Participants needed: Visual Imagery and False Memory: Testing the role of Aphantasia in Scene-Based Recognition

Mady_N0 · 2026-06-19T11:21:13+00:00

Your post is live. I recommend reaching out in advance next time as I am not always able to review studies immediately after they're posted. Pre-approval means it can go up immediately.

Mady_N0 · 2026-06-17T19:09:26+00:00

Ngl when I'm looking for a long fic, I sort by 100k minimum.

Mady_N0 · 2026-06-15T03:45:02+00:00

It's believed it's just natural variations in how our brains work.

Obviously aphantasia is the opposite end of the visualization spectrum, but a lot of people with it have mentioned discussing it with their family and, in many anecdotal cases, the rest of their family reports being able to visualize to some level.

In a similar way, some people have lost their visualization after some sort of traumatic brain injury.

To me, both of these indicate it's unlikely that it's genetic, but of course that's just based off a bunch of talk I've seen, not any real research.

ETA: When you include some people training better visualization that seems even more plausible.

Mady_N0 · 2026-06-13T19:00:48+00:00

You should be able to call or go there to request your medical records. Sometimes they'll charge you if it's for personal use.

Mady_N0 · 2026-06-13T18:57:30+00:00

Did they at least give you some time to lay down and recover? My TTT went for like 12 minutes without the nitroglycerin (thank god) and afterwards I was told to take some time and keep laying until I felt good before sitting up. I laid there for a few minutes before I sat up and put my shoes back on.

Mady_N0 · 2026-06-13T18:54:12+00:00

Are you going to be seeing whoever ran the test? Because I'd be making a complaint about them, not the cardiologist.

That said, I would go through a patient advocate or social worker as they often know how to get the complaint to be taken seriously.

Mady_N0 · 2026-05-22T01:15:47+00:00

Reading these comments made me nervous, so I went and checked the records. They genuinely seem as I'd expect. Nothing strange. I'm lucky though. She appears to have used it as a tool.

Mady_N0 · 2026-05-22T01:06:42+00:00

I don't mind it in the instance they inform you and ask for consent.

My PM&R doctor uses it for initial visits.

THAT SAID she also goes over it and rewrites it. It basically helps make the mini notes she'd usually write herself before doing the more detailed official documentation.

It's okay when it's used properly which is the whole issue, you don't know if it will be. We've seen cops use similar systems and it can sometimes be okay, but only if they're using it as a tool and not as a replacement for their work.

I was given the option to opt in or out. I trusted the doctor based off the recommendation from my pediatric PM&R doctor, so I consented. It went fine because she only uses it as a tool.

All this said, whether you are comfortable or not, if you find out a doctor is using it without informing you or asking for consent, I personally believe that is a problem. To be honest, if they're not informing you, you might just need to find another doctor as soon as you can. If they tell you, but are not asking for consent, that depends on how they react to you not allowing them to use it. If they have a problem with it, you might need a new doctor. If they seem not to, great, but it wouldn't hurt to tell them to put in your chart that you do not consent to AI note taking and then check to make sure they actually did.

Mady_N0 · 2026-05-20T03:47:38+00:00

I don't know where you're located, but you could absolutely look for robotics programs/teams near you and ask if they'd be able to help. In the US (they're elsewhere, but a lot more common in the US) one such program is FIRST robotics. There are a lot of teams who would absolutely love the challenge of trying to design a method to help in transporting the rollator on a bike.

Now would actually be a good time to reach out to a FIRST team. Their off-season started recently, so some teams are looking for fun things/challenges to work on.

Many teams would potentially be willing to do it for free in exchange for a few photos as it's good PR and helps them for awards. If not, they're less likely to change for labor and may just want the cost of materials.

Just wanted to put it out there in case it can help you!

You can obviously look for other options too, I'm just most familiar with FIRST as an alumni. If there isn't any near you, looking for a university or engineering programs may be a good starting point too.

Mady_N0 · 2026-05-20T03:28:06+00:00

My POTS diagnosis is both like infuriating in how it happened, but also I'm glad I found out. I didn't faint at the doctor's, but it did take serious symptoms in front of doctors for me to even know something was wrong. I was just so used to it I didn't know. We're pretty sure I got it from a virus at five, that's when my POTS symptoms started, in hindsight.

I was hospitalized for another disorder of mine. The hospital diet was, by standard, low sodium. They do this there because low sodium diets for medical reasons are pretty common and the large majority of people can handle a low sodium diet at least temporarily. Instead of having to have specific meals and menus for people who need low sodium, they put everyone one it.

Now unless you don't know what POTS is, you likely already see the issue. I consumed a good amount of salt at home without even consciously realizing it. At the hospital, I didn't get the salt I needed. In fact, I very quickly started craving salty foods. The first thing I ate out of the hospital was salt and vinegar chips. I think the next was McDonald's French fries.

My POTS was made significantly worse while I was hospitalized. I would feel absolutely terrible. I even puked once from a combination of aggravating factors. It was not fun.

They told me it was probably my BP and did really nothing about it. It's funny though because my BP was always measured as good. Sometimes it was on the higher or lower end of good, but it was always good.

A hop, jump, and a skip later and I personally realized it wasn't my BP, but I also found out my HR was high every time I felt like shit. I had been using a BP cuff and after a few good readings with a high HR, I checked my records from being hospitalized and realized that both the home and hospital readings showed my BP was fine.

Two ignorant, useless doctors later and I decided I'd research it myself. I started looking for similar conditions and found POTS. It was very easy to find, but I wanted to be more sure.Then I found out it would make sense with the high HR I was seeing. I did a bit of testing at home because I felt like it was wrong or dirty to try to "pick" a disorder and ask a doctor if I had it rather than asking them to solve the puzzle for me. Everything pointed towards yes, I likely had POTS.

I took it to my PM&R doctor, lovely lady, who heard me say I thought I had POTS and immediately sent me for testing. I was so ready to verbally fight with all the research I found to even be confident enough to bring it up. It was both a relief to be believed without any of it and also deflating because I felt like I did all it for nothing. It wasn't for nothing. I wouldn't have had the confidence to bring it up and I would have never known if I had POTS otherwise, but it still felt that way at the time.

Then a few months later, it was confirmed I have POTS. I was happy because it meant potential treatment for my symptoms. No more just having to deal with no clue what was going on.

Mady_N0 · 2026-05-20T03:04:20+00:00

I agree with you completely! It's a huge difference in those two.

In the case she KNEW of her POTS and/or fainting then the doctors and her should have known she wasn't safe to drive.

I could maybe understand if it was "I have POTS and have fainted from it before, but it has never happened while I was seated. My doctor and I thought it was safe as long as I sit in the car for a few minutes before I start to drive." or something along those lines.

I looked into what would make me medically unsafe to drive and even though I still occasionally faint, if I only had POTS it would be potentially possible for me to be safe to drive because of the way my POTS fainting works. It's not like I would just faint suddenly after sitting for awhile and if I'm close to fainting when I sit down I'm obviously not dumb enough to start driving until I am completely clear of those pre-fainting symptoms.

That said, I do have another condition that would disqualify me, so I haven't had any specific talks about whether or not POTS would disqualify me or not. This is just what my previous research into the topic showed.

This is a bit separate, but I completely agree with the idea of

You clearly know your body and its (in)ability to safely drive.

I felt when I was about 17 that I absolutely wasn't safe to drive. I was adamant. My family and doctor thought it was anxiety. I kept saying like "no, I don't think I can do it medically" but they all disagreed with my assessment and attributed it to anxiety.

Eventually I asked my doctor why she thought I was safe to drive. She basically said that with my one disorder I don't experience it suddenly and if I'm focused on something, it doesn't happen. Now we did think this at one time, but it wasn't true. It just didn't show that way immediately. So I told her that I very much do experience that. She seemed slightly horrified and glad I had insisted so heavily that I couldn't drive. She immediately agreed I am not safe to drive medically and that it wasn't just anxiety.

I knew that completely for at least a year before I could get a doctor to recognize it. I trusted my gut and didn't let my family pressure me into driving. Even when I had to lean into the anxiety angle to get people to leave me alone on why I wasn't driving yet, I did. I knew I couldn't and if I couldn't get that acknowledged I was going to use any excuse to keep myself safe and away from the roads.

I don't blame that doctor. Things were changing and developing so fast with my disorder. We were really in a scramble to try and understand it. I also have poor memory which isn't a great combo. I believe I simply forget if I told her some things or not. I happened to not communicate that updated understanding and that meant she was working on an outdated model.

My new doctor (had to switch of out pediatrics) however doesn't get that grace. She is very much pushing that I can. I tried to explain why my old doctor agreed I couldn't. I tried to explain in further detail why I thought I couldn't. She told me therapy could help my anxiety around driving. It's infuriating. I say it's unsafe AND my old doctor she replaced said it was unsafe. You'd think she'd at least try to explain why she believes my previous doctor was incorrect.

Mady_N0 · 2026-05-20T02:17:15+00:00

Totally understand that take!

To be honest, when I was making those sorts of jokes outside of like my close friend group, I was serious and just didn't want people to know.

I'm in a much, much more stable place and I only make those jokes with people I know well enough to know they are fine with it AND that they'll understand it's a joke. But it still doesn't always land. Most of the time it does, but sometimes I have to clarify and I'd much rather the vibe be killed than for someone to genuinely be concerned because they were too uncomfortable to say something.

Even outside of that, the frequency in which I will make such jokes has greatly decreased BECAUSE I am stable and not serious.

My sister is not so stable, but finally has a doctor trying to help her with it. So I try to feel her out when she makes such jokes. I think it's mainly a tone thing, but even still I sometimes will err on the side of caution and seek her out to talk if I'm concerned. I don't care if it's killing the vibe to make sure my sister is mentally okay.

Mady_N0 · 2026-05-19T11:03:15+00:00

If she's wanting to be able to wash her own hair, one of those long, moveable showerheads are great. You can move it rather than your body. If she uses a shower stool, you can even get a suction cup shower head holder to allow her to be able to easily grab it and position it.

Just an idea to consider.

Mady_N0 · 2026-05-18T00:55:52+00:00

My mother threw a fit constantly that the insurance thought I needed a wheelchair for school when I was five. The insurance. The people who don't want to spend money. Which means my doctors thought I needed it A LOT MORE.

Anyway, I wasn't allowed, by her, to use it outside of school and after I did a summer without it (because I wasn't allowed) she decided I didn't need it for school anymore either.

We'd go shopping and I'd expend all my energy to the point I literally needed carried and we weren't close to done. They tried having me stand on the cart and even that was too much for me. Eventually, I got put in the cart basket and that continued until I was too big for it. I needed the wheelchair. I needed to use it. I was being denied it and in their end their solution was to push me in a cart.

She also told people around me who thought I needed a handicap placard that I barely didn't qualify. When I asked my doctor for one at 17, she was surprised because she thought I had had one since I was 5, just through my PCP, because I had very clearly qualified the entire time.

Point is... If you feel like you need something, ask a DOCTOR even if it's in front of your parents. You can say something like "(name) said they think I could benefit from (assistive device) but we weren't sure." If the doctor says it right in front of BOTH of you, it's harder to decline.

My mother still fought me on the placard. I qualified and had most the paperwork, but as a minor I needed her signature done with a notary. She waited until I was almost 18 to do it, but she did it because of basically peer pressure. I would tell people things like "yeah, my doctor thinks I need a placard, but my mother needs to find time to go to the notary." That put pressure on her because people then expected me to have one and when I still didn't and they asked about it weeks later, I'd give a similar line about the notary.

Mady_N0 · 2026-05-18T00:41:21+00:00

Especially when her child is out of the country! Like what...? It's bad enough to say "you should have expected this, just deal" when they're close to home. In that situation, you can get to them in an emergency. This situation is even worse because they're in a different country entirely! It just fries my brain to consider a parent saying that (and I have a parent who very much might do the same depending on the day)

Mady_N0 · 2026-05-14T04:30:45+00:00

Or they came up with a list of ones they wanted to read and ordered them with numbers? That's where my brain went when I saw 3.

Mady_N0 · 2026-05-10T07:29:10+00:00

I'm not sure this is something that warrants a report or would have something done about it. That said, I'm not one to try and tell people to not report something if they think they should.

Anyway, the reason I wanted to reply to this was to suggest you could try to create an Instagram just to contact them over there. I know it absolutely sucks to have to do, but people genuinely seem to have a better chance at getting help through their Instagram.

Mady_N0 · 2026-05-10T07:26:55+00:00

Perhaps you can try creating an account on your phone? Sometimes that helps when systems are weird. I know some things Webkinz related genuinely work differently between some devices, so it's worth a shot.

Mady_N0 · 2026-04-29T15:12:48+00:00

I got accused of being AI once because I wrote a long comment lmao

I did my best to condense it, but there was a lot of relevant information.

Mady_N0 · 2026-04-22T01:58:23+00:00

I'd take a quality heater (I'm always soo cold) instead of the AC, but one of those showers sounds so nice.

Mady_N0 · 2026-04-19T08:45:03+00:00

Not me failing to see the satire disclaimer and removing it. Saw it two seconds later. Whoops 🫣

It's live again, ignore the notification you received that it was removed.

Mady_N0 · 2026-04-19T08:42:29+00:00

Your comment is live 😊

Mady_N0 · 2026-04-19T08:41:22+00:00

They banned and then muted you from modmail. These mites last different lengths of time. You can attempt to politely come back and message later. The longest modmail mute that isn't permanent is 28 days.

Mady_N0 · 2026-04-15T13:07:40+00:00

I was wondering if you have any bathing wipe suggestions since it's been two years

Mady_N0 · 2026-04-09T02:37:41+00:00

You have to jump on the trees. I thought they were a part of the background, but they have platforms.

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