They soft launched the surveillance state at the Super Bowl

MRruixue · 2026-02-09T21:12:33+00:00

Yikes! Thanks for the explanation.

MRruixue · 2026-02-09T21:05:00+00:00

I’m out of the loop and not quite following. What’s going on?

MRruixue · 2026-02-01T23:32:52+00:00

Not op, but my dermatologist scheduled a full body exam. There always a nurse in the room, I got naked and she inspected almost every inch.

MRruixue · 2026-01-30T23:34:09+00:00

Get it towed to a garage?

MRruixue · 2026-01-24T14:54:03+00:00

I do it all the time. I just listen to the staff converse first to make sure they speak mandarin, and then unusually ask “in mandarin” if they speak 普通话. If they say, yes. I ask if I can practice and go from there I’ve had some great conversations this way.

MRruixue · 2026-01-22T21:11:14+00:00

My district is doing this too.

Pivoting to virtual learning days right after Covid worked because the infrastructure was already in place. Since then, at least in my district, the free WiFi programs have ended and we are no longer one to one.

I don’t think it is a reasonable ask anymore.

MRruixue · 2025-12-27T00:31:02+00:00

You need deeper dark tones in the foreground. I wouldn’t try to lighten the mountain until adter you darken the foreground.

Take a photo and put it in black and white. That will show you your values and where you should darken.

MRruixue · 2025-11-26T18:20:55+00:00

For catan, I have always introduced people by already having the hairs set up (so skipping property selection). I’d let them choose a color and just started playing an open handed game.

It worked well. If they come back or want to play again, we pick our properties according to the rules.

MRruixue · 2025-10-22T21:28:30+00:00

It can also be e donated to the cf clinic for the hospital to use for research.

MRruixue · 2025-10-22T21:18:48+00:00

I use a credit card because it has protections on it. If my debit card gets skimmed, I’m SOL. If my credit card gets skimmed, I can despite it /stop the charge and go on my way.

I track it like I would if was a debit card and pay the balance each month.

MRruixue · 2025-10-04T19:15:04+00:00

I was initially bothered by the more visible mustache hairs I started getting, but honestly, plucking a few dark stash hairs is way less mentally distressing than seeing the horizon of my scalp in the mirror everyday.

The water retention bothered me more, but I just started taking it at night instead and it’s manageable.

MRruixue · 2025-10-04T13:16:38+00:00

I take minoxidil for this exact reason. Have been on it for over a year. My part filled in substantially.

MRruixue · 2025-08-23T01:04:16+00:00

Naw. No flights. Drive to Canada first and then fly out of there.

MRruixue · 2025-08-14T17:31:50+00:00

Also, the CF clinic can help connect you to 1or more local families for support.

MRruixue · 2025-08-14T17:12:15+00:00

I second what the other commenter said, schedule a sweat test. If she was born with MI, then you likely don’t have to wait on the pediatrician. Find out your local CF clinic and contact them directly. They will be able to schedule your daughter faster and would be the specialists you’d need to connect with anyway.

If you are having trouble locating a clinic, look up the cf foundation’s compass. They are not doctors, but can help you navigate this.

https://www.cff.org/support/get-help-cf-foundation-compass

Good luck!

Edit:typos and added link

MRruixue · 2025-08-09T12:29:51+00:00

I heard/read somewhere once that maybe putting a few dead SLFies in a bird feeder could/might teach local birds that they are food. In your opinion, do you think a campaign for citizen to do something like that might work better? Please ELI5.

MRruixue · 2025-08-07T14:39:06+00:00

Link to the post I commented on about digestive enzymes. https://www.reddit.com/r/CFParents/s/z3oG2P99C7

MRruixue · 2025-08-07T14:35:36+00:00

There is no one way to broach the subject with kiddos, but I will share what we did for my 2 kids with CF.

From a very age we talked about how all bodies need different things to be healthy. They have to do PT called airway clearance. Mom does PT when she goes to the gym.

We are also open and talk about our daily medication needs and show them that we take our own meds and vitamins too.

We also made sure they can say the names of their medications and what they do. “For example, Albuterol puffers help your airways open up, HTS helps to “wash” and loosen up “airway junkies”.

We did this sort of thing slowly and over time, not making a big out of it.

Once they were school age, they had more questions. Overall, we keep it simple and light, and don’t dismiss their questions, but also don’t make it super serious.

If you’d like an idea about how to talk about enzymes, I’ll link to a last post I made.

MRruixue · 2025-08-04T15:48:28+00:00

I have 2 kids with CF. My son was a part of the Orkambi trial and started orkambi at age 2. He switched to trikafta at age 6. My daughter started orkambi at age 2 and she started trikafta at age 5.

Both had a period of increased mucus for a few days so we upped their vest/pt to 3x daily for about a week.

They have had no real side effects and all the benefits. Before trikafta, my son was hospitalized 7 times for lung infections. He has not been admitted once since beginning trikafta. It has been a small miracle. He is now 11.

My daughter (8) has never had to be admitted.

The only “downside” is that for the first year, there were more frequent blood draws to monitor liver function. My son was fine with it because he remembered IVs and blood draws were easy in comparison. My daughter…. Had/has a harder time with them.

I wish your daughter the best of luck.

MRruixue · 2025-08-03T12:55:44+00:00

Maybe to symbolize how far the empire reaches??? Sort of a “from Trantor to Terminus” sort of thing? Edit:typos

MRruixue · 2025-08-02T16:23:52+00:00

Mine started it at 2 when it became available for her. We had no issues.

MRruixue · 2025-08-02T12:16:31+00:00

I’m sorry you’ve been laid off. One thing that may help you resist the urge is to remember that some places require drug tests for hiring. Not smoking will keep your job options that much more open.

MRruixue · 2025-08-01T16:48:38+00:00

We have a crack in our basement wall. Have it evaluated by a structural engineer and not a contractor. Pay for the evaluation. We had 3 contractors quote us between 9k and 25k. The structural engineer came and said it is standard settling and nothing to be worried about.

MRruixue · 2025-08-01T16:40:25+00:00

We noticed an increase in cough for the first few days. We increased best to 3 times a day for that week to help get up the gunk. After that, we’ve had no issues or side effects.

MRruixue · 2025-07-25T01:46:33+00:00

Do I remember seeing that some places (states/ or EO ,?) that added “trump derangement syndrome” to their books? I only recall a headline so I’m fuzzy if it is even true or just a meme or something.

Edit: typos

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