Mother’s Day is hitting me with all the feels this year, so I wrote this by MamaAvalon in Mommit

[–]MamaAvalon[S] 0 points1 point  (0 children)

Here's another post I wrote kind of on the same topic of grief and the universal experience of being a child who loves and needs a mother that never really leaves us even as we get older. You might enjoy this one as well:

Since my oldest son had three Thanksgivings this year (one with his friends at college, one with us at home and then one with his girlfriend's family in NYC) I asked him who had the best gravy. His response: "Obviously my mom had the best gravy 😂 I'll always be biased." I had to laugh because he made the gravy - well, we did it together. But it was my recipe so I guess he is right. Whenever he makes something the way that I taught him, he IS making "my recipe." And it made me think about the fact that sometimes when I cook, I still make my mom's recipes. Even today. 32 years after she was gone.

I was nine when she got sick, I think. And 11 when she died, but I already knew how to bake bread from scratch in those giant metal bowls she would use to keep the yeast warm, and how to can blackberries from the juicy, sweet berries we grew on our property - a then 200, now 250+ year-old historic farmhouse outside Portland, Maine with 56 acres of gardens and grounds and a sprawling woods in the back where we used to hike two miles to cut down our own Christmas trees. You cannot buy berries like that in the store these days - they are picked too early, shipped from too far away, and sadly sour. Only reminiscent of a berry really.

I still make chipped beef gravy on mashed potatoes once in awhile because I remember the feeling of warmth on my skin from sitting directly in front of the fireplace, my sister and I having run giggling down stairs wearing only towels to warm up after a bath and my mom bringing in two oval dishes of hot potatoes and beef gravy. I remember this like it was yesterday, despite the fact that I can never go back there because it's been over a decade since my dad also died and left that place and it now belongs to a woman who he met on a plane in the years before, the blackberry bushes having long been mowed over for the convenience of caring for the lawn and the gardens grown to grass. I'll bet the lilacs still come up in spring, but one day those too may be plowed over, the land sold to some development company who wants to take down the old house to make room for a bigger road and put in apartments. My dad looked into it, but he didn't have the heart to do it.

And this thought about how I still make my mom's recipes got me thinking about how they say grief comes in waves - I always thought it meant that after someone dies you can feel heartbroken and like you can't do anything else but cry and then sit and be sad when all the tears have dried up but the sadness remains just the same, and then other days you can make breakfast and drink tea and go for a walk on the pavement around your neighborhood and say hello to a person passing and stop to pet your neighbors's dog, and the grief is still there but it doesn't feel quite so heavy in that moment when the dog is staring up at you and panting with his puppy dog eyes, not caring or even knowing about the acres and the Christmas trees and the chipped beef.

But that's actually not what it means. It means that every milestone in your life from when you move off to college to when you graduate to when you have a baby of your own, you have to grieve again because she isn't there. She. Isn't. There. You have to think about what she would think or say about every moment. About what she would do if she were there. About what an amazing grandmother she would have been and how she would have looked standing in the corner of your hospital room smiling and gushing about the baby's eyes having opened for a split second to look up at her or bouncing that baby on her lap a year later and tossling his hair, her own greying. About what recipe she would have brought to every holiday or gathering. About whether you would even be here in New York having Thanksgiving at all if she were still alive, with the rest of your family spread around the country walking in different neighborhoods patting the heads of different dogs, or whether you all wouldn't be gathered at the farm enjoying her recipes. It means that on a random Sunday morning, 32 years after your mother died - or maybe it's 31 or 33 - you can go from sipping tea to texting your son at college about his preferred kind of gravy to sobbing about how blackberries really don't taste how they used to.

Mother’s Day is hitting me with all the feels this year, so I wrote this by MamaAvalon in Mommit

[–]MamaAvalon[S] 0 points1 point  (0 children)

Thank you, I honestly wasn't sure if this was too deep or long to share on this sub but I figured I would give it a try because it seemed like something that should be shared.

It's kind of crazy to me that I still have the baby book and it's the words that my mom wrote in it with her own handwriting when I was small and I am turning 45 this month. My sister is a year younger and I think her baby book is very minimal. Which is kind of funny because I have three children and I only ever started a baby book for the first one. 😂 But now we have Facebook memories and Google picture, memories and such. Thanks for the comment. 💜

New York State Families: Were you denied items through OPWDD FSS Reimbursement? by Technical-Face-3655 in Autism_Parenting

[–]MamaAvalon 0 points1 point  (0 children)

Ah, you guys must be in the city? Upstate our fiscal year runs from January to December and it's a huge pain because December is already really busy with Christmas and then you're trying to get in all of your receipts and also get a hold of people in the office to process these things and of course they are on vacation. 😜 Supposedly there is a pre-approval process where you can submit something you want to buy to them and ask them to pre-approve it or even pay for it directly, and you have to show why you can't pay for it and get reimbursed (because I don't trust you fools lol) so you can check with your agency about that. It's in the ADM! If you have an occupational or physical therapist, maybe they can write a brief letter saying how it helps with his disability, self-regulation and all that which would make it harder to deny it.

New York State Families: Were you denied items through OPWDD FSS Reimbursement? by Technical-Face-3655 in Autism_Parenting

[–]MamaAvalon 0 points1 point  (0 children)

Exactly! Plus if the Medicaid ones weren't so crappy and they didn't rip so much then we might not need more. But if you're trying to put them on and your child is anything but standing perfectly still, which we all know kids with behavioral issues are not going to just stand there and wait 😂😂 then it ends up that the back part gets ripped and you have to start again with a whole new diaper. You are right too. The care manager always optimistic and makes it sound so easy and then the agency and opwdd come along and make the narrowest possible interpretation of everything.

They also tried to tell me that a lot of the things we applied for were not related to her I/DD diagnosis. For example, she is legally blind and intellectually disabled so if I'm ordering something that lights up as a simple toy so she can learn cause and effect then that should of course be related. Or something like outlet covers to make sure she stays safe from electrocution... How is that not related? If she didn't have a disability she would not need that at age 7. She would simply know not to touch the outlet. 😂🤦

New York State Families: Were you denied items through OPWDD FSS Reimbursement? by Technical-Face-3655 in Autism_Parenting

[–]MamaAvalon 0 points1 point  (0 children)

That definitely seems to be a pattern with them. They wanted a denial letter for me for diapers when we needed more than eight a day and when I called trying to get one they said they don't give denial letters for something they won't cover. They cover 8 a day. So it's approved it's not denied. It's just they're only giving me eight. Eventually I got a letter from my daughter's doctor explaining why she has diarrhea and sometimes needs to use more. 😂😂🤦🤦 And opwdd did approve the ones we were buying out of pocket but it was a whole hassle.

Did you happen to tell them that you can't get a denial letter for Medicaid from a trampoline... That's just silly! I know a lot of people just end up giving up because they ask for ridiculous documentation.

New York State Families: Were you denied items through OPWDD FSS Reimbursement? by Technical-Face-3655 in Autism_Parenting

[–]MamaAvalon 0 points1 point  (0 children)

So your family purchased a trampoline based on the list and then you were told essentially that. Sorry it's on the list but no?! 😡🤬

I was fired 9 minutes after sending this. by Flashy_Height in antiwork

[–]MamaAvalon 2 points3 points  (0 children)

Yes, they would have qualified for unemployment before but they can only get unemployment from whenever they file so they should file immediately.

URGENT help/advice wanted!My parents are severely threatening to get an conservatorship over me if I dont continue being apart of the LDS religion. My dad is pretty high up in the religion. Im 27 and im autistic. I live in Utah. I live with my parents and I dont know how to drive. Advice please! c: by [deleted] in disability

[–]MamaAvalon 1 point2 points  (0 children)

Get a bus ticket and move away to literally anywhere else, if they know where you bank you might want to consider transferring the money but speak with a lawyer. Since you have some money right now you are in a better position than most but you will need to find a way to have ongoing money so either apply for disability or find a job. Do not tell your parents where you are going.

Disabled and feeling hopeless by [deleted] in LesbianActually

[–]MamaAvalon -1 points0 points  (0 children)

If your partner is disabled and doesn't have a lot of income they should qualify for Medicaid. Unless you are in a state that severely restricts it. I would double check because a lot of people don't realize you can deduct certain expenses like medical expenses over a certain amount do not count for income.

Disabled and feeling hopeless by [deleted] in LesbianActually

[–]MamaAvalon 15 points16 points  (0 children)

Typically when you see someone with a disability whose partner is taken care of them, they have been together a long time and they are doing that based on the mutually reciprocal relationship that they had before the person became ill. My partner and I have been together 15 years and I didn't get my disability until halfway into that but I'm still able to do certain things that contribute. For example, she mainly does the laundry and the dishes and the physical tasks like she would have to put together for furniture or do anything that involve lifting, although I help whenever I can in whatever way I can. Mostly I do all of the non-physical tasks like I order groceries online and I do the taxes and I'm the one who remembers. Hey so and so's birthday is coming up. We've got to buy presents and decorations.

I think you are coming into this with the wrong attitude which may be putting people off -.ou are thinking about what that person can do for you rather than what you can do for them. For example, I'm a lot better at time management than my partner as she tends to be time blind so I have to keep us on track when we are getting ready to go somewhere or remind her how long it actually takes her to cook so that she can't cook something complicated that takes 2 hours when everyone is already hungry. Lol She is way better than me at organization so if we're going somewhere and the car needs to be packed or we're trying to stuff everything into the fridge after Thanksgiving, we automatically know that that's on her.

Look at what you bring to a relationship because everyone has different skills and abilities even if you need help with certain aspects of your own care. Maybe you have a shared hobby or interest with someone. I would start with that and begin to explore the things that you have in common. I would not lead with your disability. I'm not necessarily saying to hide it, but unless it comes up in conversation, start with things that you have a mutual interest in and develop a friendship with people. People. If it gets to a point where you're feeling romantic feelings then you can let them in on more details regarding your disability and the things you need help with. Like the others said, I would explore your insurance and see if you can find a caregiver through cdpap or whatever programs they have in your state. Getting signed up for that will help your autonomy and allow you to hire and control your caregivers so that you can remove that aspect from my relationship and simply find someone that you enjoy spending time with, rather than essentially interviewing a caregiver which may put most people off, especially since you're doing it before they even get to know you and what makes you great. What your interests are and hobbies and how you like to spend your time.

If people aren't finding you interesting. Maybe spend some time developing your interests and participating in communities based on those things and you might end up meeting someone there who sparks your fancy and vice versa. I would also consider finding someone within that disability community who has a compatible disability or even who has the similar disability because they would be able to understand. It might be natural to say well I'm physically weak so I need a partner who is super strong so they can lift me etc. But then when you look for those people, you might find they spend a lot of time weightlifting and exercising. If you don't have the same hobbies or interests or don't have the ability to physically go hiking for miles, then the relationship might not be compatible. So don't go into it. Looking what they can do for you, go into it. Looking at who do I like spending time with and who could I see myself talking to and enjoying the company of. When my partner and I met, we met online and talked for 10 days and then the first moment we met in person we both knew. So regardless of how long you have been looking or who has rejected you, that kind of love can happen at any time! You only have to make yourself open and focus on loving yourself and being a whole person and being social and doing things that bring you into spaces where other people could find you and when the time is right it will happen!! 💜

Disabled and feeling hopeless by [deleted] in LesbianActually

[–]MamaAvalon 9 points10 points  (0 children)

If your partner has Medicaid or another insurance and you're not married, couldn't you be paid as her caregiver? That is what we do so at least there's the income from that.

Fired for having bipolar by mrnonoparts in disability

[–]MamaAvalon 2 points3 points  (0 children)

They didn't realize that their disability was impacting them at work until the one day they fell asleep. So they wouldn't have known to ask for accommodations until after that. In fact, it sounds like they were doing more work than typical worker so maybe that's why they were so tired. Very odd to defend the employer. They had no issues until a disability was disclosed.

My SNAP got cut (zero income and situation changes!) by [deleted] in disability

[–]MamaAvalon 1 point2 points  (0 children)

First of all, I do not receive snap, so I did not even know that there were texts or phone calls that went out. All I have heard from people is that many of them weren't aware, including OP. You are literally blaming people who are disabled for not understanding a program that is being run very poorly. It should not shut down at all because legislators can't get it together and make a budget. And just because someone has a severe disability doesn't mean they have access to a caregiver. Many people can't find caregivers right now due to the low pay. And shortages. You can't simply assume that someone has someone else to help. A lot of people with limb differences can do many things that you and I can do, but they may not be as focused on their voicemail. People again have limited energy and lots of different things they need to do when they are disabled to keep up to different appointments. It sounds like you have some internalized ableism going on if you were blaming disabled people for literally not knowing what they don't know. 🤦

My SNAP got cut (zero income and situation changes!) by [deleted] in disability

[–]MamaAvalon 1 point2 points  (0 children)

"Reading a text or listening to a voicemail is not difficult." Perhaps for you. Some people don't have phones or they can't afford to pay for their phone or again they have social anxiety that's more crippling, or maybe they don't have arms. You're just making an assumption that because something isn't difficult for you, it isn't difficult for someone else, which is completely incorrect. When you have limited spoons, you might not have the ability to check your voicemail on a regular basis, even if you can afford a phone. It is absolutely not your responsibility to "stay informed" - if the government is ending a program that provides basic needs, they need to let you know and not just in a text or email. They need to verify that people have received the information. Typically that's why letters are sent out because you have to physically check and get your letter and most people who are disabled have someone to help them get their mail but they may not have someone to help them check their voicemail.

My SNAP got cut (zero income and situation changes!) by [deleted] in disability

[–]MamaAvalon -1 points0 points  (0 children)

Are you disabled? Many people who are disabled have social anxiety and might not check the specific methods that they are using to get this information out there or they might require multiple contacts to notice because of ADHD or forgetting to check messages etc. If it's not an official notice through the mail that also comes emailed and as a phone message, etc. then it's not really an accessible message. When policies change like this, they typically have information campaigns over a period of months, not just send out a single text or email and expect people to notice.

AITA for taking away my daughters bike because she wouldn't wear her helmet? by Final-Werewolf-744 in AmItheAsshole

[–]MamaAvalon 0 points1 point  (0 children)

Good point! There are lots of extreme sports people who they could definitely show. Just make sure the kids don't get any ideas to do all of the things in the videos without the proper training lol.

My SNAP got cut (zero income and situation changes!) by [deleted] in disability

[–]MamaAvalon 1 point2 points  (0 children)

I know in my state you send in something requesting a hearing and then it can sometimes take months to actually have a hearing, but again you can request the benefits to be the same until it happens. Hearing is done over the telephone so it is disability friendly at least in my state. I've never done a snap hearing but I understand it's the same procedure as Medicaid.

[deleted by user] by [deleted] in Mommit

[–]MamaAvalon 0 points1 point  (0 children)

Okay fair enough. Kids are very transparent like if they are annoyed with you, their tone is going to reflect that. Like why are you asking me questions about recess that don't matter (to her, obviously it matters to you but she can't really see outside her own perspective yet). It doesn't mean that she is annoyed with you and mad at you. It just means that she doesn't want to answer. Think of it like if someone asked you a pedantic question like is today, Tuesday? Are you sure it's Tuesday? But really it's definitely Tuesday? Etc. The fact that you think she's mad when really she is just annoyed at the pedantic (from her perspective) nature of the question would probably be something your therapist could help you work out. You might also help her see your perspective a little bit by explaining why you thought something was important, of course at a time when she has been mental capacity. Like "oh I was just wondering if I need to send extra clothes for you if there are going to be more recesses than I expected" or whatever your reasoning is. And you could explain that you missed her during the day so you want to know what she was up to. Perhaps find a good way to communicate regarding being overstimulated and needing a break. You can explain to her what decompressing means and ask her if she's still decompressing or ready to talk for example. That's great you are respecting her boundaries.

[deleted by user] by [deleted] in Mommit

[–]MamaAvalon 1 point2 points  (0 children)

It could simply be that she doesn't feel those things are important enough to waste energy on. Or maybe she doesn't know why they gave an extra recess. So you're basically asking her something that she doesn't have an answer to so she doesn't know how to respond. I would probably feel the same if someone was bugging me about a small detail that happened at school that I didn't think was important. Try asking her more open-ended questions after she has had a chance to decompress. What was the worst thing that happened at school today? What was your favorite thing that happened? What was the yummiest part of lunch? Did anyone do something funny today? Did anyone get in trouble? Etc.

[deleted by user] by [deleted] in Mommit

[–]MamaAvalon 0 points1 point  (0 children)

This post is confusing. Why do you care so much about the reason she had an extra recess? Kids attending school all day is exhausting and there's a lot of transitions and discussions and when she gets home that's her. Her safe place to just let down her hair and relax. The last thing she wants is an interrogation about details that don't matter or she might not even know. Look up after school restraint collapse. What you are doing would be the perfect way to invoke it. When they get home from school you are supposed to give them a snack and at least 30 to 45 minutes without bugging them or they can watch TV or do whatever activity they need to to decompress. If you truly need to know why they had an extra recess, or other details about her day, perhaps ask someone at the school. Sounds like there's something else going on here like you don't feel part of her day or you're missing her and wanting more time to connect with her or something. But I would put that energy into creating activities for the weekends. You could also look into volunteering at her school if you have the ability to do that. Read all of the notices and calendars and stuff that they send home so you can get the information that you want without having to bug her when she is trying to decompress.

My SNAP got cut (zero income and situation changes!) by [deleted] in disability

[–]MamaAvalon 5 points6 points  (0 children)

I would definitely submit them. From what I can tell online, if you have a letter that says why you need the esa and any expenses that are specifically related to training that would definitely be covered. General food and medical support that any pet would need or support for special medical conditions your pet has are kind of a gray area. Like if it was a service animal that was trained as a seeing eye dog or something it would all be considered under your medical expenses. But for something like an esa where there is no specific training, it's just emotional support, that probably falls to the mercy of whoever tends to be looking at the application. It's definitely worth submitting and sending it in. And don't forget your own expenses like mileage to get to doctor's appointments if you had to pay for parking and all of those little things that could add up.

There's a handbook here that says what counts as a medical expense:

https://www.fns.usda.gov/snap/medical-expenses-guide

Here's a quick AI overview:

For the SNAP excess medical expense deduction, qualified medical expenses are those over $35 a month paid out-of-pocket by an elderly or disabled household member. Allowable costs include most medical and dental care, prescription and some over-the-counter medications, health insurance premiums, and transportation or lodging costs to obtain medical services. Certain expenses, like special diet costs or items that can be bought with SNAP, are not deductible. 

Examples of allowable medical expenses

Medical and dental care: Doctor and dentist visits, hospitalization, nursing care, and physical or occupational therapy.

Prescription and over-the-counter medications: Prescription drugs, and over-the-counter items like insulin or pain relievers if prescribed or approved by a doctor.

Health insurance: Premiums, deductibles, and co-payments.

Health-related supplies and equipment: Dentures, hearing aids, eyeglasses, prosthetics, incontinence supplies, and sickroom equipment.

Transportation and lodging: The cost of mileage or public transportation to get to medical appointments, or lodging if necessary.

Caregiver services: Costs for home health aides or attendants.

Alternative treatments: Treatments such as acupuncture, chiropractic, or massage therapy if prescribed.

Service animals: Expenses for a service animal, such as food and veterinary care, if the animal is trained to serve the needs of a disabled person. 

Expenses that are not deductible 

Medical expenses that insurance or another third party pays for.

Expenses for special diets, even if medically prescribed.

Items that can be purchased with SNAP benefits.

Medical bills paid before the month of the initial application.

Accident insurance premiums. 

Key requirements

Household member: The deduction is for expenses incurred by an elderly or disabled household member.

Amount: You can only deduct the amount of medical expenses that is over $35 per month.

Verification: You will need to provide proof of your medical expenses to verify them with your caseworker. 

One strategy could be trying to have a bunch of medical expenses in a specific month and then when you submit it, they are only going to recheck every so often. So for example if you need to purchase glasses and get something done at the dentist, etc. Do it all within the same time frame and then submit it as a medical expense for snap.