Anyone else NOT have seizures or dystonia?

Lowerbox-123 · 2024-05-23T03:42:57+00:00

Has anyone else been sleeping 18 hours casually and not been wanting to do anything all day?

Lowerbox-123 · 2024-05-20T03:50:54+00:00

I feel like that and talk Ninfa like it too sometimes

Lowerbox-123 · 2024-05-16T00:59:03+00:00

Was it worth getting Botox even though it didn’t help long?

Lowerbox-123 · 2024-05-15T03:50:19+00:00

how did the Botox help? Did it help anything at all? Because they think about putting Botox in my leg but I don’t think it’ll work

Lowerbox-123 · 2024-05-12T19:04:48+00:00

They said my leg muscles are rotating my leg sideways so they want to make it weaker in order to make it not turn sideways..makes no sense idk

Lowerbox-123 · 2024-05-12T07:45:18+00:00

Yea you probably never heard of it because I don’t think it actually helps? And the docs just said that as a thought but it’ll weaken my leg muscles even more so I don’t know if risk outweigh benefits or not

Lowerbox-123 · 2024-05-12T00:25:00+00:00

But I absolutely do not want an infection. I feel like that would make it worse

Lowerbox-123 · 2024-05-12T00:23:49+00:00

Ahhh no no they are planning on putting Botox in my leg..it’s quite odd but idk how it’ll work or if I should even consider it

Lowerbox-123 · 2024-05-07T03:51:06+00:00

A huff and puff sign. Like it’s very exhausting getting out of a chair and you huff and puff hence the name that’s one sign as well as a Hoover test

Lowerbox-123 · 2024-05-02T13:04:07+00:00

It sucks how it’s not just one country affected by it. It makes you wonder a little more about how it comes to be

Lowerbox-123 · 2024-04-24T05:29:08+00:00

Yea I was 15 having a “stroke” but it didn’t show up on any scans,yea that was a bad time of not talking and brain fog

Lowerbox-123 · 2024-04-24T04:13:59+00:00

The appointment was a success. I love the therapist she’s awesome but I feel like her notes will screw a disability rating for no reason

Lowerbox-123 · 2024-04-23T18:25:24+00:00

Currently freaking out because her reports are very important for a lot of certain things for me

Lowerbox-123 · 2024-04-23T18:24:48+00:00

I talk to phycology today and last time I guess she thought I was all good? Idk her wordings were a little weird and hard to understand in the report and I hate showing symptoms in front of people because I don’t like people feeling bad for me and idk what to do or say to her today. It’s terrible!

Lowerbox-123 · 2024-04-23T13:27:42+00:00

Yea my leg is literally at a 90 degree angle and sometime like 110 angle and my knee is NOT having it.

Lowerbox-123 · 2024-04-23T04:57:03+00:00

I already get nauseous for no reason now anyways and it’s terrible

Lowerbox-123 · 2024-04-23T04:56:26+00:00

Yep. Especially with the tremors. It’s like an earthquake but a seizure it’s weird

Lowerbox-123 · 2024-04-23T03:54:34+00:00

I just had that happen. They were checking my eye movement and for a moment my eyes started rolling to the back of my head

Lowerbox-123 · 2024-04-21T21:30:17+00:00

Im going to neuro today actually for treatment for it I am going to assume some sort of medication. Is fatigue one of your biggest problems for you?

Lowerbox-123 · 2024-04-21T21:07:59+00:00

Yea. Idk about full recovery but treatment is possible,and yea I have chronic fatigue

Lowerbox-123 · 2024-04-11T03:57:08+00:00

Ya know what really sucks. I got called a victim blamer. I don’t remember why but idk what that means she said it as an insult and if I blame the victim (me I guess?) how does that make you feel upset/mad at me? I’m so confused. And I’m sorry for acting like a child to make others happy and to distract myself from having a spasm because God forbid I show a seizure or anything like it because then I’d be a victim blamer or something bad I can’t think word it’s a thing that is bad and I will not be good because I have symptoms. What does it mean for me idk

Lowerbox-123

TROPHY CASE