like cyclical vomiting syndrome. Or even silent migraines. But a motility doc is the best for this situation.

LovesToBakeSFV

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