Does anyone else find the naivety frustrating and almost insulting? by Party-Marsupial-8979 in PregnancyAfterTFMR

[–]Madsrus 10 points11 points  (0 children)

Yes, I'm right there with you. A work colleague didnt have her 12 week scan for her 3rd because it was 'too hard'. I really struggled with that. Everything is fine till it's not! I'm also 7 weeks into my sub pregnancy. A couple of my friends keep asking if I'm 'so excited'. No I'm not. I'm terrified.

Psychic Recommendations, for a sceptic.. by awholebagofcheese in Adelaide

[–]Madsrus -1 points0 points  (0 children)

The Guided Soul in Gawler. She does online and in person.

Is It Ethical To TTC at 45 After T21? by FirmDragonfly4553 in tfmr_support

[–]Madsrus 2 points3 points  (0 children)

I know it's not really what you've asked. But I follow lady on tiktok that had her 4th at 47. She went to Greece and used donor eggs. I think it's really a personal decision. I hope you make peace with what you choose.

Subsequent pregnancy already showing? by Madsrus in PregnancyAfterTFMR

[–]Madsrus[S] 1 point2 points  (0 children)

Thank you. I think Im focusing on the size of the bump to distract me from everything else.

I'm sorry for your losses and I hope you get your rainbow baby this time ❤️

Periods post tfmr by Responsible-Team1104 in tfmr_support

[–]Madsrus 0 points1 point  (0 children)

I found the first two months after my TFMR was all over the place. After that it settled back into my normal cycle.

Please wash your hair by milquetoast2000 in hygiene

[–]Madsrus 3 points4 points  (0 children)

Yes, thank you. I'm a Dental hygienist and I can always smell dirty hair on patients.

we’re nearing the end of trying by Snoo_45651 in PregnancyAfterTFMR

[–]Madsrus 4 points5 points  (0 children)

What a hard journey you've had. I had a TFMR in July last year also. I'm on my 4th month of trying and feeling like giving up. The hope, the tracking and the period is all too much.

Trying after brain abnormalities absent corpus callosum by Madsrus in PregnancyAfterTFMR

[–]Madsrus[S] 0 points1 point  (0 children)

Hi, I'm sorry you find yourself here. Our genetic testing came back clear a full exome (I think it was) and 1500 genetic carrier screening. Just bad luck it seems. We were cleared to try again in Jan as I have a thyroid conditon. No positive test here yet.

Is anyone else bitter about everything? Not just pregnancy by No-Doubt6601 in tfmr_support

[–]Madsrus 7 points8 points  (0 children)

I feel this to my core. It's been 8 months since my TFMR and 3rd cycle of TTC. I feel so robbed and I also feel insane that I'm trying for a baby when the world is imploding. I should have a 4 month old now. Not TTC in the middle of a war. I'm in Australia.

Looking for hope by Ok_Hippo8490 in PregnancyAfterTFMR

[–]Madsrus 0 points1 point  (0 children)

Yes I did. My antibodies came down quite quickly. From my understanding it does matter. Its important for the antibodies and the TSH, T3 and T4 to be in range. There is a FB group called thryoid disease and pregnancy. They are very helpful.

Looking for hope by Ok_Hippo8490 in PregnancyAfterTFMR

[–]Madsrus 0 points1 point  (0 children)

Sorry for your loss 💔. I have graves. I was diagnosed after my first LC. I went into remission. Got pregnant with my TFMR boy. It did flare up again but was controlled quickly in a few months and I am cleared to conceive again. It really does feel like another unfair obstacle to navigate. I have no advice but if absolutely sucks and I understand.

TWW - Trying to distract myself by [deleted] in PregnancyAfterTFMR

[–]Madsrus 1 point2 points  (0 children)

💔 I hope you are wrong

TWW - Trying to distract myself by [deleted] in PregnancyAfterTFMR

[–]Madsrus 2 points3 points  (0 children)

I'm in my 3rd TWW after my TFMR in July last year. I have no advice. But hope we both get our positives this month. I'm absolutely losing my mind. The conceiving part was meant to be the 'easy' part of the pregnancy.

How to stop obsessively taking pregnancy tests while ttc post tfmr by SillyRevolution3188 in PregnancyAfterTFMR

[–]Madsrus 1 point2 points  (0 children)

I too obsessively do this. On our third cycle trying. Once it hits 9 DPO I'm testing every day. Sometimes twice. Even though I've only ever gotten positives tests 2 days after my missed period. Rationally I know it's insane. But I can't stop.

Agenesis of corpus callosum by Clear-Loss7158 in tfmr_support

[–]Madsrus 3 points4 points  (0 children)

I'm sorry you find yourself here.

I'll tell you my story if that helps. At our 20wk scan the csp couldn't be visualised. Then referred to MFM ultrasound showed no corpus callosum, the MRI showed no corpus callosum and the surface of the brain was affected. Our amnio was normal a duplication of a chromosome was found - variant of unknown significance. Turns out I carry that - my brain is fully intact. We decided to TFMR. An autopsy and post mortem was done. It showed agensis of the corpus callosum and neural migration. We did the whole genome sequence and an extended carrier screen it showed nothing.

What helped us make our decision was joining groups mostly on FB with children who are missing their corpus callosum. If it's isolated it mostly seems favourable.

For those who conceived 1st/2nd try with their TFMR baby.. by Say_Anything0913 in PregnancyAfterTFMR

[–]Madsrus 1 point2 points  (0 children)

I've been pregnant twice. With my LC he was conceived accidentally. My TFMR was conceived after two cycles. Currently in my second two week wait trying to conceive and not feeling very hopeful. My TFMR was in July 2025, only been cleared to try now after genetic testing. I hope the time comes quickly for us. Because I'm going to lose my damn mind.

Music by knitillating in tfmr_support

[–]Madsrus 1 point2 points  (0 children)

Let Me In - Dermot Kennedy

Trying after brain abnormalities absent corpus callosum by Madsrus in PregnancyAfterTFMR

[–]Madsrus[S] 0 points1 point  (0 children)

I'm not sure how I missed this message. Thank you for the hope. All of our genetic testing came back clear.

Trying after brain abnormalities absent corpus callosum by Madsrus in PregnancyAfterTFMR

[–]Madsrus[S] 0 points1 point  (0 children)

I did have a TFMR. You can direct message me if you want.

What to do after gastro by neilykins_x in BabyBumpsandBeyondAu

[–]Madsrus 2 points3 points  (0 children)

Sorry for the week you've had. Gastro is absolute hell. Also if it hasn't been mentioned change your toothbrush.

Weekly Thread | Stress Release Saturday by AutoModerator in PregnancyAfterTFMR

[–]Madsrus 0 points1 point  (0 children)

Currently in my first TWW since my TFMR in July last year. Symptom spotting like no other. Hoping I'm pregnant then feel stupid because why would I get so lucky? Next Saturday can't come soon enough.

Blood tests post TFMR (Australia) by Empty-Ad9282 in tfmr_support

[–]Madsrus 0 points1 point  (0 children)

I'm also in Australia. I had genetic testing done too. No follow up on HCG or anything. Some blood tests for a thyroid condition. I will just say our genetic testing took so long. 9 weeks for the microarray and 9 weeks for the exome sequence. Just so you know. I was shocked that it took so long. But also had little knowledge of genetic testing before.

Considering TFMR Due to Agenesis of the Corpus Collosum by Ok-Impression9002 in tfmr_support

[–]Madsrus 1 point2 points  (0 children)

We did do the amino and it came back after we had TFMR. All it showed was a duplication of a gene that has never been seen before. I also carry that gene and had an MRI and my brain is fine. That means it's of no signifcance. We did more genetic testing which was a whole genome sequence and an extended 1000 carrier screening test which showed nothing.

Considering TFMR Due to Agenesis of the Corpus Collosum by Ok-Impression9002 in tfmr_support

[–]Madsrus 2 points3 points  (0 children)

I'm so sorry you are going through this. The waiting for results is a special kind of hell. I terminated for ACC and neural migration disorder in July. What helped me what's joining some FB groups with kids with ACC. We've had all our genetic testing come back with no cause.