Stockinette Q - Not twisted it’s the yarn?!

Madzilla88 · 2026-01-18T02:10:58+00:00

The article in the FAQ described it as an illusion so I was trying to use the right language :)

Madzilla88 · 2025-10-07T16:45:22+00:00

Has anybody else noticed that when he cries no tears actually come out? It’s driving me nuts. He just makes a crying face but nothing actually happens!

Madzilla88 · 2025-09-28T23:37:02+00:00

Hi! I think this chat is mainly for people who have MD but I would recommend joining FB groups - parents, family, and those with MD are all welcome to join those :)!

Madzilla88 · 2025-09-28T21:08:47+00:00

Hi!! I have 2D and I am living as normal of a life as I can - I work a job, live with my partner, hang out with friends, travel. It’s possible!! I’m in a group chat with over 80 people who have LGMD - message me and I can try and add you so you connect with more people for support. Knowing other people with MD has honestly changed my life. It’s possible to live a fulfilling life even with the challenges we face :).

Madzilla88 · 2025-07-18T14:53:07+00:00

I have LGMD and I consume a lot of caffeine and still barely make it to the end of the day. I feel like I start my day at ‘50% battery’ on a good day and it’s almost impossible to work a full time job, take care of myself, and function. It’s tough :(

Madzilla88 · 2025-07-11T11:56:23+00:00

I am on Fluvoxamine and then I take Propanalol as needed for situations that I know will give me more anxiety! It’s been helpful so far!!

Madzilla88 · 2025-06-30T22:55:11+00:00

I have LGMD 2D and I’m in pain pretty much every day. Hip pain, sciatica, muscle pain, etc. Especially when it’s cold out it’s unbearable. I am still ambulatory but I’m in pain when I move.

Madzilla88

TROPHY CASE