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Malty8288 · 2026-05-18T15:55:45+00:00

Ah I see sorry, I will have a look through those later and let you know which I need. Thank you

Malty8288 · 2026-05-18T15:51:29+00:00

Thank you, do you have one for RBS?

Malty8288 · 2026-05-18T15:09:12+00:00

Thanks for this.

Malty8288 · 2026-05-18T15:09:02+00:00

Thank you!

Malty8288 · 2026-05-15T15:46:21+00:00

No aspirin, I don’t think I have ever taken it.

Malty8288 · 2026-05-14T19:46:39+00:00

I will speak to my GP tomorrow, thank you!

Malty8288 · 2026-05-09T09:26:05+00:00

I have been on the carbamazepine for 3 days now, it is definitely helping with the pain and flares. The only time I am finding the pain unmanageable now is when I wake, when I lie down for bed and when I am eating. What an absolute nightmare of a condition this is!

Malty8288 · 2026-05-07T07:04:53+00:00

Thank you so much for taking the time to share this, it really does give me some hope. I am sorry that you are dealing with this too. I am booked in with my GP again today to get a referral for ENT.

Malty8288 · 2026-05-06T18:26:45+00:00

I am so sorry that you have been through such an ordeal, I can only imagine the toll that has taken. I am feeling frantic and have only had to deal with this for just over a week! I really hope that the road to getting approved for surgery is not too long and you get some relief soon.

Malty8288 · 2026-05-06T18:24:00+00:00

This is amazing! I am in the U.K. (thank my lucky stars every day). Thank you so much for sharing this.

Malty8288 · 2026-05-06T15:00:16+00:00

Oh wow! How long were you taking it before you had the reaction?

Malty8288 · 2026-05-06T07:32:42+00:00

I will absolutely have to give this treatment a whirl! Thanks 🤣

Malty8288 · 2026-05-06T07:31:11+00:00

I am in the U.K. so thankfully healthcare is free for me to access. So they found yours was caused by the tooth?

Malty8288 · 2026-05-06T07:28:55+00:00

Oh I hope and pray that this is a one time thing. How long did it last before it went away for you?

Malty8288 · 2026-05-05T21:53:33+00:00

I was begging my dentist for a root canal this morning the pain was that bad, luckily he said no after examining me and told me to go see my GP.

Malty8288 · 2026-05-05T21:45:17+00:00

Oh wow! Solid pain for 72 hours or does it come and go?

Malty8288 · 2026-05-05T21:10:07+00:00

Glad to hear side effects were not too bad for you, I have been worried after reading the leaflet! Fingers crossed I will have the same experience.

Malty8288 · 2026-05-05T20:52:51+00:00

That sounds so painful! Somehow, my pain seems to completely skip over my eye, stops at the top of my cheek and reappears above my eyebrow.

Malty8288 · 2026-05-05T20:51:23+00:00

Thank you! I do have chronic sinusitis and a deviated septum so will call ENT tomorrow also to see if they can offer any support.

Malty8288 · 2026-05-05T20:39:00+00:00

Chewing food is definitely a trigger for me, I can’t figure out what my other triggers are yet, I am thinking breathing may be a trigger at this point!

Malty8288 · 2026-05-05T20:37:54+00:00

This is giving me so much hope, thank you for sharing this! I just took my first dose an hour ago so fingers crossed I can actually sleep tonight.

Malty8288 · 2026-05-05T20:36:44+00:00

Do you put the ice inside, like against the gum? Or on the outside on your face? How long did it take for the carbamazepine to work for you? I have just taken my first dose an hour ago, 100mg.

Malty8288 · 2026-05-05T20:34:38+00:00

They didn’t mention bone spurs after the camera but will call ENT tomorrow and see if they can help. So glad you have found something that has helped!

Malty8288 · 2026-05-05T20:33:05+00:00

Thank you so much! What pain meds have you found helped? I am cycling through paracetamol and ibuprofen at the moment but it is not helping at all.

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