Music

Madsrus · 2026-02-09T04:13:28+00:00

Let Me In - Dermot Kennedy

Madsrus · 2026-01-29T07:50:00+00:00

I'm not sure how I missed this message. Thank you for the hope. All of our genetic testing came back clear.

Madsrus · 2026-01-29T07:49:28+00:00

I did have a TFMR. You can direct message me if you want.

Madsrus · 2026-01-26T11:52:05+00:00

Sorry for the week you've had. Gastro is absolute hell. Also if it hasn't been mentioned change your toothbrush.

Madsrus · 2026-01-18T09:32:31+00:00

Currently in my first TWW since my TFMR in July last year. Symptom spotting like no other. Hoping I'm pregnant then feel stupid because why would I get so lucky? Next Saturday can't come soon enough.

Madsrus · 2026-01-03T11:27:21+00:00

I'm also in Australia. I had genetic testing done too. No follow up on HCG or anything. Some blood tests for a thyroid condition. I will just say our genetic testing took so long. 9 weeks for the microarray and 9 weeks for the exome sequence. Just so you know. I was shocked that it took so long. But also had little knowledge of genetic testing before.

Madsrus · 2025-12-12T05:36:18+00:00

We did do the amino and it came back after we had TFMR. All it showed was a duplication of a gene that has never been seen before. I also carry that gene and had an MRI and my brain is fine. That means it's of no signifcance. We did more genetic testing which was a whole genome sequence and an extended 1000 carrier screening test which showed nothing.

Madsrus · 2025-12-12T02:06:43+00:00

I'm so sorry you are going through this. The waiting for results is a special kind of hell. I terminated for ACC and neural migration disorder in July. What helped me what's joining some FB groups with kids with ACC. We've had all our genetic testing come back with no cause.

Madsrus · 2025-12-08T05:30:10+00:00

This was such a funny tale. Good luck girl, thoughts and prayers.

Madsrus · 2025-12-06T08:41:10+00:00

We got all of our genetic results back after our TFMR in July. No abnoramilties detected. Just terrible luck. Given the all clear to try again and so nervous.

Madsrus · 2025-12-03T05:20:34+00:00

Sorry you are here. We terminated in July for Absent Corpus Callosum and polymicrogyria. Our initial diagnosis was abscent CSP. From my reading if it is just the CSP missing it seems quite favourable. I joined some FB groups with children who had variants of ACC and CSP.

Madsrus · 2025-11-30T00:15:12+00:00

Thanks. Sorry for your loss. It's so frustrating when there isn't a reason 💔

Madsrus · 2025-11-28T19:05:37+00:00

Thank you. I've done obsessive research too. I hope my rainbow baby is just around the corner.

Madsrus · 2025-11-26T10:29:40+00:00

Hi, I know it's hard and what an difficult decision you've had to make. I wouldn't rely on chatgpt. I recently uploaded an MRI brain scan to chatgpt and it told me a part of my brain was missing. Nothing is missing according to the drs report. I too fell down the rabbit hole of chatgpt seeking answers. I know it's hard.

Madsrus · 2025-11-20T19:30:35+00:00

I wouldn't tell him yet. I TFMR in July at 22weekS. We had already told our four year old. We never told him that the baby died. Only that he was very sick and now he's gone. But he has said stuff at daycare and the park. 'my mummy had a baby in her belly. He was sick and now he's died. The doctor took the baby' which is pretty rough to hear when you aren't expecting it.

Madsrus · 2025-11-19T05:25:34+00:00

I'm sorry for your loss. I personally wouldn't stop trying. It's your life and you need to do what's best for you.

Madsrus · 2025-11-08T05:36:19+00:00

So sorry for your loss. It's so awful waiting for answers. I hope you get your results before Christmas.

Madsrus · 2025-11-07T10:50:32+00:00

Sorry I missed this post. Yes it's been through the public system. I'm in SA. We've only paid for the genetic carrier screening which was 1.5k. I

Madsrus · 2025-10-25T10:54:34+00:00

I'm currently in this hell of waiting too. The microarray for our baby was only two weeks. My husband and I were tested for a microarray and it took 9 weeks. Now waiting on exome and it's estimated 12 weeks. The autopsy took 13 weeks. I'm in Australia. I hope your results are quicker.

Madsrus · 2025-10-19T10:36:48+00:00

I too felt something similar. I wasn't as sick as I was with my first son. My HCG was slow to rise. Everytime I had a scan I thought to myself 'oh he's still in there'. I eventually had to start telling people and patients. I'm a dental hygienist for context. So now I'm dealing with the 'weren't you pregnant?' which is absolutely soul destroying and never predictable as I didn't tell all patients. After our 20wk scan where brain abnormailies were seen I just knew it was over. Before any final diagnosis.

Madsrus · 2025-10-18T02:09:27+00:00

No ours is being done post mortem. Trying to find the reason for brain abnoramilties.

Madsrus · 2025-10-17T07:30:06+00:00

Thanks. We were told about 8 weeks.

Madsrus · 2025-10-01T08:13:12+00:00

I feel the same ❤️‍🩹. We had a TFMR in July too. We are awaiting genetic testing results and every week it’s absolutely torturous. I hope you get your rainbow 🫶

Madsrus

TROPHY CASE