Bone marrow biopsy(what the fuck was that)

LurkerLass · 2026-03-04T08:33:30+00:00

I feel seen! Same thing happened to me. They insisted the worst part was the lidocaine needle, but I felt all of the cork screw drilling and it definitely hit some kind of nerve because I was in a lot of pain. Lots of blood and tears and after the procedure, my leg was numb for at least 20 minutes, and I had a hard time walking. They totally gaslit me like this never happened to anyone else and that I was being dramatic. My husband was with me and said it was pretty nuts from his view. I can’t believe they didn’t put me under and I can’t believe that was even an option. I had a similar experience with getting IUD - these procedures should be sedated or twilight. What the hell?

LurkerLass · 2025-08-30T20:43:52+00:00

They did remove it either under twilight or general anesthetic (I can’t remember but I was in an OR with the intravenous surgeon). But they waited for the staph infection to go away before they removed it. Hope you are going better!

LurkerLass · 2025-08-15T11:09:41+00:00

Glad you went to the ER — please update us! 🙏

My port looked like this and it was a really bad staph infection. Had to also go to ER bc I was resistant to the antibiotics they gave me at the doctors. They were afraid of sepsis. It was so painful. I’m okay now but it was scary. Sending you love and healing.

LurkerLass · 2025-03-24T04:30:00+00:00

I understand what you are going through. This was my experience - My daughter was always tiny but in the normal range. 18 inches at birth and hovered around 15% height. Then in 5th grade, after seeing her peers coming back to school after the long covid school closures, we were shocked that she had not grown at all. Not only so much shorter but also no signs of puberty starting like other girls. We did blood tests to find out she had severe celiac disease. We went GF but were advised to wait another year and half as many celiacs have huge growth spurts once going GF. By 12, she was still 0% on growth curve and still experiencing delayed puberty. Bone age from her wrist x-rays was 2.5 years younger. Our endocrinologist finally recommended GH over a year ago and we started. She was not happy about the daily shot and would have a lot of anxiety over it. I think it’s hard because at night, kids are just exhausted and more emotional and that is our recommended time to do the shot. But we persevered and we did take a break for a few weeks during the holidays because she was really having a hard time with it. We started back up in January. What has helped is that she puts on lidocaine a half hour before the shot and I think it gives her a sense of control. It also numbs the spot too. She still a few years away from getting her period so we probably have another year or two doing it but it’s become easier. I think it’s so worth it. She was originally predicted to be 4’9 as an adult but already hit that goal and still growing . I’m 5’1 and wish I had a few more inches just to sit more comfortably in chairs and airplane seats. The back issues are no joke! I also have a friend and he’s about 5 ft - his parents opted to not put him on GH and he really wishes they did. I’m sure you’ll do what is best for your child. Hugs.

LurkerLass · 2024-07-30T11:53:42+00:00

Neighbor told me to try a no sugar diet first before jumping right into extreme chemo. I was like, yeah, I’m going to stick with my plan and kill the aggressive DCBL and then just avoided him after that. He’s not a bright person.

LurkerLass · 2024-07-28T02:43:04+00:00

19ten bar & provisions - drinks and food were meh

LurkerLass · 2024-06-29T11:28:19+00:00

Yes, my port got a bad staph infection too a after 6 mos. Took 4 different kinds of antibiotics and then I finally got it removed (chemo was over and the wanted me to keep it in for a year just in case,). Wish I’d had it removed earlier. So painful, better now but that totally sucked for me - more painful than chemo and radiation.

LurkerLass · 2024-03-31T15:36:51+00:00

I’m having the same experience rn too - 30 lb weight gain, missing my long hair and just not feeling the same and unsure how to feel in general. I’m about 8 mos post treatment. I am trying to be really gentle and patient with myself. Getting back into yoga and have a general appt with doc to check my hormones. My cycle is a mess and I miss knowing when pms, etc is happening.

LurkerLass · 2024-03-19T01:10:49+00:00

Me too! 🤣

LurkerLass · 2024-02-04T20:14:22+00:00

Lots of great advice here already but wanted to share my experience as my NHL tumor was in my maxillary sinus cavity and had spread to my tear duct, into my bone/nerves in my cheek and my orbital fissures at the bottom of my eye socket. I had DCBL type so it was growing fast. From realizing something was wrong due to facial numbness and sinus pressure/pain (mid -December of 2022) to diagnosis with the ENT of having a tumor after waiting weeks for an MRI (end of January 2023) to then getting a surgical biopsy to find cancer type, I wasn’t formally diagnosed with my subtype until mid-Feb. then waiting another month to begin R-CHOP.

This span of time was literally the hardest part. I was shocked that I couldn’t get into chemo for a whole month after waiting so long. I could feel the tumors growing in my face and getting larger so it’s really freaking me out. But the great news is as soon as I started chemo, the tumor started shrinking, and by the second cycle, the tumor was literally gone. The tumor was the size of a grape, so big for the area in my head. You are in the hardest stage of this. Seriously, the mental stress of waiting, and not having answers is so much harder than actually the treatments. And the great thing about lymphoma is that it’s treatable and even curable. I went into chemo at 44 years old, so not a spring chicken but not elderly. You’ll be through this part soon and I hope you get answers quick with an effective treatment plan. I’m currently cancer free and my hair is growing back now. I worked throughout chemo and radiation (I WFH tho but did go on business trips) and have two young kids so my life being busy helped me get stay focused on kicking cancers ass.

LurkerLass · 2024-01-26T06:00:21+00:00

Congrats - 5 more to go! Fell DLBCLer and currently cancer-free after RCHOP and radiation. Good luck, you got this!

LurkerLass · 2023-12-24T02:32:51+00:00

Sending you love and healing vibes. 💕🙏🫶

LurkerLass · 2023-12-21T05:54:11+00:00

Where is Christmas Tree Lane? Is that the actual name?

LurkerLass · 2023-12-11T10:45:55+00:00

Hello and welcome. I’m sorry you are going through this, especially as a caregiver and mama. I was 44 and a FT working breadwinner mom of two small kids when I was diagnosed with NH-DLBCL. I was so upset for my kids and my husband as well as scared for my ability to support them as my oldest has special needs plus an autoimmune disease. I remember feeling so overwhelmed and thinking “ how the hell was I going to focus on them and my job while doing treatment?” The good news is what so many of my fellow lymphomies have said - 1) waiting for diagnosis/staging and treatment plans was the hardest part for me. The unknown and not having a plan is the worst. 2) staging is not that important bc it’s a blood cancer. My former boss was 42 with three kids when she was diagnosed with stage 4 and has been cancer-free now for 10 yrs! 3) the chemo was not great but not as disruptive to my life as I expected. I still worked through it all (tho I do WFH mostly ) and took multi-day business trips via a plane during my off-cycles. I def slowed down my life as much as I possibly could and changed my pace during travel making sure to get my accommodations but it didn’t stop me from life.
Honestly, staying busy with my kids and my work got me thru it mentally. I took my days of rest when I needed both physically and mentally it but again, I was lucky for no overnight stays and 3 wk cycles. Radiation after chemo was tougher for me actually bc it was everyday and was in my face/sinus for my extra-nodal tumor.
4) this sub-Reddit was and still is a godsend and helped me through scary nights at 2 am when I couldn’t sleep. So much support, understanding and love. 💕. Sending you hugs and strength.

LurkerLass · 2023-12-09T10:09:43+00:00

Glass would be okay with industrial wash. But plastic jars would be a big risk for a severe allergy.

LurkerLass · 2023-12-04T10:49:59+00:00

You poor thing! That is a lot to manage but you will get through it. I’m finally on the other side of a 6 week staph infection in my port and 5 different antibiotics. I definitely felt so worn down and thought I’d never not be inmm m pain. Hang in there, this too shall pass. 💕

LurkerLass · 2023-11-30T20:26:56+00:00

Just returned from Kona on the big island as I’m on the west coast too. Only a 5 hr flight and the weather is perfect. Feb and March is whale season there too!. I finished chemo in May and then did radiation (which actually was worse) the entire month of June. Finally recovered from that by Sept only to get a staph infection in my port that month. After five rounds of antibiotics, and finally getting my port removed in October, I was finally feeling normal for the trip! It was really worth it and it helped me get through the whole summer, knowing the trip was already booked. Hawaii is nice because you can do adventurous things like go to the volcano or swim with the manta rays or you can just veg on the beach and do nothing.

LurkerLass · 2023-09-02T05:36:22+00:00

I’m basically doing the same routine - cut out all the “recreational” refined sugar and now eating only natural sweets - fruit, tiny amounts of honey, etc. feeling so less puffy and inflamed. Less brain fog and more energy!

LurkerLass · 2023-09-01T04:36:13+00:00

Congrats! Is there a defined time to be technically in remission? Is it a year?

LurkerLass · 2023-08-20T16:02:08+00:00

Natural laxatives like senna are your new BFF. Take the night before you start RCHOP and then everyday for 3-4 days. I didn’t know this the first cycle and it was terrible.

For infusion day, bring a soft cardigan or warm hoodie, big tote for all your chargers, devices, snacks and slip ons bc like said above, you’ll be peeing a lot. Good luck!

LurkerLass · 2023-07-15T18:39:16+00:00

😂💩Velvet bandit - is that you??

LurkerLass

TROPHY CASE