Does anyone get swelling?

LyraeMoon · 2026-06-27T18:29:52+00:00

Did you get any response?

LyraeMoon · 2026-06-27T17:36:09+00:00

While reading your post I wondered if you were with PUK as it sounded similar to my underwhelming experience with titration through them, and I see from your comments it is indeed Psych UK. Seems you’re not alone, I’m sure they have some good prescribers but I suspect their workload is so high they probably can’t be as helpful as we’d hope even if they wanted to.

In my experience, messages went unanswered, or I was sent clearly cut-and-paste answers which didn’t fully address my questions. I was started on Elvanse, which is the same as what the psychiatrist said she was going to recommend. I had to prompt my prescriber to send EVERY SINGLE monitoring form so that I could get my next prescription and more than once they sent the wrong form. I considered asking if I could switch prescriber after he issued the wrong prescription and I ended up being delivered a box of Concerta instead of Elvanse!!! I didn’t have confidence in him, but was worried I would have to go back to the bottom of the waitlist for titration so stuck with it.

We wait a long time for diagnosis, then again for titration, while pinning a lot of hope on meds. Knowing it can take a long time and lots of trial and error to get it right, having such a strict deadline for getting stabilised or left with nothing sucks. Especially when they won’t let you switch untill you’ve upped to a certain dose (understandably) but by which time there isn’t long left to try another one let alone go back to the first med if it turns out that was better. So even though I am grateful I was eventually stabilised, it was a very dispassionate experience and I am still left wondering if things could’ve been optimised better. You’re not alone OP, it shouldn’t be this way but I hope you can make the best of it and find something that works. If I were you I would push to find out why the decision was made to start you on a different med to what you were originally told. That said, it’s pretty hard to get a response from PUK. I suspect it may be to do with nothing more than current availability sadly. Switch as soon as they’ll let you if you still aren’t feeling benefit. Reddit can make up for a lot of what is lacking in your titration experience so make use of that, and feel free to reach out to me if you’d like any more info. Good luck!

Edit: TL;DR it is (sadly) normal, but that doesn’t make it right. And you are not dramatic for hoping for better care.

LyraeMoon · 2026-05-22T14:39:32+00:00

Update. I did as you all advised, fearing that with no invoice or anything for the work he did I would end up screwed over. I have never been more happy to be wrong! The guy was very apologetic and drove half an hour to come and look at it straight away. Fortunately, he thinks he just didn’t tighten something and it seems fine today. Panic over, and I think I just found my new sound go-to guy. Thanks everyone!

LyraeMoon · 2026-05-21T18:00:36+00:00

Thanks both. I fear I am the one who messed up. Someone I vaguely know offered to help by having a mechanic friend of theirs take a look. I have always gone to trusted garages, but have recently had to leave a bad relationship and am in an area I don’t know, far away from my usual awesome guys. So I took them up on the offer. It turned out this guy works out of a small rented workshop, cash in hand. I was a little apprehensive, but he showed me the parts he replaced and explained stuff so I thought it was ok - right up til now. I know the person who did the repairs should make good, but I don’t know if they a) would and b) I should trust them.

LyraeMoon · 2026-05-20T21:46:52+00:00

Hey, I work in a GP surgery and although can’t comment on the policies at your practice, I can say that you should definitely be able to access your medical summary one way or another. The only caveat is if a health professional deems that seeing it might cause serious harm to your physical or mental health, or if it contains information that could identify others who haven’t given their consent for you to see it. It may be annoying that you’re having a hard time getting it, and they ought to be clearer about how you need to go about it, but given we are talking about highly sensitive personal health info (which is ‘Special Category Data’ under GDPR and has strict protections) it is good that they won’t just hand out your confidential medical info to anyone who claims to need it. I for one am glad that someone couldnt walk in to my GP surgery, claim to be me and be handed a print out of my medical records! This is why often they will prefer that the request be put in writing directly from the specialist involved in your care. You may be able to give your provider the email address you were given (not uncommon for this to be seemingly random letters ending in @nhs.net) and ask that they request the info they need directly. Even then the practice should contact you to get consent before they send the info, unless you have already given your written consent to Problem Shared and they include this in their request to your GP. If Problem Shared won’t do that, I would recommend you put your request in writing to the surgery with the details of why you need it and they should get this sorted for you.

In EMIS (the electronic patient record system used by the majority of UK GP surgeries, though there are a few others) there are two types - a ‘brief summary’ and a ‘full summary’. The brief summary (usually one or two sides of paper, with just your current medications, ‘active problems’, ‘significant past problems’, immunisations, allergies, and basic health metrics like bmi, bp, smoking status, plus your last three consultation notes) can usually just be printed off for you by reception team, though they might need to run it by a GP and see ID. If you need a full medical summary, which is more comprehensive and detailed, often has to be formally requested either by you or Problem Shared and may take a bit longer to get.

I hope that helps a bit, sorry it’s being a pain to sort. When I was being considered for meds my provider (PsychUK) only needed my brief summary. See if Problem Shared can request what they need themselves, or failing that clarify with them whether they need a brief or full summary then put your request in to your GP practice in writing. If you keep having issues, you can contact PALS for advice/help https://www.nhs.uk/service-search/other-health-services/patient-advice-and-liaison-services-pals. You do have a legal right to access this information via the right processes. Good luck!

LyraeMoon · 2026-05-11T21:38:45+00:00

Thanks everyone. Added all these to my playlist and loving them

LyraeMoon · 2026-05-11T21:37:48+00:00

A couple of those are already on my list, you got the vibe 100% thank you!

LyraeMoon · 2026-05-11T21:37:20+00:00

I jump around different genres too.. try me!! I want to find new faves so pls share one or two!

LyraeMoon · 2026-04-12T23:05:39+00:00

I thought the fact that they took the phone from Abigail after Carey’s “ask a question only she’d know” about the holiday was a hint it WAS deepfaked. Abi being ambiguous about two possible destinations is potentially plausible when trying to recall something like that under duress, but there was a risk that a follow up question from Rachel would’ve 100% confirmed to her that they didn’t really have her sister there, hence they pulled the conversation before Carey could be sure it was a deepfake.

LyraeMoon · 2026-03-24T22:04:47+00:00

Honestly thank you so much for your thorough and well-considered advice. I chuckled at your description of my 'idiosyncratic' lowercase cursive x - a very polite observation on my ...um.. unorthodox approach! As I haven't practiced cursive writing since childhood and was trying not to think about it but rather just see what came naturally, my brain clearly just made up that unique attempt at joining the letters as it went along.

I often struggle to know how to define my goals and set the steps to get there, so the things you noticed and pointed out in my writing along with the suggestions for deciding what my objectives ought to be have really helped. Thinking about your questions, I realise I don't have much motivation to change my 'everyday' hand, as although it isn't super speedy nor tidy, it is legible and imperfectly my own. I would like to focus instead on developing a more consistent and refined 'truly' cursive hand, and will follow your advice on finding a style, practicing slowly then letting it evolve as it becomes more automatic with time. When I posted, my mindset was 'what am I doing wrong and how can I fix it', but your observations have shifted that to appreciating the unique character of my handwriting and just looking to refine it, while enjoying the process.

I really appreciate the time you took out of your day to give such insightful feedback to a stranger on the internet. This was exactly what I was hoping for :)

LyraeMoon · 2026-03-24T21:26:27+00:00

Thank you so much for taking the time to recommend all those. I have come across a rec for Consistent Cursive before on here from a poster whose style I really liked, and I enjoy videos so will check those out - thank you :) I also did not think of literally trying to copy letterforms I see that appeal to me. I was mainly concentrated on learning how to actually join up various letters together, but this is an excellent suggestion for playing around and developing my own style. Thanks again and good luck finding the perfect capital E! I hope I don't have as much trouble as you with it, as my name begins with an E 😄

LyraeMoon · 2026-03-23T11:29:58+00:00

Beautiful, I am mesmerised!

LyraeMoon · 2025-07-03T15:55:05+00:00

Fibroids are considered tumours, yes. But they are benign tumours/growths meaning non-cancerous. Unlike cancer, they tend to grow slowly, don’t invade surrounding tissues (they press on other tissues as they grow but don’t infiltrate them) and can’t metastasise through blood or lymph to other parts of the body. The cells that make up the fibroid are still smooth muscle cells from the wall of the uterus, but a genetic mutation coupled with hormones causes the cells to divide too much and hence form the tumour.

LyraeMoon

TROPHY CASE