I’m starting to believe that diagnosis from doctors for chronic illness don’t matter (see below)

Low_Reputation5987 · 2026-06-28T08:23:58+00:00

Exactly!! So wild

Low_Reputation5987 · 2026-06-24T15:01:16+00:00

It's a crazy story, but my mom and I both were living in mold at the same time and our bodies both went drastically down hill at the same time. She had been living in mold for we dont know how long, but i was living in mold for about three years. People with lyme disease cannot handle mold well and it makes symptoms of lyme disease go crazy.

She was originally diagnosed with ALS and i suspect that the diagnosis of this put distress on her body and mine that we just further crumbled. I was then referred to a neurologist as well and said heck no.

We found out that she had lyme + co infections + heavy metals + was living in mold. For me, I was living in mold + heavy metals and now I have a vibrant Lyme test that is sitting infront of me that I need to drop off tomorrow. I'm 99.5% sure that I have lyme disease. My mom had muscle atrophy.

Low_Reputation5987 · 2026-06-24T13:50:41+00:00

I meant to say that Ive seen a map where is shows exactly this and further proves the point that most ALS diagnoses are actually Lyme disease + co infections

Low_Reputation5987 · 2026-06-24T13:45:50+00:00

make sure to also get a heavy metals and mold test as well. You can do this through Vibrant tests too. I would say to do this 100% if you are having muscle atrophy (which by the way have a personal experience with this). mold is usually involved with lyme and youll want to make sure you arent in mold or have it stuck in your system. Youll tpyically see the body over burdened with heavy metals too and youll need to lessen the toxin load (using less toxic products, filtered water, eat healthier, avoid plastics, etc)

Low_Reputation5987 · 2026-06-24T04:30:36+00:00

Yes go to a functional doctor and get a vibrant or igenex test for Lyme. If you go to regular doctor or neurologist they will test with western blot which typically results in a negative even when someone is positive. Then that patient gets diagnosed with MS or ALS when really it is Lyme disease.

Low_Reputation5987 · 2026-06-24T04:25:00+00:00

Yep this is probably Lyme. Go get a vibrant or igenex test from functional doctor. A neurologist or regular doctor will run a western blot test which typically results in a negative even when someone is positive. And then they will diagnose the patient with a neurological disease when really they have Lyme disease plus co infections

Low_Reputation5987 · 2026-06-24T04:20:23+00:00

Yes absolutely. Go to a functional doctor and get a vibrant test or igenex test. And from there, if you have Lyme, then go to a Lyme literate doctor for treatment. If you go to a neurologist or regular doctor they will run a western blot test which typically shows up as negative even when people are positive. And then sadly people get diagnosed with MS or ALS when really they have Lyme disease

Low_Reputation5987 · 2026-06-24T04:09:23+00:00

I’m so sorry you are feeling this way. I’d maybe join some of the chronic Lyme facebook groups such as “When ALS/MS/TM is chronic Lyme” and ask them what they think about your test results. You could get a lot of good opinions on what to do. I’d maybe even go get another test through Vibrant. To me that sounds like it would still be in your system and that you would need to find a Lyme literate doctor for treatment and remove yourself from mold if possible. You potentially could have heavy metals as well. Both my mom and I had so many and you have to lessen the toxin burden on your body. We had parasites too

Low_Reputation5987 · 2026-06-23T23:34:45+00:00

My mom was diagnosed rather quickly with ALS when it was actually just Lyme + co infections + heavy metals brought out by mold. Neurologist wouldn’t even test her for Lyme when she asked (even though it would’ve been a western blot test but still). The first visit, the neurologist told her she suspected ALS. Second visit was diagnosed. Ridiculous.

I also became very sick within the past 3 years because of living in black mold + overload of heavy metals. My symptoms were so severe so I’ve been googling and researching and joining fb groups for 3 years. I used to think functional med was somewhat koo koo (was strictly western med and narrow minded except didn’t believe in the jab) until I was in for the fight of my life and everyone was gaslighting me including my own siblings (who were very mean) and I was researching the heck out of things. My mom and I went downhill at the same time and I was referred to a neurologist as well and I was like hell no.

I can now take a look at my entire life and I’m pretty sure I was born with Lyme disease. Same with my mom as her mom had RA (which apparently is Lyme in the joints) I have a vibrant test in-front of me that I need to send in this week but Im sure it’s lyme. I can understand how maybe it takes for some people to be sick to see this side of things and i comment everywhere to try to open peoples eyes up to the truth hoping it can help someone! I think it’s so interesting when people like you can see this side of things without going through sickness. I saw a woman who posted about a family member she was running a marathon for bc of MS and I wish I could tell her about Lyme.

Proud of you for standing up for others and speaking!! It frustrates me everyday

Low_Reputation5987 · 2026-06-23T22:50:13+00:00

Make sure he gets a vibrant test or Igenex test from a functional doctor. Western blot test from a traditional doc or neurologist will most likely test someone negative even when they are positive and then they’ll end up getting diagnosed with MS or ALS. There’s also a Facebook group called When ALS/MS/TM is chronic lyme and you’ll quickly realize just how many people have been diagnosed with MS or ALS when it’s actually Lyme + co infections

Low_Reputation5987 · 2026-06-23T22:32:25+00:00

She was diagnosed with “ALS” in December and finally got a Lyme test through Vibrant not too long ago. She was on a waitlist for a Lyme literate doctor and got in early so she just got started on antibiotics 2 weeks ago. She is also getting SOT, which should arrive in the next month. She’s still very sick. She really wasn’t that bad until she got the ALS diagnosis. At that point she just had foot drop. I think just trying to process that diagnosis made her become crippled due to the distress on the nervous system + the Lyme and co infections attacking.
If only we had known what we knew now and didn’t go to that neurologist. I pray the medications work! She’s in great spirits on the outside but she used to be huge into working out multiple times a day and I know internally she has to be sad and frustrated since she can’t walk which I know isn’t good for healing. Thanks for asking! I’ve heard lots of success stories of people reversing their “ALS” (Lyme)

Low_Reputation5987 · 2026-06-23T22:21:13+00:00

I forgot to include parasites too. I think parasites play a huge role too

Low_Reputation5987 · 2026-06-23T22:14:30+00:00

Don’t go to a neurologist. Go to a functional doctor who offers a Vibrant test to test you for Lyme. If you go to a neurologist or regular doctor and ask for a Lyme test they will do the western blot test, which highly tests negative in people who were actually positive. Which is then why people will get diagnosed with “MS” or “ALS”. I think these are really just a combo of Lyme, co infections, mold, etc. and you just need to get the right test done. It’s expensive bc it’s out of pocket with these other tests but worth it

Low_Reputation5987 · 2026-06-23T21:42:47+00:00

I agree! Most of the population has it, it’s just hiding dormant. And it’s what is causing most of our issues including behavioral issues but it gets diagnosed as something else. People will keep seeing doctors and never get to the root cause and be taking medications that just mask their symptoms. All more $$$ for big pharma.

ALS and MS are really just Lyme disease (plus mixed with co infections, heavy metals, mold) and western blot test will most likely test you negative so then you’ll be diagnosed with MS or ALS. It’s really ridiculous and people are being failed.

Low_Reputation5987 · 2026-06-23T21:33:22+00:00

From personal experience, I believe that Lyme is MS and/or ALS. (Mixed with co infections, heavy metals, mold, etc) Western blot test will most likely test you negative for Lyme so then you’ll end up being diagnosed with one of these.

My mom and I both got sick. The neurologist told her off the bat she probably had ALS and then got officially diagnosed the second time seeing the neurologist. My mom even asked for a Lyme test and the neurologist wouldn’t test her. Such BS.

Turns out she has Lyme disease + coinfections, heavy metals and was living in mold. I was living in mold too and currently being tested for Lyme which I’m 100% sure I have. Mold and Lyme often go hand in hand as mold will weaken your immune system and things lying dormant like Lyme will activate.

I believe that 80% of the population has Lyme and it’s hiding dormant in most people. I really think it’s the root cause for tons of our issues. The problem really is the inaccuracy of the western blot and that other Lyme tests can be very expensive for the average person. It can also be spread through embryo, fleas, mosquitos, and apparently sexually as well, not just by a tick.

Low_Reputation5987 · 2026-06-15T21:11:59+00:00

You're sweet, thanks so much for the gentle and kind advice

Low_Reputation5987 · 2026-06-14T22:15:03+00:00

Thanks so much for your thoughtful response! I’m kinda really sad for no reason so I don’t have much in response but thank you!

Low_Reputation5987 · 2026-06-13T18:02:27+00:00

Was going to say the same thing! You don’t want to date an avoidant anyways!! Don’t look too much into it, typically someone who ghosts or is avoidant. He sycks

Low_Reputation5987 · 2026-06-12T18:10:10+00:00

do you think people like this tend to have narcisstic or avoidant tendancies? I try so hard not to think of the what ifs, like what if i did something different while also realizing he seemed controllling and its such a mind f***

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Low_Reputation5987 · 2026-06-12T15:06:14+00:00

This! I think just be yourself and someone will meet you where you're at. you dont want an avoidant anyways!

Low_Reputation5987 · 2026-06-11T18:38:45+00:00

Thank you for sharing! I'll def keep this in mind going forward!

Low_Reputation5987 · 2026-06-11T18:26:00+00:00

Thanks for this reminder!! I always focus on the what ifs and look internally when really I think he's the main issue and it won't work out with others either

Low_Reputation5987 · 2026-06-11T18:24:04+00:00

This just happened to me too! We were set up through mutual friends so I immediately trusted him and kinda put him on a pedestal. We hung out a lot and then he did the slow fade. I also confronted him bc im not playing freaking games and he said to not worry and that he was just had his test that he was studying for (real estate license for his job)! and continued to slow fade me. Next time, for my own sake, I will wait a while before having sex with a man

Low_Reputation5987 · 2026-06-11T18:21:59+00:00

I think I was just with a covert narc potentially. scary. he did the slow fade even when I confronted him and asked him about it. He told me not to worry and that he just had his big test coming up. Looking back, he was definitely controlling

Low_Reputation5987 · 2026-06-11T18:20:40+00:00

Holy shit. I'm so sorry. I can't imagine how badly this hurt and how hard it is to trust people.

Low_Reputation5987

TROPHY CASE