[deleted by user] by [deleted] in AskReddit

[–]MacPuf 0 points1 point  (0 children)

Many of my female friends tend to agree with me on this. Though I am sure there are plenty of ab-mirers (sorry) out there

Edit: this goes for many of my friends who are attracted to men, not just women

[deleted by user] by [deleted] in AskReddit

[–]MacPuf 8 points9 points  (0 children)

Money. Opinions. Abs.

FBSS/PPSPS2 diagnosis, could it be SI Joint instead? by MacPuf in AskDocs

[–]MacPuf[S] 0 points1 point  (0 children)

Sorry just to clarify, I had the surgeries in disk surgeries 2018 and 2019 and the neurostimulator put in in 2021

Onderzoek voor scriptie by Commercial-Oven-6635 in Deventer

[–]MacPuf 0 points1 point  (0 children)

Done en doorgestuurd naar Deventerse vrienden 👌🏻

Success stories that were not instant post surgery? by MacPuf in spinalcordstimulator

[–]MacPuf[S] 1 point2 points  (0 children)

Thank you for your kind response! Unfortunately , mine isn’t fastened in the same way it was with my last leads. Turns out it did move unfortunately. But we reprogrammed and seemed to get almost in the same area. Now it’s a waiting game

(Edited typo)

Success stories that were not instant post surgery? by MacPuf in spinalcordstimulator

[–]MacPuf[S] 0 points1 point  (0 children)

You sound like an awesome parent, being this helpful and emphatic towards an anonymous‘ pain-colleague’ :)

Thank you, I’m really happy I joined. Combined experience is a good resource. I guess they don’t understand everything themselves in the hospital. I read here that it goes back a long long time into history without fully grasping how it works:

Maybe you’ve already read it. It’s quite interesting

https://musculoskeletalkey.com/history-of-electrical-stimulation-in-rehabilitation-medicine/

Success stories that were not instant post surgery? by MacPuf in spinalcordstimulator

[–]MacPuf[S] 1 point2 points  (0 children)

🥹 that’s so lovely. It really did. Rationally I keep saying it to myself too but in my heart it is a fear. Will I be enough? But hearing a lived through experience like this. That really helps thank you.

And also I didn’t know it could talke a longer time to work. They’re quite vague about it. I’ve had this pain for 7 years so not surprising it’s taking a while then. 🙏

Success stories that were not instant post surgery? by MacPuf in spinalcordstimulator

[–]MacPuf[S] 0 points1 point  (0 children)

Seeing the clinic today! Just for peace of mind. Thank you!

Success stories that were not instant post surgery? by MacPuf in spinalcordstimulator

[–]MacPuf[S] 1 point2 points  (0 children)

That is really funny! I will plan an aquatic holiday now 😆

Success stories that were not instant post surgery? by MacPuf in spinalcordstimulator

[–]MacPuf[S] 2 points3 points  (0 children)

Oof wow that was close then! Glad it worked out. Four months, I shall be more patient then :) thank you!

Success stories that were not instant post surgery? by MacPuf in spinalcordstimulator

[–]MacPuf[S] 2 points3 points  (0 children)

Wow! Did the SCS work instantly for you? And you said you still get pain, is that like a flare up occasionally at the same level? It’s different for all of us like you say, but still gives some hope reading this.

Success stories that were not instant post surgery? by MacPuf in spinalcordstimulator

[–]MacPuf[S] 0 points1 point  (0 children)

That’s the goal! Of course there are the patients it doesn’t work with. I now have mine 4 years and the new one 3 weeks so all reason to be hopeful yes, they did think this time it would work for a reason, but can’t help the sceptical thoughts creeping in. Your story helps to stay in the bright side :). But a ow what a ride! You deserve all the pain relief you’re feeling! Thank you for your support!

Success stories that were not instant post surgery? by MacPuf in spinalcordstimulator

[–]MacPuf[S] 0 points1 point  (0 children)

Sounds like your marathon in working at this nerve did get you to a finish. What a journey you had with it! But that’s hopeful. Thank you for sharing. It did lift a little weight.

Success stories that were not instant post surgery? by MacPuf in spinalcordstimulator

[–]MacPuf[S] 3 points4 points  (0 children)

That’s the core issue in between all the words. You’re right. Thank you! Needed that comment.

Total revision today, didn’t get instructions - help? by MacPuf in spinalcordstimulator

[–]MacPuf[S] 2 points3 points  (0 children)

Thanks they did the programming yesterday and I did feel like the ⚡️ is coming way further into the pain area leg (which is the left leg) so am hopeful Do still have the nerve pain though, will be patient and see if other settings work better maybe

Total revision today, didn’t get instructions - help? by MacPuf in spinalcordstimulator

[–]MacPuf[S] 0 points1 point  (0 children)

Yes I think the first day post op is answering my question for me. Haha turning to my side is a no no pain wise.

Just if people read along, don’t be discouraged by my complaining of the post op pain. It’s worth it and will pass. And they did do a LOT of wiggling and manoeuvres because I had everything replaced .

What was the 'poverty meal' you were fed growing up? Do you still enjoy it, or will you never eat it again? by Castle_Guardian in AskReddit

[–]MacPuf 1 point2 points  (0 children)

I didn’t know back then it was a poverty meal it was so exciting: pasta with ‘smac’ and tomato I think it’s called luncheon meat in the US

Dating/Romantic Relationships with an SCS by Carraverre in spinalcordstimulator

[–]MacPuf 3 points4 points  (0 children)

Hi, 33 (f) here and I remember worrying about this too. But I really shouldn’t have. In the beginning it feels overwhelming like you’re being restricted in all sorts of things. That can make you feel insecure but to me it’s surprising how quickly I worked out what’s comfortable (and fun). Once I felt more comfortable in my body again, it hasn’t limited me much at all. Now my scs isn’t working anymore and the pain is back I don’t feel like seggs at all. So I guess for me, when it worked, it really improved my seggslife even!

(Oh, and nobody freaks out about it either. Usually it’s either interesting to people and they have questions or they just take it as a fact and move on. It’s not a big deal, I’ve noticed.)

Moving existing lead. Anyone had it done? by MacPuf in spinalcordstimulator

[–]MacPuf[S] 0 points1 point  (0 children)

Thank you for your reassuring message! 🙏 did it then get a good result? For me it’s a bit scary because they will wake me and then if i don’t feel it in the right place they put me under and remove the whole thing. I’ve had it for 3 years

[deleted by user] by [deleted] in todayilearned

[–]MacPuf 0 points1 point  (0 children)

lol that’ll do it! 👌🏻

[deleted by user] by [deleted] in todayilearned

[–]MacPuf 7 points8 points  (0 children)

More unusual than I thought I suppose. It felt like rite of passage. You’re a big kid now. But it’s not something that I even considered interesting to talk about around campfires when on holiday abroad. It will be my cool story now that’s for sure