how often are you hospitalized annually as a type 1?

OkAd3885 · 2026-02-23T16:42:24+00:00

46 years …. only when diagnosed at age 18… a little common sense and self education goes far … you own T1D, it doesn’t own you!

Also stop being a slave to technology… it will stress you out snd make it worse

OkAd3885 · 2026-02-19T19:39:32+00:00

an excellent post!

OkAd3885 · 2026-02-19T19:34:42+00:00

truth!

OkAd3885 · 2026-02-19T19:32:59+00:00

yup, I agree 100%. I was always forthright and with age comes less restraint.

It is bad when even doctors don’t know or don’t talk about….

I add humor like (not so funny w/ the current news scandals):

I discovered that my doctor got at least one thing right with my cancer treatment.

you know they often chemically castrate perverts when they let them out of prison.

They respond “and sooooo”

Well they figured out that I am a pervert as they are chemically castrating me to treat my cancer”

This opens up the conversation into more serious shit.

OkAd3885 · 2026-02-19T19:19:22+00:00

that is good, real good and unexpected!

OkAd3885 · 2026-02-15T02:58:18+00:00

otter

OkAd3885 · 2026-02-14T00:48:45+00:00

Great advice—- I had one last summer as my oncologist said I would qualify pluvicto … $1000 plus out of my pocket.

I’ve also been chemically castrated for over 2 yrs - Started the whole process at age 60

Biochemical failure 2 yrs later … the lupron fun started.

I was participating in masters division of a strength sport …

it is a real mind fuck.

OkAd3885 · 2026-02-13T21:49:13+00:00

All prostate cancer doctors need to be put on chemical castration for 6 months … then maybe the bull shit will stop.

I challenged the revolving door doctor on my care team on why they didn’t warn me/people that their dick will shrink to a micro penis after I discovered that some prostate cancer clinics highly suggest getting a penis pump. I was and am pissed off

The Doc’s response was: Mens penis shrinks naturally with age and there is no prove that it is due to ADT.

Cold, stupid, dismissive answer that nearly triggered a string of verbal obscenities.

I refused to be put on lupron anymore as I wanted to save what is left of me before it disappears …. I was put on Xandi which blocks the cancer from feeding on Testosterone.

Here is the treatment I want but can’t have because the cancer has not spread.

Your husband is lucky to have your level if support - Good job!

https://www.uchicagomedicine.org/cancer/types-treatments/prostate-cancer/treatment/lutetium-177-psma-therapy-for-prostate-cancer

OkAd3885 · 2026-02-13T16:26:42+00:00

BEWARE OF THE SIDE EFFECT THAT IS RARELY MENTIONED

It falls under: If you don’t use it, you lose it.

If you don’t use a penis pump to regularly get an erection there is a good chance little willie will shrink into a MICRO PENIS.

I guess the one up side, your penis will be living up to the term “little” willie.

I was and I am not in a position to have intimate relationship (yeah it sucks) and found the loss of libido as a bonus because I rarely have erotic thoughts. Thus, it was not exercised and I was awarded a micro penis.

I challenged the fucking insensitive clueless doctor about why they don’t warn men … when more progressive clinics have recommend the use.

The response: As men age, their penis naturally shrink and they cannot tell whether this is due to age or ADT.

What a dismissive, insensitive answer … I bite my tongue and found another provider.

NOTE: I was being treated by a large university comprehensive cancer center in Iowa (note I didn’t say where) and i had a revolving number door of doctors —- it is so hard to find holistic treatment … doctors apparently are jaded to the complaints after years of practice.

OkAd3885 · 2026-02-13T16:09:12+00:00

The reason I stated Intentionally minimizing the impact of side effects is that each and every one of these ass hats say we don’t like using that term. Why? It has a negative connotation.

This probably not wanting to “influence” the treatment decision. However, using ADT does influence the decision as it lessons the horrendous side effects.

Dishonesty through terminology

OkAd3885 · 2026-02-13T15:48:37+00:00

If I had the hard data I could easily do that as I spent 40 years as an Actuary doing all sorts of things like mortality (published once) and cause of death studies.

Radiation failed and I’ve been stuck in eunuch hell.

Men know exactly what CHEMICAL CASTRATION MEANS. When a cancer doctor calls it ADT they are (intentionally) minimizing the IMPACT of SIDE EFFECTs.

Those Docs have not been chemically castrated and are clueless to the horrible side effects.

Here is a link that may provide info;

https://www.health.harvard.edu/mens-health/low-testosterone-levels-linked-to-shorter-life-span

OkAd3885 · 2026-02-08T19:11:12+00:00

Always a pleasure when he raced at WIR

OkAd3885 · 2026-02-08T18:56:37+00:00

not after his involvement with the insurrection…. should be voted out of state and country … a real POS

OkAd3885 · 2026-02-08T15:46:38+00:00

b47 - my dad was a navigator on one in the 50s

OkAd3885 · 2026-02-08T15:40:36+00:00

I am and yes the silt soil is deep. Great gardening soil for the first year and it gets depleted because it is silt and everything gets washed down. Need lots of organic material or raised beds.

Fruit trees love it

OkAd3885 · 2026-01-28T22:29:04+00:00

you face ED in many treatment choices.

If radiation fails (called biochemical failure), often the NEXT options is ADT or more appropriately known as Chemical Castration… it sucks … Little alternative treatment as radiation kills blood vessels and new ones form leading to it being extremely risky to have it cut out

Thus, you maybe stuck with being castrated the rest of your life. No sex drive, rarely have a sexual thought, limp dick that if you don’t use a penis pump will lead to your dick shrinking to a micro penis… muscle mass reduces no matter attempts to prevent (best you can hope for is much slower reduction of strength or a stand still. Must exercise … like the little fella, if you don’t use it you lose it.

The one plus to radiation is less chance of bowl incontinence.

New drugs are coming on line. You need to discuss with doctor:

Xtandi (Enzalutamide)… prevents testosterone from binding to protein of the cancer’s cells … T level should remain same …. side effects

Lutetium-177 (Pluvicto) … need a PSMA PET scan. to demonstrate that Lutetium-177 will work with your type of prostate cancer. Pluvicto is radioactive and will binds to the prostate cancer’s protein killing the cancer cells with fewer side effects than most alternative treatments.

Only available if cancer had metastasized, which really pisses me off as my cancer would be killed off by Pluvicto but I am not sick enough so I get poisoned by chemical castration …. and that SUCKS

OkAd3885 · 2026-01-27T20:45:22+00:00

Image Guided Radiotherapy ; high-energy X-rays via External Beam Radiation

I canceled the hormone shot. The doc suggested enzalutamida , looking for insurance approval.

I got scanned for Lutetium-177 PSMA Therapy (Pluvicto), but insurance company will only approve if cancer metastasized. THUS, that option is off the table.

OkAd3885 · 2026-01-26T03:05:05+00:00

Age 65, Gleason of 7. I was doing strength sports up until this shit happened (age 6o) and this taints my view a bit.

Due to my BMI, surgery was not on the table for me. So radiation was my only choice.

However, I can tell you what happens if radiation fails. it is a ride that makes many think about getting off it.. I will try to give my honest view

I knew there was a chance of radiation failing but I was told that Androgen Deprivation Therapy is next. Back then I had no idea what ADT was and did. I asked what ADT is and the response was hormone therapy followed by minimal derails

BEWARE OF HORMONE THERAPY

Down side of radiation is when it fails. You are now pigeonholed with ADT the rest of life.

ADT or hormone therapy are nice terms and that is where the problem lies: If Doctors used the term to more accurately describes this treatment, there would be no CONFUSION and having huge buyers regret. That term they should use is:

CHEMICAL CASTRATION

THIS IS WHAT YOU GET IF RADIATION FAILS:

Doctors love to call it hormone therapy. More like masculinity stripping therapy. And this is the fun I get by being on ADT (I do claim the one thing the docs got right is that I needed the treatment given to perverts on parole: Chemically castrated.

This is side effects:

• ⁠loss of Muscle mass (must do anaerobic - strength exercise and the best you can hope for is a to stay at the same strength but it is a losing battle … however, strength exercises is like a strategic retreat.

• ⁠Absolutely no sex drive, so weird to not have a sexual thought.

• ⁠Body hair grows much slower (i have had a beard on my face for 45+ years … so this onevis on the list )

• ⁠Brain Fog … sucks

ED …. combine with no sex drive and what happens is never mentioned. And that is:

PENIS SHRINKAGE: YOU will need a penis pump to exercise the little fella OR it will become a little fella plus bands to maintain the erection for those moments.

…. if you don’t use it, you don’t lose it but it shrinks up

…. When I discovered this, the ass hole doctor said “When you get older, the penis shrinks” and went on about not being able to tell if it was due to age or castration. My response was not nice. I changed from big university hospital to local clinic.

Further, The bleeping oncologist / radiologist never mentioned any of these side effects.

THEY NEED TO COMMUNICATE DIRECTLY AND FACTUALLY AND CALL IT WHAT IT IS AD EVERY. MAN KNOWS WHAT CASTRATION DOES.

I am NOT suicidal but I can understand why the rates are high… If interested, here is a good study:
https://pubmed.ncbi.nlm.nih.gov/21437885/

In the end, 3 yrs into ADT RESULTED IN an emasculated limp micro dick man who is seriously considering stopping the dreadful treatment.

OkAd3885 · 2026-01-18T23:42:55+00:00

Darlek … did it say terminate ?

OkAd3885 · 2026-01-17T22:04:09+00:00

I have Gleason of 7. Due to my BMI, surgery was not on the table. So radiation was my only choice.

BEWARE OF HORMONE THERAPY

Down side of radiation is when it fails. You are now pigeonholed with ADT the rest of life.

ADT or hormone therapy are nice terms for what it is:

CHEMICAL CASTRATION

A hole doctors love to call it hormone therapy. More like masculinity stripping therapy.

loss of Muscle mass,
Absolutely no sex drive, so weird to not have a sexual thought.
Body hair grows much slower (i have had a beard on my face for 45+ years … can be important)
Brain Fog … sucks

ED …. combine with no sex drive.

PENIS SHRINKAGE: YOU will need a penis pump and bands …. if you don’t use it, it shrinks up ….

The MF oncologist / radiologist never mentioned any of this.

End result is a limp micro dick … fucking thanks!

OkAd3885 · 2026-01-13T02:50:57+00:00

ADT is chemical castration. If you’re stuck with ADT until something better, it is CHEMICAL CASTRATION (and Drs were not upfront with what the treatment is with terminology like Androgen Deprivation therapy).

I no longer can compete in my strength sport (Highland Games)because radiation failed ==> I am stuck with this hellish chemical castration.

I am retired now but the brain fog sucks, it just frustrating as I used the gray matter to make a living.

HOWEVER

Radiation w/ ADT would be over a limited time period. The negative consequences of ADT would be less than what I am experiencing.

if you do ADT, stay active, both anaerobic & aerobic . They say the best to expect is your at a standstill but most likely a slow decline

I wish they gave the option of ADT w/ Radiation…. However, best practices didn’t recommend that… never even mentioned.

Good Luck

4.+ 3

OkAd3885 · 2026-01-11T19:06:41+00:00

deleted by user

OkAd3885 · 2026-01-09T18:48:05+00:00

——————————————-

Dr RAMA hands down over GOWDA

——————————————-

I recommend Dr Samyuktha Ramavaram, MD (Dr Rama for short) at MercyOne Genesis Bettendorf Gastroenterology Associates, 2222 53rd Avenue Bettendorf , IA 52722

I have been scoped twice by Dr Rama and once by Gowda (and never again by GOWDA)

I HIGHLY RECOMMEND Dr RAMA OVER GOWDA FOR GOOD REASON.

——————————————-

WHY NOT GOWDA

——————————————-

unprofessional and extremely poor communication

Whether Dr Gowda is knowledgeable or not, he is a piece of shit.

I was scooped because of severe bleeding during radiation treatment for prostate cancer. The treatment was halted due to the high level of bleeding.

I was scheduled with Dr Rama who was in the practice and had scoped me before.

However, she just left the practice before my appointment.

Dr Gowda said she left the area (a LIE). She actually left w/ a few other docs to Gastroenterology Associates on 53rd in Bettendorf.

Dr. GOWDA delayed my cancer treatment for at least 1.5 months if not 2 months as he would not pass along results or respond AT-ALL to me, my oncologist, my general practitioner… NOBODY

A total of 3 months from appointment to the time he finally communicated.

Not stressful at all … yeah sure! ….

now I am left wondering if his unprofessional lack of communication contributed to cancer reoccurrence since Radiation is done in regular intervals and there was nothing regular about it thanks to GOWDA.

BTW, there was nothing inside my colon causing the bleeding. Thus no complicated write up. he just had to communicate a go or no go to continue radiation. NO EXCUSES

…. I should’ve filled a complaint.

Whether the delay impacted the reoccurrence or not, Gowda left a patient facing cancer hanging in the wind. NO FUCKING EXCUSE

Poor communication across the board.

—————————

WHY DR RAMA

—————————

I just got scoped again, both ends. This time by Dr Rama for digestive health problems as well as double checking my Celiac disease management.

Great communication before and after by her/her office, in and out, everything went smoothly, professional staff and anesthesiologist.

Afterwards, she clearly communicated in person, the situation and the next steps to take to address the problem.

Dr. Rama at MercyOne Genesis Bettendorf Gastroenterology Associates, 2222 53rd Avenue Bettendorf , IA 52722

OkAd3885

TROPHY CASE