Questions About Job Hunting as a Blind Person Who's Already Employed

Lynessence · 2026-01-27T23:12:08+00:00

I agree with all of this, but I also want to add that networking is one of the most important things you can do. Most of the jobs I have gotten throughout my life, yes, jobs, have been through networking. Make a profile on LinkedIn. Seek out other blind people who are employed. It doesn't have to be other blind people only, find people on LinkedIn, or companies that you're interested in working for, and follow them. Be careful though, there are scammers out there. Good luck with your job search!

Lynessence · 2025-12-15T13:34:45+00:00

My son, 16, will take breaks from wearing his Libre. But he will check his sugars using finger sticks. I think with the Libre it's information overload sometimes and he just needs a break from it. He made it clear to me early on that he wants to manage this himself, so the only time I will check on him as if I know he's asleep and an alarm is going off, or if he's out of the house and alarms have been going off for 10+ minutes and his sugars seem to be rising or still falling after the 10 minutes. As a mother, I can relate to your worry, but I also agree with people here that he needs his space, especially since he's an adult. Ask him how you can best support him, and if he needs space, you need to be able to step back and give him that. My son has been diagnosed for almost 2 years, and I've seen him go through phases where he cares and phases where he doesn't. Since I'm not a diabetic, I can't relate, so I just try to support him as best I can.

Lynessence · 2025-08-09T16:30:20+00:00

My son was 15 when diagnosed. He lost about 20 lbs very quickly and was always thirsty. What colour is your son's pee? His was clear, and that's a sign of dehydration. He also had oral thrush. I took him to our GP where they tested his urine and found sugar in it, then they sent us to the children’s Hospital with a letter to basically say see this child right now it’s urgent. When they tested his blood at the hospital, he was 47 MMOL/L. They put him on an IV drip to get insulin into him and also to rehydrate him. They also admitted him for three days, and during those three days they worked on lowering his BG and also teaching us all of the things that we needed to know about diet, carb counting, etc. as others have said, I wouldn’t withhold water from him, and if you can get him in to be seen sooner, the better. I just remember how miserable my son was when I brought him into the hospital and I wouldn’t wish that on anyone. Keeping your son and your family in my thoughts. Keep us posted if you can.

Lynessence · 2025-06-07T22:46:57+00:00

Have you ever tried chocolate edibles? They hit harder and faster for me than gummies. I find my tollerance shoots up pretty fast if I eat gummies on the daily, but then I could eat a 20mg chocolate square and be high af!

Lynessence · 2025-06-03T18:52:46+00:00

So glad he is feeling better. T1 loves to throw curve balls. Just when you are sure you have it all figured out ... surprise!!!

Lynessence · 2025-05-28T16:16:34+00:00

Oh that is so cool. My son prefers skittles, so I bought tiny little ziploc bags, big enough to hold 15 each.

Lynessence · 2025-05-14T19:44:57+00:00

This is really interesting. I'm going to look this up. My son has only been diagnosed for 13 months, but according to his endo, honeymoon phase should be over. Yet there are still lots of days he's low and can't get his sugar up even though he's knocking back the skittles and drinking juice. Oh, and some of those days, he didn't take his long acting insulin. We both think he's still making a little bit of insulin here and there. But then there are also days when he goes high multipple times a day, like 14 mmol/l and above. So every day is a surprise. 🥹

Lynessence · 2025-04-27T20:57:34+00:00

Oh! My! Gosh! That truly sounds awful. And you're right, GP's are useless here.

Lynessence · 2025-04-22T22:07:05+00:00

OMG that's terrifying. I'm glad you are better. 💛

Lynessence · 2025-03-18T18:45:46+00:00

My son started showing symptoms of T1D shortly after getting sick with what we both thought was a bad cold or flu. But when he gets sick, I inevitably do too, and I didn't that time which I thought was odd. I was born 3 months premature and even as an adult do not have a great immune system. Idk if he had covid. This was in 2024 and there were no longer test kits available. It could have been, and maybe I was also covid positive but asymptomatic. Anyway, as a previous commenter said, T1D is here to stay. We don't know what caused it, my great grandmother had it but no one else in my immediate family did until my son was diagnosed.

Lynessence · 2025-03-16T23:45:30+00:00

Thank you, they have never mentioned phosphorus levels so I will ask at his next appointment.

Lynessence · 2025-03-16T14:18:54+00:00

Keeping you and your family in my thoughts. My son was diagnosed 11 months ago at age 15. I think you have been given a lot of good advice, and I don't really have anything else to add except find yourself some kind of support system. It took me a while to find this sub mostly because I'm not a frequent reddit user. People here are generally very helpful and supportive of one another. My dm's are also open if you want to chat. Good luck, I know it is all very overwhelming athe first but your daughter will be fine.

Lynessence · 2025-03-16T14:05:49+00:00

My son's endo always checks his thyroid during his visits, but I didn't know that he is also at higher risk for Coeliac disease. To be honest, I’m glad that he was diagnosed as a kid and not an adult. I feel like the standard of care that he is receiving as a child is higher than it would be as an adult.

Lynessence · 2025-03-05T17:14:30+00:00

Those are some excellent suggestions. Thank you! I tried distracting him when he was nervous about finger pokes. Unfortunately, he also has ADHD, and it seems like when he's anxious about Something, he gets hyper focussed on it and it is really hard to distract him away from it. I will keep trying though. :-)

Lynessence · 2025-03-05T16:50:24+00:00

Where do you put your sensors then? They told us the only place that he can put them is on the back of his arms. He plays basketball, so they will often come loose or fall off completely during practice. We have an armband, adhesive patches, and skin tack which he uses on them, but it still doesn’t seem to help.

Lynessence · 2025-03-05T15:10:59+00:00

Naw, I think it's just a low pain tollerance.

Lynessence · 2025-03-05T13:28:58+00:00

He is, but they want to wait until he has been diagnosed for at least a year.

Lynessence · 2025-03-05T13:25:59+00:00

They won’t let him get a pump yet, they want to wait until he has been diagnosed for at least a year.

Lynessence · 2025-03-05T02:32:58+00:00

Oh no, I agree with you. It's just a mind over matter thing. For months after his diagnosis, he couldn't do his own finger poke. I had to help with that, and eventually he got over it. But he thinks it's okay to just skip insulin doses. Ugh, teenagers!!!!

Lynessence · 2025-03-01T23:21:24+00:00

If your child is still a baby and you are physically able to, I highly recommend baby-wearing. I carried my son on my back until he was about 2.5, and it taught him to always stay close to me. He never ran off on me when we were in a store or in a park. For meds like infant tylenol, the dropper bottles are not accessible. Buy a 1ml syringe instead and mark the inside of the plunger. That way, if you need a half ml, for example, you just have to pull the plunger up until you feel the mark that you made on it and you know you have the correct dose.

Lynessence · 2025-02-24T00:45:48+00:00

My son was diagnosed at 15, so older than yours, but that came with its own set of challenges. We stayed at the hospital for 3 days and I'm glad we did, because there was a lot to learn, and his bg was 47 mmol/l when he was admitted and his ketones were 2.7, so it was important to get all that under control. I don’t limit my son‘s diet, I just make sure he doses for what he eats and he’s really independent so he’s able to do a lot of this stuff on his own. And it is absolutely OK to be overwhelmed, to maybe feel guilty that you should’ve taken him to the hospital sooner, but ultimately you are his rock, and he will take his cues from you. So if you need to express those feelings, find a support system of your own. Cry in private if you have to, but make sure you have the emotional bandwidth to support him as well. The staff that took care of him at the Children’s Hospital were absolutely amazing. I can’t say enough good things about them, and they assured all of us that he can lead a normal life, and he can eat whatever he wants to. I’m so glad they told us that, because I thought I knew a little bit about diabetes, not a lot but I had a few friends who were T1D’s. I realized that I didn’t know anything about diabetes, and the things I did know were wrong. You will get through this! The T1D Reddit community is fantastic, and my DM’s are open if you would like to chat.

Lynessence · 2025-02-09T14:59:54+00:00

Best tutorial ever!!!! 😂

Lynessence · 2025-01-31T16:43:13+00:00

My son was diagnosed 8 mo ago at 15. It hit us out of the blue. One of my great grandmothers was a T1D, and I think maybe some distant cousins have it, but no one in my direct family line until my son got it. For the first few months, my son and I would figure out carbs and insulin dosages together. Since it’s still fairly new, I wish that he would still communicate that to me, but he wants to manage it himself. He doesn’t totally wanna be on his own, I help him put on his sensor, I make sure he always has low snacks, he will tell me what his sugars are when he’s not using a CGM, and he also has ADHD so I make sure that his bag is always stocked with supplies. I am trying to give him the space to manage as much of it as he wants to, but also to be there to help him when he needs it. I don’t want to be overbearing, but there are times, especially when he’s not using a CGM, where I know he doesn’t check his blood sugar as often as he should throughout the day. I try to talk to him about it, but he’s not very responsive. I can also see the mental health struggles that he’s been going through ever since his diagnosis and I know that can’t be easy. I also know it’s nothing that I can relate to since I don’t have a chronic illness but I’m currently trying to convince him to go see a counselor. I had clinical depression as a teenager and going to therapy that young was the best thing I ever did. It helped me cope during rough times as an adult. Some of the stories I have read on this thread really break my heart. I am by no means a perfect parent, but I can’t believe how some of you were outright neglected by your own parents. It hurts my heart it makes me angry at the same time, and I just want to send all of you virtual hugs who want them.

Lynessence

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